Tomorrow, DH colonoscopy. UPDATE

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Bev G
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Tomorrow, DH colonoscopy. UPDATE

Postby Bev G » Thu Jul 05, 2012 6:52 am

Hi all:

As most of you know, my husband was diagnosed with stage IV lymphoma (lymph system cancer) in January. He went through the main chemo for it, finishing it in April, then had to wait 6 week for his post-chemo scan which was *supposed* to show 100% remission, but didn't. This was a bit of a surprise to our oncologist. He still has a bunch of retroperitoneal cancerous nodes, and something lit up in his COLON to an SUV of 10.6! He's finally getting a colonoscopy tomorrow (which he's been adamantly refusing for 15 years, even after I was diagnosed stage 4 :roll: ) The colonoscopy will show, 1) colon cancer (probably not) 2) diverticulitis (hopefully) or 3) lymphoma spread to his colon (probably, and very, very bad).

We'll go see our onc on 7/17 (when hopefully the path will be back) and the day after are going to New England for 10 days. Our onc has already said she will want to put him back on chemo right away, but he wants to see his second opinion lyphoma specialist and try to negotiate waiting for another PET/CT first in another couple of months before re-starting chemo. However, this doc has already told our onc by phone that he would re-start the chemo promptly, so I think this is a little denial my DH is having. The chemo he will have to go on is very dangerous, and WILL be career ending. It is an overwhelming thought for him, I know. It also brings to the fore many scary things that will need to get done right away. He wants me do all these things, but not talk to him about any of them, which makes it a bit harder.

This chemo, according to our onc, will require him to be an inpatient for about 4 days every 2 or 3 weeks (I can't remember how long the cycle is) and he will have 4 rounds (more can be deadly). It is horrible on blood counts, and I've been told he will feel like incredible sh*t each and every day of the 4 rounds. For my friends here, if you could please pray for my stamina to get through this. It isn't about me, it IS about him, but I am very fearful that he will need more than I can provide. I am so fatigued, and have such a hard time getting around because of my back and ankle issues, and am not much of a driver anymore (but will have to be driving back and forth to the hospital constantly), if you have some spare prayers, or good thoughts, etc, please pass them over. I am so tired, and very scared for what is coming...


Last edited by Bev G on Fri Jul 06, 2012 10:30 am, edited 1 time in total.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Location: New York City

Re: Tomorrow, DH colonoscopy, then what????

Postby JAZZToo » Thu Jul 05, 2012 7:04 am


Wishing you continued strength and endurance to withstand the trials that lie ahead for your husband and the demands that will be placed on you. Swinging chickens and many positive thoughts heading your way.


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Re: Tomorrow, DH colonoscopy, then what????

Postby Peteswife » Thu Jul 05, 2012 7:29 am

Beverly, I really don't know what to say, besides I wish I stayed neared and could help! I haven't met you, but you are such a special person to all of us on this board! I think we wish we all could be there to help!

Lots of love, and good wishes and vibes! You are super!
After 8,5 years living with CRC, Pete passed away on 17/4/2012. We had lots of quality time, we said our goodbyes! I am at peace because he doesn't suffer anymore! He is now better off with the Lord! We will surely miss him very very much!!

michelle c
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Re: Tomorrow, DH colonoscopy, then what????

Postby michelle c » Thu Jul 05, 2012 7:33 am

Oh Bev, of course I will pray for you and for your husband too. I hate what this is doing to you and how it is making you so fearful and scared. I really, really hope and pray that it is diverticulitis. Try not to think too far ahead Bev, easier said than done, I know. Try and take one day at a time. I really wish that I could help you in some way. Praying and thinking of you.

Take care of yourself,

Love Michelle xx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

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Re: Tomorrow, DH colonoscopy, then what????

Postby elise » Thu Jul 05, 2012 7:37 am


my heart and strength is with you and your husband. Chin up girl, you can do more than you ever thought you could. You're so strong.

Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
Feb - NED
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
Ap, Oct - NED
Mar - NED


Re: Tomorrow, DH colonoscopy, then what????

Postby Mama__Becs » Thu Jul 05, 2012 8:43 am

Dear Bev,

For what it's worth, please know that someone, somewhere is always thinking of you -- and that some of the time, it is me.


Mama Becs.

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Re: Tomorrow, DH colonoscopy, then what????

Postby Cj51 » Thu Jul 05, 2012 10:18 am

Oh, Bev, I'm so sorry that you and your husband have to go through this. I'll be praying for both of you.

DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED

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Re: Tomorrow, DH colonoscopy, then what????

Postby SpeechieRox » Thu Jul 05, 2012 10:34 am

Lots and lots and lots of good thoughts and prayers.

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Re: Tomorrow, DH colonoscopy, then what????

Postby edinaman » Thu Jul 05, 2012 11:13 am

Bev, I am thinking of you and your husband, and wishing you all the best. May you find the strength to get through this, and you know we are here to help and support you. Please take care.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

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Re: Tomorrow, DH colonoscopy, then what????

Postby RixInPhx » Thu Jul 05, 2012 11:30 am

Best of luck to him with tonight's prep for tomorrow's scoping.

Then relax, there's nothing to be done (medically for him) until results are back.

I'm sure you've arranged for housekeeping help and whatever else can be hired-out.
What about car service/medical transport to ease your chauffer duties? Maybe a responsible college student on vacation as an 'adult nanny' for driving, running errands, etc.?

Of course you have all my support and best wishes,
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

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Re: Tomorrow, DH colonoscopy, then what????

Postby SkiFletch » Thu Jul 05, 2012 11:46 am

Phew, lots of prayers coming your way Bev. Hoping you don't need them :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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barbara jayne
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Re: Tomorrow, DH colonoscopy, then what????

Postby barbara jayne » Thu Jul 05, 2012 12:51 pm

Hi Bev :)
Wishing you loads of stamina for yourself and lots of strength and good vibes etc for the days ahead for both you and hubby !

All the best,
Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
11 years NED
Facebook user name,
Barbara Allen

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Re: Tomorrow, DH colonoscopy, then what????

Postby annalexandria » Thu Jul 05, 2012 1:17 pm

What a terribly hard situation. I'm so sorry that you and your husband are going through this. Is there anyone else who can help you with some of the things that will have to be done? Perhaps, as Ric suggested, someone could be hired to help with the burden a little. I watched my stepmom almost kill herself trying to do everything for my dad in the last couple of years of his life, as they had no family nearby to step in, and my dad refused to let her pay anyone to help. I hope there's some way to get a little more support, as this just isn't a challenge anyone should have to face alone. Sending strength your way-Ann
Mom, librarian
Dx age 43, Sept. '09, Stage IV Carcinosarcoma of the colon
5 surgeries, 2009-2011:
colon/sm. bowel res., node removal, peritoneum, hysterectomy
FOLFOX/Avastin Feb.'10-Aug '10
Carbo-Taxol Dec. '10-Feb. 2011
NED since Dec. 2011.


Re: Tomorrow, DH colonoscopy, then what????

Postby Fede » Thu Jul 05, 2012 5:34 pm

The best for you and LOVEEEEEEEEEE infinit LOVEEEEEE, think in it.

My best wishes for you.


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Re: Tomorrow, DH colonoscopy, then what????

Postby Gloria » Thu Jul 05, 2012 6:36 pm

Sending prayers to both of you! Praying that you both have the stamina and strength to get through this.
DX 6/10/10
Resection 6/17/10
Stage IIA (pt3N0MX)
8/8 benign lymph nodes
Blockage/tumor 2.5 x2 x .3 cm
Start Folfox 8/9/10
Finished 1/17/11
NED :)

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