Remission with stage 4 metastatic colon cancer?

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Re: Remission with stage 4 metastatic colon cancer?

Postby rosa01 » Fri Jun 15, 2012 9:53 pm

Fantastic news. God does answer prayers.

DX 12/11 DH Stg 4 cc age 60
12/20/1 1 lungs mets
2/1/12 started chemo oxe/ava/5-fu
3/12 liver mete fnd
5/12 new chemo irt/Eberix
8/12 lung surg
10/12 irt/Eberix
11/22- 02/2013 NED
02/13 nw right lung met
06/13 2 New liver lesion
06/13 chemo ?

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Re: Remission with stage 4 metastatic colon cancer?

Postby cptmac » Sat Jun 16, 2012 11:22 am

Congratulations, that is absolutely fantastic news... Thank you for coming back and sharing. It offers so much hope.

Please continue to post periodically with your success.
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

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Re: Remission with stage 4 metastatic colon cancer?

Postby fcancerIsay » Sat Jun 16, 2012 9:57 pm

LOVE READING THIS!!! Thank you SO very much for sharing this fabulous news. I came here seeking stories such as yours to know that IT CAN HAPPEN :D . Bravo to you! I wish you a lifetime of great health, happiness and, of course, great scans!!
Diag. 6/11 Stage IV CC, Mult. Mets to liver, Nodes
Full Hysterectomy due to CC 8/12
Chemo 6/11 - 2/13
Clinical T Cell Trial 3/13
Onc says "Chemo for Life", but I say "NED One Day" :)
F Cancer I Say!

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Re: Remission with stage 4 metastatic colon cancer?

Postby Mattie61 » Sun Jun 17, 2012 7:32 am

Hi Blue,

I have a similar story. Started chemo in May '10 and by July '10 there was no evidence that it ever existed on the ct/pet. Lymph nodes took longer to fade out, but were gone by Jan '11 scan. Clear scans ever since. Still scanning every three months.
4/10 Hysterectomy, appendectomy, colon resection, 13/16 LN
DX stage IV CC @ 49, Follow up Pet/CT: 1.4cm liver Met, 2-4 active LN
5/10-11/11 Folfox/Xeloda/Avastin
4/13 Resect return of Liver and Pelvic node

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Re: Remission with stage 4 metastatic colon cancer?

Postby CheeseHead » Sun Jun 17, 2012 12:34 pm

    10 Stg 4 colon srgry
    12 Xelox/Avast
    05 Liver srgry
    -12 Xelox
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    03-07 Ph I trial
    08-11 Regorafenib

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Re: Remission with stage 4 metastatic colon cancer?

Postby Icesk8tr » Sun Jun 17, 2012 10:59 pm

WOW Bluewillow....your story is very inspiring. Thank you for sharing it. I hope you remain in NEDsville forever :D :D :D
Stage IV CC 2010

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Re: Remission with stage 4 metastatic colon cancer?

Postby fourkids » Sun Jun 17, 2012 11:42 pm

Amazing story ! gives us hope, sincere thanks for posting.

I'd be interested to know if the docs had any theory on why you had such a good response ?
Husband of 35 y/o mother of 4 children
Dx 2012 with Stage 4, liver & lung mets
Feb - Folfox, suffered vasospasms
Mar - Irinotecan + avastin (stable disease)
Aug - Oxaliplatin + raltitrexed (didn't work)
Oct - Temozolomide based on genome testing

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Re: Remission with stage 4 metastatic colon cancer?

Postby pollo65 » Mon Jun 18, 2012 6:41 am

WOW what great news for new stage 4s. Congratulations!
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
chemo break

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Re: Remission with stage 4 metastatic colon cancer?

Postby SkiFletch » Mon Jun 18, 2012 9:20 am

There are a few folks who do have a complete response to chemo. Those lucky few are a big conundrum for the medical field who don't really know what to do with or to advise them. The reality is that the docs have no clue what will happen to you and so they will likely just monitor and keep their fingers crossed just like you. Regardless, complete responses to chemo are both rare and awesome so you should be happy about it :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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Re: Remission with stage 4 metastatic colon cancer?

Postby Dress In Blue Girl » Mon Jun 18, 2012 9:54 pm

I know two people who have been just as lucky. It does happen. Congrats and thanks for posting.
Follow up is important.
Welcome to the NED club its a good place to be.

IV feb 2005 colon resection,
folfori w/avastin,
Aug 2005 liver resection/rfa to get rid of 8 liver tumors
Sept 2005 folfox w/avastin NED!!!!
avastin till Jan 2007
port out July 2007

Be the change you want to see in the world

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Re: Remission with stage 4 metastatic colon cancer?

Postby mhastings1229 » Tue Jun 19, 2012 10:21 am

I so needed to see this today. I'm stage IV, on Irinotecan and Erbitux, and struggling mentally. I needed hope - thanks for giving it back to me. And, so many congrats!
Dx 5.23.08 (31 y.o.), Stage 3 colon cancer, colon resection, 13 rounds of Folfox, Remission 1.2009
Dx 3.20.2012 (35 y.o.), Stage 4, Active lymph nodes in upper left abdomen, suspicious spots on lungs
Started Folfiri and Avastin 3.27.2012

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Re: Remission with stage 4 metastatic colon cancer?

Postby bluewillow » Thu Jun 21, 2012 9:53 pm

I appreciate all the response, and I'm very glad that I am able to give hope to others. I spent the weekend with a friend who came up from Arkansas. We went out and spent 3 glorious days enjoying God's creation, so I haven't been online all that much. I haven't had much of a life this past year. I'm still afraid to breathe too easy...feel like that black cloud is still hanging over my head, but I am encouraged. I had a very rough time with chemo and don't relish the possibility of ever having to go through it again. I told my doctor not too long back that I wasn't questioning his professional expertise, but also wasn't taking it as gospel either. There are simply too many variables....genetics, individual chemistry, attitude, lifestyle, general health, etc. He agreed that it isn't an exact science; that they just do what they know to do and hope for the best. I was told that one thing I had in my favor was that I was in otherwise excellent health and good physical condition at the outset. I look like crap a lot of work to do to get back on track. Spent too much time not having too much choice about what I ate or craving all the wrong things. Lots of times I would crave things you'd think would be awful on the stomach and be unable to tolerate things that should've been easier. Very weird.

My good news has been bittersweet though. In the midst of all this, I lost my dad to lung cancer just a month ago. I had been helping with his care throughout my own treatment. My niece was diagnosed with breast cancer and had a double mastectomy a week before that and starts chemo tomorrow. I have a cousin in the last stages of throat cancer, another cousin with leukemia who has exhausted his treatment options and another cousin newly diagnosed with cancer (not sure what kind yet). On a more positive note, another cousin with colon cancer has had 2 clean scans, so we're hopeful of a positive longterm outcome for him.

Thanks, everyone, for all the good wishes. I hate this disease so much. It is evil through and through. I hope for the best possible outcome for each of you.

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Kathryn in MN
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Re: Remission with stage 4 metastatic colon cancer?

Postby Kathryn in MN » Fri Jun 22, 2012 2:24 am

Congrats! That is fabulous news!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining

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