I stand up to use the word cure(d)....

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JudyC
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Joined: Wed Apr 18, 2012 11:01 pm

Re: I stand up to use the word cure(d)....

Postby JudyC » Mon Jun 04, 2012 10:44 pm

High five cptmac! So happy for you. Use that word happily! :D
Twin of sister with Stage IIIb cc.
T3N1Mo
Sigmoid resection 3/30/12
FOLFOX 5/1/12- 12 rounds

Mona
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Facebook Username: maria kucharek
Location: NY

Re: I stand up to use the word cure(d)....

Postby Mona » Tue Jun 05, 2012 8:48 am

Cptmac, good for you. I love word "cure". You have the right to say it any time you want.
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

weisssoccermom
Posts: 5965
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: I stand up to use the word cure(d)....

Postby weisssoccermom » Tue Jun 05, 2012 9:43 am

If you want to use the word, fine. To each his own. I personally don't think that it is right or wrong to use the word - know what your expectations are, set a goal for yourself when to 'use' it and be fine with that.

For me, I'm CURED when I die of something else.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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sandrichelle
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Location: Albany, NY

Re: I stand up to use the word cure(d)....

Postby sandrichelle » Tue Jun 05, 2012 12:54 pm

It's crazy to me that this is even a topic...this forum "should" be a place where all can express their feelings and by all means scream as loud as you can that you are cured...I know that I will when it's my time! :wink:

I am all about positivity as you may know from some of my other posts. I may have stage 4 cancer but Joe Schmo can get run over by a greyhound bus tomorrow so why live my days with any negative thoughts. If there is one gift I have gotten from cancer, it is to drop the drama, keep a smile on my face, thank God for each and every day I wake up, hold my loved ones closer, don't carry more in my burden basket than what will fit and above all STAY POSITIVE!

Works for me and if others would hop on the happy bus with us, the world would be a much happier place. I am not going to apologize if this offends anyone, that is their problem in my mind and I don't have any room for it in my basket!!
Dx Stage IV CC 02/12-56.1 CEA
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com

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cptmac
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Facebook Username: Dorothy McGrath

Re: I stand up to use the word cure(d)....

Postby cptmac » Tue Jun 05, 2012 7:51 pm

Thank you all for your support. It means the world to me. I shouldn't be ashamed to say I'm cured. I shouldn't feel ashamed to celebrate.

I cannot believe that I offer people false hope. Have you seen the statistics? And when you read this board, you hear a lot about what people have gone through, the horrendous side effects. You don't hear a lot from us, not much going on with us chemo types. Got cured from Stage IV types. We don't have much information to offer, because we didn't have many issues, so we don't come on boards. So I just let people know what happened to me, even though the majority on this board have had a lot of other issues. So no, I cannot imagine, in the least, that I am giving false hope. I encourage people to listen and see their doctors and to follow medical advice, not the advice of non-medical people on the board, no matter how medical they may sound.

So, sometimes, it makes me think people are just mean.

To paraphrase the lyrics from Taylor Swift. (I apologize for some of the mean words used against people who are mean, but I'm not creative enough to totally rewrite the song, but I hope you take if for the intent it was meant, stop being mean to me, just because I want to celebrate my curedness (and I don't care if that's not a word)..

You, with your words like knives
And swords and weapons that you use against me
You have knocked me off my feet again
Got me feeling like I'm nothing
You, with your voice like nails on a chalkboard
Calling me out when I'm wounded
You picking on the weaker man

You can take me down with just one single blow
But you don't know, what you don't know...

Someday I'll be living in a big ol' city
And all you're ever gonna be is mean
Someday I'll be big enough so you can't hit me
And all you're ever gonna be is mean
Why you gotta be so mean?

You, with your switching sides
And your wildfire lies and your humiliation
You have pointed out my flaws again
As if I don't already see them
I walk with my head down
Trying to block you out 'cause I'll never impress you
I just wanna feel okay again

I bet you got pushed around
Somebody made you cold
But the cycle ends right now
'Cause you can't lead me down that road
And you don't know, what you don't know...

Someday I'll be living in a big ol' city
And all you're ever gonna be is mean
Someday I'll be big enough so you can't hit me
And all you're ever gonna be is mean
Why you gotta be so mean?

And I can see you years from now in a bar
Talking over a football game
With that same big loud opinion
But nobody's listening
Washed up and ranting about the same old bitter things
Drunk and grumbling on about how I can't be cured.
But all you are is mean

All you are is mean
And a liar, and pathetic, and alone in life
And mean, and mean, and mean, and mean

Someday I'll be big enough so you can't hit me
And all you're ever gonna be is mean
Why you gotta be so?..

Someday I'll be living in a big ol' city (Why you gotta be so?..)
And all you're ever gonna be is mean (Why you gotta be so?..)
Someday I'll be big enough so you can't hit me (Why you gotta be so?..)
And all you're ever gonna be is mean
Why you gotta be so mean?
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

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CRguy
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Re: I stand up to use the word cure(d)....

Postby CRguy » Tue Jun 05, 2012 8:05 pm

Hey cptmac
OCCUPY ... YOU !

'nuff said.
pisiforms up

going off to another forum now, I am a Mod on (don't tell anyone :shock: ) to liberate a gal who is being told she can't "be and feel" the way she is....
Well "Baby baby we were born this way.."
..and never..never... let small minded assholes drag you down to their level....despite how big they try to convince you their minds are.

Old Chinese saying : " The hollow drum...makes the loudest sound. "
That is why we speak softly and carry a big stick !

Cheers Cappy !
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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fcancerIsay
Posts: 37
Joined: Tue May 08, 2012 6:56 pm

Re: I stand up to use the word cure(d)....

Postby fcancerIsay » Tue Jun 05, 2012 9:00 pm

Ahhhhh, I feel much better reading this thread. Been hearing a song on the radio a lot lately and the lyrics are now going through my head, which pretty much sum up how I been feelin' the past few days . . . "I'm bulletproof, nothing to lose . . . fire away, fire away. Ricochet, you take your aim . . . fire away, fire away. You shoot me down, but I won't fall, I am titanium!
Diag. 6/11 Stage IV CC, Mult. Mets to liver, Nodes
Full Hysterectomy due to CC 8/12
Chemo 6/11 - 2/13
Clinical T Cell Trial 3/13
Onc says "Chemo for Life", but I say "NED One Day" :)
F Cancer I Say!

shmurciakova
Posts: 782
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Location: Sugar Grove, VA

Re: I stand up to use the word cure(d)....

Postby shmurciakova » Wed Jun 06, 2012 2:08 pm

I'll say it.....CURED! :D
diagnosed at 31 in 2002, Stage IV
Sigmoid colectomy - 6 mos 5-FU/Leukovorin
liver resection - 6 rounds XELIRI (xeloda/irinotecan)
lung wedge resection Oct. 2004 - no chemo
NED!!

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Bev G
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Facebook Username: Bev Golde
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Re: I stand up to use the word cure(d)....

Postby Bev G » Wed Jun 06, 2012 2:16 pm

I won't say it, but I'm so glad you will, CPT!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Kathryn in MN
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Facebook Username: Kathryn Finn-Blume
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Re: I stand up to use the word cure(d)....

Postby Kathryn in MN » Wed Jun 06, 2012 5:53 pm

I don't see how you could possibly give false hope? Even if you look at the stats from older years, there is a 12% survival rate for stage IV CRC that do not die from cancer, but die from something else. Someone has to be in those stats and I am glad you are well on your way! (I don't want you to die of something else anytime soon just to prove it though!)

While I am a realist and do think I will most likely die from CRC one day, that doesn't mean I don't have hope for a different outcome. I wouldn't say I'm cured right now - I had active disease just 6 months ago, and my CEA is elevated now. But that doesn't mean I'll tell someone else who is 5+ years NED that they aren't cured. Sure there is always a tiny chance of a recurrance once you've been stage IV, but at your point there is more chance of cure than recurrance! Personally I don't know if I'll be comfortable with saying cured until ten years out, but maybe I would be at five - the chances are pretty good once you hit 5 years in a row with no cancer.

For anyone who has had many years NED and feels cured, I have no issue at all with them saying they are cured, and I will celebrate with them that they feel this way!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

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cptmac
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Facebook Username: Dorothy McGrath

Re: I stand up to use the word cure(d)....

Postby cptmac » Sun Jan 19, 2020 12:24 pm

Woo Hoo!!! Even by the 90's standards I can say I am officially cured!!!

So I'm bumping this up - because someone pointed it out to me, reminding me the grief I used to take by some people on this forum. And that by their standards, I can say I'm cured!!! And I coulda said it by their standards - 6 years ago!!!

I'm jumping up and down for JOY!!!! Woo Hoo!!!
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

radnyc
Posts: 436
Joined: Tue Apr 06, 2010 6:32 pm

Re: I stand up to use the word cure(d)....

Postby radnyc » Sun Jan 19, 2020 5:25 pm

Well said!! I use CURED as well, no reservations. There are some on this board that dwell in the negative and love pointing out people’s slightest errors in their posts. Judgmental types like that make it hard to come on the board sometimes. Keep posting, you were one of those who helped me get through this, THANK YOU!!
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

stu
Posts: 1364
Joined: Sat Aug 17, 2013 5:46 pm

Re: I stand up to use the word cure(d)....

Postby stu » Mon Jan 20, 2020 3:51 am

Lovely to hear your doing so well .

I think we are a very civilised bunch now but I remember well some of what you endured .
Forum psychology is very interesting .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

cartech78
Posts: 72
Joined: Thu Oct 25, 2018 6:22 pm

Re: I stand up to use the word cure(d)....

Postby cartech78 » Sun Jan 26, 2020 7:59 pm

I love the word cured! I just hit NED recently so im still scared as shit that every spasm or muscle twitch is a tumor growing but if I can go a couple years im saying cured as well. Screw cancer!
40 Y/o male
Dx 10/5/18 stage lV CRC
Sg colon T3N1bM1a
Histologic grade-G2
7 inoperable liver mets largest 4.5 cm
Colon resection 10/6/18 clean margins
Starting FolFox on 11/18
2nd opinion at MSK on 12/18
HAI pump installed on 3/6/2019 also found 20 more small tumors on liver scans missed
7/2/2019 MRI and CT show only 2 liver tumors visible and they are shrunk by 3/4
11/25/19- Liver resection at MSK- got out all cancer and am NED. Thank God! More scans and mop up chemo to follow.
1 month Scan clear!

I_will_fight
Posts: 34
Joined: Mon Jun 29, 2020 3:38 pm

Re: I stand up to use the word cure(d)....

Postby I_will_fight » Tue Jul 14, 2020 2:00 am

cptmac wrote:
Because of the way I've posted, a fellow clubber called me because her Mom was in the er. The doctors said she was going to die. I told her to call a top cancer doc and ask for another opinion. This top doc, who had no privileges at the er where she was at said take her out of here. She did, her mom is still alive today. Cured, they've said. A word we both like.

For those who choose, stand up, and change your signature to cure.... and I don't mean that in a bullying sort of way... :D


Apologies for bumping up a very old post, but this entired thread piqued my curiosity.

I for one have no issue with the word "cured".

I wanted to ask you a couple of questions, can you point me to the threads that describe what you did to get cured (I presume you must have done a lot in terms of self care)

Also , just out of curiosity, what was what that top doctor did for the fellow clubber´s mother? Was it Inmunotherapy? A change in chemo regime?

For what´s worth: Man, for sure you can write, if I was half as good at my job as you are with words I´d be a millionaire by now. ( a millionaire with cancer, but still :D...)
46 yo male at DX
June 2020 - 6 cm T3N0 cancer on left colon
No evidence of liver mets, two milimetric dots in lung (non specific)
July 8th 2020 - 50 cm colon and spleen removed
lymph nodes 37/0
MSH6 non expressed, other MMR proteins present


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