BrownBagger wrote:Thanks for the update, Bill, as always.
I've heard encouraging things about radiation, so I'm really hoping that it works for you the way you hope and expect. And, good news on Mt. Marcy. That's quite an accomplishment in any event.
Mt Marcy? Is that what you call Mt Monadnock? lol.
I had my consult yesterday. We talked about me wicked pain in my hips too. She was not prepared to talk about that directly because at the time my onc setup the visit my hips had not given me any trouble, not even on the mountain! I needed a nap afterwards to let my body recover (food, water, electorlyts, tired muscles) but all stuff easily attribued to normal exercise fatigue, well, with some moderate dehydration tossed in due to misplanning of water suupplies.
Monday was a brilliant, active day, so was Tuesday most of the day until late evening when things first got miserable. Wednesday I wanted to get home early from work, but forced myself to wait 'till a training task was complete. . paid x2 for that later in the evening but again, recovered after resting and doping up. Thursday was a repeat except the pain, once it started mid afternoon it did not let up untill about 1:30 AM Friday lol.
But Thursday was my radiologist appt, as this thread mentions. It seems she can irradiate the suckers in my shoulder pretty easily, minimal collateral damage and side effect, my neck/high thoracic area is not so easy so I will need to eat a soft diet and do a few things to take it easy on my throat and esophagus I guess. My hip she hopes she can do something with, but had to check what the prior exposure was from pre-surgery chemoradiation. . . I'm not sure what that means, but I hope they can do something! lol. It looks like about 3 weeks of radiation to the neck and spine/neck at the same time. The exact number is apparently based on outcomes. It will be every day. It will also certainly span the week I'm away at summer camp with my boy scouts. Ugh. Here I've been telling my best scoutmaster backujp that he's free to do as he chooses...now he might well be put on point again X-P
Ah well. He really doesn't mind. . . but I do wish I could be around so much more than I have been able to manage.
sigh.
I'm in and out of pain today and barely slept, and whateversleep I had was under fairly heavy ercpcet, so I took a day sick time. So far it looks like there is little chance of telecommuting today. This note took 3 efforts lol I started it, nodded off and it locked..so I walked away. Second time I had to lealve due to pain, third was this time.
Well, at least I keep plugging away, just like I do with everything in my life now it seems.
Cheers everyone.
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