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Remission with stage 4 metastatic colon cancer?

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Remission with stage 4 metastatic colon cancer?

Postby bluewillow » Fri Jun 15, 2012 1:37 pm

Okay, Beverly asked me to post my scan results today. I must say I am dumbfounded. Not only did the scan show that the adrenal anomally that the doctor had been concerned about was nothing of import, but showed there was no evidence of active cancer anywhere. The way he put it is that it's there, but is dormant. When I asked him if this meant I had an improved prognosis, he said that it could come back in 5 years, 10 years, even 20 years. 6 months ago, I was looking at 5 years on the outside. This has come about with no surgery and one 12 treatment round of Folfox....and a lot of prayer. I have to have PET scans every 3 months and keep my port with port flushes every 6 weeks, but that's it. Has anyone else had this experience or know of anyone who has?
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Re: Remission with stage 4 metastatic colon cancer?

Postby SoConfused » Fri Jun 15, 2012 2:13 pm

wow!!! congratulations! so happy to read your update ... happy to see all of this was possible without surgical intervention.

Did you have liver mets and lung mets?
Stage IV CC
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Re: Remission with stage 4 metastatic colon cancer?

Postby bluewillow » Fri Jun 15, 2012 2:20 pm

SoConfused wrote:wow!!! congratulations! so happy to read your update ... happy to see all of this was possible without surgical intervention.

Did you have liver mets and lung mets?


Yes; both.
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Re: Remission with stage 4 metastatic colon cancer?

Postby SoConfused » Fri Jun 15, 2012 2:45 pm

wow! You're a miracle ... God is great. I am happy for you and wish you continuing remission, FOREVER.
Stage IV CC
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Re: Remission with stage 4 metastatic colon cancer?

Postby Bev G » Fri Jun 15, 2012 2:48 pm

THANK YOU FOR POSTING!!! It was lovely to chat with you the other day. I simply couldn't be happier for you, and that you came back to the board as well. This is the most wonderful news! YIPPEEEE! Please stick around and play with us if you feel like it :lol: If not, I'll see you on FB.

Many hugs to you, thinking of you and your family, AND your wonderful weekend coming up---have a perfect time!

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now
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Re: Remission with stage 4 metastatic colon cancer?

Postby Gaelen » Fri Jun 15, 2012 3:06 pm

bluewillow wrote:The way he put it is that it's there, but is dormant. When I asked him if this meant I had an improved prognosis, he said that it could come back in 5 years, 10 years, even 20 years. 6 months ago, I was looking at 5 years on the outside. This has come about with no surgery and one 12 treatment round of Folfox.


I've run across one or two people who've had what is called "a complete response" to chemo. It's very, very rare...but sometimes the drugs do their job very well.
Be in harmony with your expectations. - Life Out Loud
4/04: dx'd @48 StageIV RectalCA w/9 liver mets. 8 chemos, 4 surgeries, last remission 34 mos.
2/11 recurrence R lung, spinal bone mets - chemo, RFA lung mets
4/12 stopped treatment
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Re: Remission with stage 4 metastatic colon cancer?

Postby SoConfused » Fri Jun 15, 2012 3:18 pm

Gaelen - I was hoping you can share some knowledge about what's meant by "complete response" ... is that a negative PET and/or when nothing shows up on CT?
Stage IV CC
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Re: Remission with stage 4 metastatic colon cancer?

Postby so-scared » Fri Jun 15, 2012 3:42 pm

What great news!! I guess you were right when you said in a different post that you tend to be the exception rather than the rule! Good for you! :D

So-s
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14
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Re: Remission with stage 4 metastatic colon cancer?

Postby NedPlease » Fri Jun 15, 2012 3:51 pm

"it's there, but is dormant".... isn't it possible that it's simply dead? I hate this looming threat!

I have a friend with complete response after Folfox/Avastin. There was no evidence of his liver met at the resection. Opened him up and found nothing, so only colon resect done.
Three yrs later, the liver met reappeared. Liver resection done- no follow up chemo. Along the way, there was a lung met (before the liver met reappeared), had surgery, and again, no chemo. He's well and approaching the four yr mark.
Incredible treatment response. LOVE IT! Congratulations!
Do keep in touch.
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
10/11- R Lung, 1 met, VATS
3- 9/12- Xeloda
2/12-3/14 Clear Scans
Today- NED
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Re: Remission with stage 4 metastatic colon cancer?

Postby vancouver eve » Fri Jun 15, 2012 3:55 pm

Great news and a great story. It makes me happy to hear from people like you. I thank you for posting and Bev for asking you do so.
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Re: Remission with stage 4 metastatic colon cancer?

Postby cecioboe » Fri Jun 15, 2012 4:01 pm

Fabulous news! Thanks for sharing with us.
Wife to Jim 64 Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16- 9/26 chemo
10/22/12 - 3/21/14 NED
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Re: Remission with stage 4 metastatic colon cancer?

Postby sandrichelle » Fri Jun 15, 2012 5:54 pm

I love stories like yours!!! So happy for you!!
Dx Stage IV CC 02/12-56.1 CEA
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com
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Re: Remission with stage 4 metastatic colon cancer?

Postby betsydoglover » Fri Jun 15, 2012 6:29 pm

See my signature. Similar thing with respect to my liver mets.

Good luck!
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
6 cycles Xeloda + Avastin,
NED (PET every 3 mo)
Avastin only 10/09-5/11
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Re: Remission with stage 4 metastatic colon cancer?

Postby lcook6 » Fri Jun 15, 2012 6:36 pm

WOW!! Thank you for sharing such wonderful news!! God Bless you!! :D :D :D
sister dx stage IV rectal cancer with tumor to liver 5cm age 41
dx May 10, 2012
on folfox with avastin and celebrex
July 11, 12 CT Scan tumors in the liver 20% shrinkage
continuing FOLFOX, celebrex
finished radiation/xeloda 11/23/2012 28 treatments
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Re: Remission with stage 4 metastatic colon cancer?

Postby Guinevere » Fri Jun 15, 2012 7:05 pm

Stories like yours really boost the rest of us!! Yea! It's time to celebrate!
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14
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