I'm still here:)

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Terry
Posts: 5536
Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

I'm still here:)

Postby Terry » Wed Jun 06, 2012 4:45 pm

I heard rumor has it I may have passed away. Well, I'm still here:)! I was very sick up until the past few days. I had pneumonia for about 5 weeks that I could seem to beat.

I'm the type that when I'm that sick doesn't feel like talking, reading or writing. I apologize for making you all think I died. According to my docs the cancer is all over the place unfortunately and I have to use O2 the majority for the time when I'm up
walking around. I have this cough I cannot seem to shake either but it's better than it was 2 wks ago. My sore throat is completely resolved. YAYYYYYY:)

I have been accepted into a phase II trial on an antimicrobial drug called MORAb-004-202-CRC I'm actually the very first person to be accepted into it (not sure if she meant at all or here in WI). Anyway I'm excited and nervous at the same time. What I'm nervous about is they don't know what the safety factor is, frankly they don't know a while lot about any of it, but considering if I don't do anything the outcome will be death for sure so I'm willing to try it. The other drug (the one that starts with an R) had to much traveling and being away from my family. Hopefully I pray this will extend my life, put me into remission and even, God willing cure me:) How awesome that would be;)

Thank you for caring enough to ask about me. I'll try and come on more often with updates as I find out.

Love, hugs and prayers:) Terry
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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waw4
Posts: 841
Joined: Sun Sep 12, 2010 8:44 am
Location: Durham, NC

Re: I'm still here:)

Postby waw4 » Wed Jun 06, 2012 4:47 pm

Nice to hear from you Terry. Wish you the best!
Bill's Colonoscopy 6/29/10; Dx Stage I or II
Surgery 7/15/10; Dx Stage III,15/32 lymph nodes
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
Grateful for 2nd Chance NED time!

RixInPhx
Posts: 1904
Joined: Fri Oct 08, 2010 11:53 pm
Location: Phoenix

Re: I'm still here:)

Postby RixInPhx » Wed Jun 06, 2012 4:49 pm

It's GREAT to finally hear from you directly!!
Though your DD's have been most informative and appreciated.

Glad you've found somthing that can possibly help, looking forward to reports.

Take care, Rick
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

mymom
Posts: 1283
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: I'm still here:)

Postby mymom » Wed Jun 06, 2012 4:58 pm

Thinking of you and saying prayers.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

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live2jett
Posts: 762
Joined: Wed Mar 11, 2009 4:36 pm
Facebook Username: debbie jett
Location: San Diego, Ca. www.live2jett.com
Contact:

Re: I'm still here:)

Postby live2jett » Wed Jun 06, 2012 5:00 pm

Love you pal!! i did not hear the rumor:) so happy to see you post..just like ole times xoxo
Age:51
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: I'm still here:)

Postby juliej » Wed Jun 06, 2012 5:00 pm

Terry, what a blessing to hear from you! Thanks for taking the time to update us. The pneumonia sounds scary. I'm glad you're on the other (better) side of it now. I'll be praying the trial drug works for you. Lots of love, light, and prayers coming to you from me and your "other family" here at the Colon Club!

Big hugs,
Julie
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: I'm still here:)

Postby ams5796 » Wed Jun 06, 2012 5:00 pm

It would be very awesome! Glad to hear from you and you seem to be in good spirits. We're all hoping for the best for you.

Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

NedPlease
Posts: 546
Joined: Fri Mar 23, 2012 3:56 pm

Re: I'm still here:)

Postby NedPlease » Wed Jun 06, 2012 5:01 pm

Wonderful to hear from you! Old and new friends here are wishing and praying. God Bless you, Terry.
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

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pollo65
Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: I'm still here:)

Postby pollo65 » Wed Jun 06, 2012 5:02 pm

About the love, hugs and prayers :) Right back attcha.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

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Kathryn in MN
Posts: 2970
Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: I'm still here:)

Postby Kathryn in MN » Wed Jun 06, 2012 5:07 pm

Thanks for taking the time to update us. It is great that your sore throat is finally better, and you are up and around, even if you have to take your oxygen with you. I'm so glad you found a clinical trial that won't keep you away from family and home! I hope this drug works miracles for you.

(At least you didn't get any mail with condolences to your family on your death did you? Bill just had that happen with a letter from an insurance program - weird to open your mail and see that you died. Crazy automated world we live in, huh?)

Love you!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

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Terry
Posts: 5536
Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: I'm still here:)

Postby Terry » Wed Jun 06, 2012 5:08 pm

I just received a call from the clinical trial nurse. Found out that the darn steroid if it wasn't long ago enough couuld throw me out of the trial. Grrrr! I think it's been at least 3 weeks and she didn't say how long it had to be. Please pray I get in.

Thanks pollo65 and I heard something good, no great that you posted:) I'll pm you tomorrow about it. Yay for you!
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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CRguy
Posts: 10264
Joined: Sun Feb 10, 2008 6:00 pm

Re: I'm still here:)

Postby CRguy » Wed Jun 06, 2012 5:51 pm

Terry wrote:Well, I'm still here:)!
I'll try and come on more often with updates as I find out.
Love, hugs and prayers:) Terry

Amen to all of that Terry, and prayers coming backatcha'.
Shana did a good job of keeping us up to date and I was actually on FB Sunday to see YOU post, and was happy to read it.
Best wishes for getting into the trial.

In Harmony with you
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

sadysue
Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: I'm still here:)

Postby sadysue » Wed Jun 06, 2012 5:54 pm

Best of wishes to you and lots of prayers and positive energy coming your way so that you will continue to feel better.
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

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KarMel
Posts: 1523
Joined: Wed Oct 14, 2009 7:48 pm
Facebook Username: Karin Gray
Location: Indiana

Re: I'm still here:)

Postby KarMel » Wed Jun 06, 2012 6:04 pm

Hi Terry! So glad to see you here, and posting. You are truly missed.
Praying for strength, comfort, and I hope that all works out well with this trial you are planning.
Stage IV, April 2009.
Treatments...multiple .
Currently none
"It is well, with my soul"

Surroundedbylove
Posts: 3124
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Re: I'm still here:)

Postby Surroundedbylove » Wed Jun 06, 2012 6:08 pm

Hi Terry,

Nice to hear from you. I hope things work out with the trial. Sending you prayers and good wishes.

SBL
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019


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