New!

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jnfrmbrwn
Posts: 19
Joined: Sat Jul 14, 2012 8:20 pm
Facebook Username: http://www.facebook.com/jnfrmbrwn

New!

Postby jnfrmbrwn » Sun Jul 15, 2012 4:04 pm

Hi all,

I wanted to introduce myself & say hello. My name is Jen & I'm a 24 yr old female living in Brooklyn, NY. I was diagnosed with colon cancer 3 weeks ago and had my first (hopefully last!) colon resection on Monday. Healing is going well so far! I am scheduled to meet with my surgeon in a week to discuss the results of my biopsy & further treatment. Just want to say what a great website this is - I had a hard time finding information regarding colon cancer in young adults & it's great to spread awareness. I now understand this disease can happen to anyone and any age - more people need to be informed!

Stay healthy!
26 yr, F
Stage III CC 5+ lymph nodes
July 9 2012 - colon resection
August 15 2012 - starting FOLFOX
NED since Feb 2013!

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dianetavegia
Posts: 2731
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: New!

Postby dianetavegia » Sun Jul 15, 2012 4:26 pm

Hi Jen, so sorry to hear about your diagnosis (dx). I hope your biopsy shows Stage I or II but whatever... we're here to help.

Diane
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Angiemarie2000
Posts: 573
Joined: Sat Jul 14, 2012 6:29 pm
Facebook Username: Angela.boles
Location: Eden Prairie, MN

Re: New!

Postby Angiemarie2000 » Sun Jul 15, 2012 4:49 pm

Hi Jen,

Welcome to the board. I am new here myself and have found an endless amount of information. Best of luck to you.
5/12- @ 37 DX IV KRASmt
5/12- R. Hemi
6/12- Folfox/avastin-(Bad Reaction)
6/12- xeliri-7rds
CEA-DX @ 80 then 11,10,7,14,25,210,340,540,900
12/12-R. Ovary removed
01/13- folfox 4 rounds
03/13- folfox failed, in liver failure, starting regorafebin.

sadysue
Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: New!

Postby sadysue » Sun Jul 15, 2012 5:32 pm

Hi Jen, so sorry to hear about your diagnosis. There is a tremendous amount of info on this website and if you can't find what you are looking for, just post and ask for help. Best of luck when you see your doctor!
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

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thostie
Posts: 149
Joined: Fri Jan 21, 2011 3:06 pm
Location: california

Re: New!

Postby thostie » Sun Jul 15, 2012 11:11 pm

Hi Jen,
Im sorry you had to join the club but im happy you found us for information. I am also in my 20s (for a little bit longer) and found it hard to find other young people to connect with. Feel free to pm me if you have any questions about treatments or whatnot. good luck with you upcoming biopsy also :)
Erin 28 year old mom of two
Stage IV diagnosed 11/2/10
Started chemo (folfiri + avastin) 12/2010
lung mets resolved switched to Xeloda + Avastin 10/2011
6/2012 largest liver tumor started growing again more folfiri + avastin

JerseyGirl
Posts: 95
Joined: Mon Jan 02, 2012 10:16 am

Re: New!

Postby JerseyGirl » Mon Jul 16, 2012 6:46 am

Hi Jen,

So glad you found us. I am 31, was 30 at diagnosis. I have been through two major surgeries and almost 12 rounds of chemo. I pray for good results for you. If if you ever have any questions, please feel free to reach out to me!
Diagnosed Nov. 11' Stage 4 @ Age 30
9/40 nodes, 3 liver tumors
Colon Resection 12/11
Liver Resection 2/12
FOLFOX + Avastin for 12 rounds
Cancer back a few months after chemo ended:(
Inoperable/Chemo for life
KRAS Mutant and allergic to Irronitican

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sandrichelle
Posts: 396
Joined: Tue Feb 21, 2012 10:31 am
Location: Albany, NY

Re: New!

Postby sandrichelle » Mon Jul 16, 2012 7:21 am

Hi Jen,

I am 34 diagnosed stage IV...tons of support on here so don't be afraid to ask questions, pm peeps and just vent if need be! Sending positive vibes that you are a stage 1-cured :)
Dx Stage IV CC 02/12-56.1 CEA
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: New!

Postby elise » Mon Jul 16, 2012 7:38 am

Hi Jen

Welcome to the club! I've got my fingers crossed that you're stage 1 :)

Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

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CheeseHead
Posts: 1171
Joined: Sat Jul 31, 2010 2:36 pm
Location: Netherlands

Re: New!

Postby CheeseHead » Mon Jul 16, 2012 9:47 am

24!

Now I really feel like an old fart with my 38 years...

Hope it's indeed your first and last colon resection and that it's stage I.

Glad you found us... I'm sure you'll get a lot of good advice from here.

Cheese
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: New!

Postby Guinevere » Mon Jul 16, 2012 9:50 am

Welcome to the club no one wants to qualify for but is glad they found! There are lots of people on here who can help answer questions and it's a great place to vent and/or whine or share good news.
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

jnfrmbrwn
Posts: 19
Joined: Sat Jul 14, 2012 8:20 pm
Facebook Username: http://www.facebook.com/jnfrmbrwn

Re: New!

Postby jnfrmbrwn » Tue Jul 17, 2012 4:50 pm

Thank you so much for your support! So glad I found this forum with so many great people.

I spoke with my surgeon this morning and received some results from the surgery - 5 lymph nodes tested positive and he is strongly insisting chemo. I have an appointment with my oncologist tomorrow to discuss in more detail.

When I was first diagnosed my oncologist explained that if chemo was needed it would most likely be FOLFOX. I was wondering if anyone has tried any other forms of chemo or alternative methods or you have used FOLFOX and liked it? This is all so overwhelming and of course the internet only shows what you don't want to hear! DId some research and not too thrilled about the side effects - mostly the chance of becoming infertile. Of course everyone reacts differently, I am just seeing the worst right now. Also concerned about how it will effect my eating habits as I am vegan & would prefer not to change my diet. At the end of the day I'll do whatever needs to be done, just trying to see all options!

Many thanks! ;-)
26 yr, F
Stage III CC 5+ lymph nodes
July 9 2012 - colon resection
August 15 2012 - starting FOLFOX
NED since Feb 2013!

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Phuong
Posts: 1508
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: New!

Postby Phuong » Tue Jul 17, 2012 8:05 pm

Welcome Jen! You'll probably want to schedule an appointment with a nutritionist - there's probably one at your onc's office that could would be familiar with nutritional needs while on chemo. FOLFOX is a standard first line of chemo, though there are other options. There are all sorts of tips to be found on this forum, like using plastic utensils instead of metal to help minimize first bite pain and the metallic taste. We're here for you as you travel down this path. Let us know what questions you have - chances are that someone here has already BTDT.
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

Peabody5422
Posts: 334
Joined: Fri Dec 09, 2011 10:21 am
Facebook Username: debbie.whitaker

Re: New!

Postby Peabody5422 » Wed Jul 18, 2012 10:13 am

Hi Jen,

Sorry you are here but happy you found this site. It's great! Keeping my finger cross for a simple Type I with nothing else. Even if, don't completely freak. Life goes on and you will get thru. Ask all the crazy questions on this site. It really helped me thru when I didnt know how to talk to family and friends.

Deb

Age: 63
DX: T1 n1c Mx Rectal Cancer 11/22/11
Stage III
Micro Surgery: 12/21/11
Rad & Xeloda: 1/12 - 3/12
Clear scan: 4/22/12
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery

Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: New!

Postby Cb75 » Wed Jul 18, 2012 10:38 am

I was recently diagnosed with stage iv at the age of 36. It is amazing to me to see so many young people with this. I have not started chemo yet as I am waiting for liver resection surgery, but have been told that when I do start it will be with FOLFOX. As for side effects, everyone is different. My dad was diagnosed just over three years ago with stage three, similar to you and did six months of FOLFOX. His side effects weren't too bad, just some constipation, weight loss and a bit of nub ness in his fingers and toes. He is now cancer free and his doctors consider him 'cured'. As for your concerns about fertility, you can have your eggs frozen to be used later. I recommend you look into this if you want to have kids at some point. I have one child and have decided not tomlookmintomways to preserve my fertility.
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

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live2jett
Posts: 762
Joined: Wed Mar 11, 2009 4:36 pm
Facebook Username: debbie jett
Location: San Diego, Ca. www.live2jett.com
Contact:

Re: New!

Postby live2jett » Sun Jul 22, 2012 2:56 pm

HI Jen ...Welcome to the family:)
Age:51
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014


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