I'm still here:)

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gracie
Posts: 110
Joined: Tue Feb 23, 2010 10:37 am

Re: I'm still here:)

Postby gracie » Thu Jun 07, 2012 1:03 am

Terry:
Good to hear from you and especially the news of the trial.


I did a google search and did not find anything. (but I think it varies)
I will just keep you in my thoughts that you will get to be in the trial. You have came this far and they should not stop you now.

I am happy you are feeling better and have that sense of humor.
I DO know how serious this is and have you in my thoughts.

Your daughter did a great job of keeping us posted.
Wishing you all the best.

gracie
rectal cancer DX Sept 9th of 09 (stage 3)
chemo/rads 6weeks starting Nov 09
Surgery April 13 2010
chemo/ 5FU and Oxi starting 6 sessions (developed blood clots, heart and breathing problems)
suppliments with Naturepath Dr 2010

Georgie
Posts: 421
Joined: Tue Sep 27, 2011 6:39 pm
Facebook Username: Georgie Adams

Re: I'm still here:)

Postby Georgie » Thu Jun 07, 2012 6:31 am

Happily I missed the rumours but I am very glad you are managing. You and your wonderful family are in my thoughts. I hope the trial works out, fingers crossed!

Georgie
Nuclear Medicine/PET Tech
Stage 3 T4N1M0 Rectal Ca diag 1/11 at age 29
Clinical trial (chemoradiation) 12 wks incl FOLFOX
Surgery 14 June '11
Post op infection
Iliostomy reversal 12 Sept '11
NED 6 years!
2017 Stage II Breast cancer triple positive
BRCA2 mutation
Bilateral mastectomy, chemo, herceptin

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CheeseHead
Posts: 1171
Joined: Sat Jul 31, 2010 2:36 pm
Location: Netherlands

Re: I'm still here:)

Postby CheeseHead » Thu Jun 07, 2012 7:13 am

Hi Terry,

Glad to hear reports of your death are greatly exaggerated... and that you feel better!

Hope you can get into the trial with those steroids a while ago. At least it's Phase II so as opposed to Phase I they should have some indication that side effects are not too bad. But as you say, it's that or die, unfortunately.

Great that you posted and hoping for miracles,

all the best,
Cheese
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

danomal
Posts: 23
Joined: Fri Oct 31, 2008 11:36 am
Location: SE Mich

Re: I'm still here:)

Postby danomal » Thu Jun 07, 2012 8:01 am

Terry, thanks for posting. I'm certainly keeping you in my thoughts and prayers.
DX Stage IV CC 12/07
Colon resect, liver RFA 2/08
FOLFOX, Avastin, Erbitux 4/08-9/08
Liver resect 12/08
FOLFIRI, Avastin 4/09-7/09
SBRT 12/10-1/11
Recurrence: liver, lung mets 8/11
Irinotecan, Erbitux 9/11-5/12
Lymph node: neck 7/12
Seeking clinical trial

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: I'm still here:)

Postby BrownBagger » Thu Jun 07, 2012 8:03 am

Your family and friends have been doing a good job of keeping us informed, Terry, so I never thought you'd died, though--like everyone here--I was hoping for a turnaround when things looked kind of grim. Glad to hear you're feeling better, and you never know about these trials. Anyway, it's a beautiful day here in Wisconsin and I'm heading up north momentarily for some farm-time.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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CaliforniaBagMan
Posts: 330
Joined: Wed Oct 14, 2009 6:05 pm
Location: California

Re: I'm still here:)

Postby CaliforniaBagMan » Thu Jun 07, 2012 8:24 am

Terry,

It was so good for us all to get the update. Thank you for doing that.

I hope you get into the trial !!!!!!!
CT guided biopsy on mass - still NED !!!
CT scan finds new 2x3cm mass on 10/09
APR surgery 11/07; NED thereafter
Folfox/radiation 9/07-10/07
DX Stage III rectal cancer 7/07

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Lena
Posts: 165
Joined: Thu Aug 12, 2010 7:10 pm
Facebook Username: Lenarnc
Location: Kentucky

Re: I'm still here:)

Postby Lena » Thu Jun 07, 2012 8:24 am

Terry, I'm so glad that you are starting to feel better! You have been in my thoughts and prayers. Please keep us up to date whenever you feel up to it. May our gracious Father continue to wrap his loving arms around you.
Lena
Dx rectal cancer July 30, 2009
Power port placement Aug. 3, 2009
Chemotherapy/Radiation therapy stated August 3, 2009
Chemo/radiation completed October 4th 2009
Proctocolectomy with Ileoanal jpouch November 3, 2009
NED 2014
Stage 2

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Icesk8tr
Posts: 1068
Joined: Sat Apr 30, 2011 11:37 am

Re: I'm still here:)

Postby Icesk8tr » Thu Jun 07, 2012 9:26 am

Dear Terry,
I was so happy to see your post. I'm glad you are feeling better. I'm praying you get into this trial, and feel well while doing it. You have been missed around here.

Hugs,
Christine
Stage IV CC 2010

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Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: I'm still here:)

Postby Kathleen808 » Thu Jun 07, 2012 11:56 am

Terry,
It is absolutely wonderful to hear from you!!! You are on my mind and in my prayers every day. You are an awesome lady and I love that you are starting a trial drug. You and your family will stay in my prayers.

Aloha,
Kathlee
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: I'm still here:)

Postby Bev G » Thu Jun 07, 2012 3:28 pm

Dearest Terry,

You can't help but feel the love for you around here, can you? It's incredible (and wonderful) to see all who come out of the woodwork to wish you well, and send you love and support! I was ecstatic to see your post on FB on Sunday. My prayers for you never stop, and never will. Am excited with you about the clinical trial--keep kickin' A$$, Terry, and keep feeling our profound love and best wishes for you.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: I'm still here:)

Postby Guinevere » Thu Jun 07, 2012 3:35 pm

Terry,
I can't believe you're apologizing for being so sick!! Yes, we worried and prayed for you but your daughter was pretty good about letting us know how you were doing. I know I cried when we would get good or bad reports and just broke down bawling and thanking God after reading the first post you posted.
I'll be praying this new thing is just the deal to cure you. You have way more prayer warriors than you know!
God bless ~
Guinevere
(Another Mighty Queen fighting the Beast rooting for Terry - a fierce Mighty Queen fighting the beast!)
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: I'm still here:)

Postby Lee » Thu Jun 07, 2012 4:53 pm

Terry,

It is great to see you posting. I have not read all the replies, but I really hope you are able to get into the drug trial. I'm so glad to hear you are doing better. I think of you often and hope you are doing well.

I've got to get back on to facebook.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

jens22
Posts: 1013
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: I'm still here:)

Postby jens22 » Thu Jun 07, 2012 7:46 pm

Terry prayers can be answered. I really dreaded checking this board because I really thought the end was close when I read some of your daughters posts. I guess you graduated out of hospice. (It does happen a lot) It was great to read this post and I pray a clinical trial is available for you. Your a great giving person . You just never stop giving to others. My oxygen tricks are padding beind the ears. Nasal sprays for sore nostril and Aquaphor for cracked ones.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

kimpurple
Posts: 4
Joined: Sat Apr 10, 2010 8:09 pm
Facebook Username: kim purple

Re: I'm still here:)

Postby kimpurple » Thu Jun 07, 2012 9:52 pm

Terry,

So glad to hear you are doing better! Hope you can get in any trial that will help. My thoughts and prayers are with you.
Kim

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Stomatrooper
Posts: 490
Joined: Fri Dec 31, 2010 11:56 pm
Location: Auckland New Zealand

Re: I'm still here:)

Postby Stomatrooper » Sat Jun 09, 2012 1:58 am

Nice to see you post again Terry

you are often in my thoughts - you have my best wishes


John
John, Diag. 20 5 2010 @55
Rectal, 2cm dia, 3cm from anal verge
T2N0M0
5.5 Wk Chemorad
ULAR Oct 2010
Temp Ileo, infection; blockage; incisional hernia
Takedown Jan 2011
Hernia fix - June 2011
Clean CT 2011; 2012 & 2015
Clean scope May 2013


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