Gaelen update - TUESDAY 7/17 UPDATE

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beth568
Posts: 961
Joined: Fri Mar 25, 2011 7:49 am
Location: Boston area, MA

Re: Gaelen update

Postby beth568 » Sat Jul 14, 2012 9:52 pm

:(

I know she's prepared for what will come, but still, I know none of us like this news. I'm hoping that Pat stays comfortable as long as possible, and that she knows how much she has done to provide accurate information and, with it, comfort, to so many people. I've always appreciated her frank and intelligent posts.
Beth
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net

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fritts44
Posts: 534
Joined: Thu Dec 30, 2010 3:04 pm
Facebook Username: Lee Fritts

Re: Gaelen update

Postby fritts44 » Sat Jul 14, 2012 9:57 pm

I'm so sad to hear this. Even knowing she was no longer receiving treatments, I still thought she would be fine for longer. I hope she's comfortable & I'll be praying for her.

Lee F
Lee F
RC dx 12/16/10
resection & perm colo 12/17/10
8 rounds chemo, 28 rounds radiation
finished 8/26/2011
clean scope 9/20/2011
clean CT scan 12/26/2011
NED

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cecioboe
Posts: 594
Joined: Mon Oct 17, 2011 9:08 pm
Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Gaelen update

Postby cecioboe » Sat Jul 14, 2012 10:06 pm

We're praying for her comfort and peace. And for her family's strength to mirror hers throughout this very difficult time.
Ceci & Jim
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
10/22/12 - 10/3/18 NED
De-ported 6/24/16

keepcalmcarryon
Posts: 71
Joined: Tue Aug 24, 2010 11:34 am
Facebook Username: me
Location: philadelphia

Re: Gaelen update

Postby keepcalmcarryon » Sat Jul 14, 2012 10:48 pm

I've been dreading hearing this
I always read her postings first. They were so informative, well written, and straightforward. I wish I could thank her for educating me and undoubtably many others. May her death be easy and pain free, as she wished it.
9/07 t3 n2
exc. biop, Xelox, Rad
06/08 NED
03/09 PET-pelvic LN
06/09 rad tx
10/09 exp.lap; can't find LN
05/10 Stage IV, lung nodes
04/10 Xeliri, Avastin
06/10 PET-lung ok
11/ 10 failed surg ln
02/11 Proton tx
7/11 failed clin. Trial
10/11- xelox

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Bev G
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Facebook Username: Bev Golde
Location: Quechee, VT

Re: Gaelen update

Postby Bev G » Sat Jul 14, 2012 10:53 pm

My heart and prayers continue to be with hurt, and my heart aches with her family and other friends.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Fanatik
Posts: 113
Joined: Sat Feb 06, 2010 4:07 pm
Facebook Username: Scott Stephens
Contact:

Re: Gaelen update

Postby Fanatik » Sat Jul 14, 2012 11:37 pm

Man I wish there would be some sort of major breakthru in the treatment for this nightmare of a disease... I don't know how everyone else feels, but lately its been pretty tough to read so many posts with all the pain people are going through lately... maybe its like this all the time and I am just more sensitized to it right now, but its a struggle for me lately to hear so many people hurting so much.... I hope she is as comfortable as possible and gets through this ordeal as best she can...
DX Rectal Cancer T1N0M0 1-22-2010
TEM (transanal endoscopic microsurgery) 2-19-2010
Pathology shows clear margins, no vascular involvment 2-24-2010
No immediate need for Chemo/Radiation
Close watch for now
http://www.carepages.com/carepages/Geekfireman

salysue
Posts: 366
Joined: Mon Jul 21, 2008 8:39 pm

Re: Gaelen update

Postby salysue » Sat Jul 14, 2012 11:57 pm

I, too, am so very sorry. She contributed so many words of wisdom to this forum.
Husband diagnosed 2/7/08
Stage IIIA RC
2 nodes positive out of 29
5FU and radiation
Surgery 6/10/08
6 months Folfox ended 12/31/08
Ileo takedown 2/12/09

ONE DAY AT A TIME!

AJS
Posts: 753
Joined: Sun Feb 17, 2008 10:47 am
Facebook Username: Angie Jennings Stratton
Location: Virginia

Re: Gaelen update

Postby AJS » Sun Jul 15, 2012 12:29 am

Thanks Jaynee for the update. Keeping Pat and her family in my thoughts and prayers. May the remainder of her journey be peaceful.

Angie
[size=50][color=#FF00FF]Diverticulitis/Resection 12/27/07
Dx 1/08-Stage IIIA CC-2/15 Lymph Nodes-42 yrs old
2/08-8/08 -Folfox/Erbitux
Hysterectomy 3/09-CC on Ovary-Folfiri&Avastin
1/12-resection,bladder surgery,illeostomy
3/12-Illeostomy takedown
5/13-Folfiri/Avastin

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hopeful
Posts: 1372
Joined: Mon Jan 04, 2010 11:43 am

Re: Gaelen update

Postby hopeful » Sun Jul 15, 2012 1:49 am

Jaynee, thank you for the update. Please send my strongest positive thoughts for peace and comfort to Pat.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

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CheeseHead
Posts: 1171
Joined: Sat Jul 31, 2010 2:36 pm
Location: Netherlands

Re: Gaelen update

Postby CheeseHead » Sun Jul 15, 2012 3:41 am

Thanks for the update, Jaynee, even though it was news that could be expected, it's still somewhat of a bad surprise.

Yes, she has done so much for us here on the CC and elsewhere... and I'm very thankful.

My strongest thoughts for her and her family. Hope she will remain comfortable.

Cheese
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

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Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: Gaelen update

Postby Kathleen808 » Sun Jul 15, 2012 4:04 am

Thank you for this update on Pat. This is hard news even though she was so good about preparing us. I send lots of warmth and aloha to Pat and her family now. What a very difficult time for all of them with Pat's sister ill as well. I hope for peace.

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

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dianetavegia
Posts: 2722
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Gaelen update

Postby dianetavegia » Sun Jul 15, 2012 7:14 am

My prayers for her and her family during this time. I am so very sorry.....

Diane
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Staci's team
Posts: 386
Joined: Fri Sep 25, 2009 9:43 am
Location: Canfield, Ohio
Contact:

Re: Gaelen update

Postby Staci's team » Sun Jul 15, 2012 7:15 am

Jaynee, thanks for letting us know. Along with all the others here, I'm sending Gaelen my strongest thoughts that she would be comfortable and able to continue to make her way through on her terms, not someone else's.
Husband to Staci, diagnosed at age 32
Clinical dx Stage II/III rectal cancer, 7/2009
APR surgery 11/09 leading to...
Pathological dx Stage IIIB, ypT3N1M0, 11/2009
http://www.caringbridge.org/visit/staciwills
Member of The Colon Club's Board of Directors

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barbara jayne
Posts: 757
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: Gaelen update

Postby barbara jayne » Sun Jul 15, 2012 7:51 am

Thinking of you Gaelen,
Hoping you are comfortable,
Sending thoughts of strength and peace to your sister and family also.

Barbara
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
11 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Gaelen update

Postby BrownBagger » Sun Jul 15, 2012 8:03 am

Peace, Pat.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.


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