Thank you so much for the compliment about writing
. I always thought I might write a book one day. But first I had to survive.
But, I like just posting it to a dedicated audience, for free.
As to your other questions.
To get cured - I followed doctors orders, and what worked for me may not work for you.
1st, I signed up for a Stage II clinical trial and was the second person to sign up for this trial. I had my colon resected and then 30 days later I had my liver surgery and had a medtronic hepatic arterial pump inserted.
I chose to use Irinotecan as systemic chemo every two weeks. Then every other two weeks I had FUDR inserted into my pump that put chemo directly to my liver. The other two weeks they put in heparin.
Self Care - I never at a lot of red meat or fat, so I had to increase both of those. While I was in the hospital after my liver surgery, I was put in the heart ward because of my heart murmur. Those poor people in the heart ward.
Here I am every morning getting eggs, bacon and sausage, a burger for lunch and a steak for supper. It was hard for me but I did it and eat more red meat now. Then, when they took my blood - I wasn't eating enough fat - they were going to inject me with fat but the nurses said NO - just give her some butter and dessert (both of which I never used to eat much of). The staff bought me a cake but my appetite wasn't there yet so my cake sat for a day or two. What encouraged me to eat it was, I could hear heart patients pass by my room saying, wow I must really miss meat and cake because I can smell it.
While I was there I begged for a salad - one of my favorite things to eat. They finally gave me a salad the size of a fist if I promised to eat more fat. I actually thought about switching my meal for one of their salads with chicken - but I thought my meal is what put them here in the first place.
But I can tell when I eat red meat, I feel I have a lot more energy. I try to eat it twice a week but sometimes forget. I try and remember to put butter on my bread, but I forget. But I do like garlic toast, so I try and eat more of that.
Probably not the answer you wanted to hear, but I have always eaten salads because I think they are delicious. Plus, my mother was Japanese so I never had a lot of meat or dessert.
The top doctor - I think it was mainly if you don't go to a top doctor as a Stage IV, a regular doctor may not know of some of the newest treatments out there. When I did my trial, some people asked their doctors about it, and their doctors said it was dangerous and didn't work. But I also believe that they were looking at studies where they used the pump only. Because in current studies, for those individuals who use the pump and systemic chemo at 10 years out have a 67% survival rate. Plus, a lot of places did not want to operate on my liver AND the first doctors scans weren't as clear as the ones I had in MN and they dx'd me with rectal cancer - which requires a whole different treatment. So I learned going to a top place makes all the difference.
Plus, I thought it was great that that super doctor who she called must have known the place they were in wasn't very good. I have learned to love the doctors who really want to help the sickest of the sick patients and they don't want the regular doctors to touch them, because then it's hard for them to treat them while also fixing what someone else did.
So both of you for bumping this up. I'm truly not on here much anymore - but I do come back periodically. And today, I'm sooo glad I did.