So done with this club!

Please feel free to read, share your thoughts, your stories and connect with others!
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mlibertone
Posts: 261
Joined: Wed Nov 02, 2011 12:56 pm
Facebook Username: Michelle Libertone-Cook

Re: So done with this club!

Postby mlibertone » Thu May 31, 2012 10:44 pm

I'm glad I'm not involved in any of this but wanted to say, I'm glad to have found the colon club. I have learned so much here and continue to learn. I am open to all and any opinions or forms of help that come from here. I appreciate you all, respect you all and hope that we can all find a way past this to get along. We all have to remember that there are a lot of special people here. We all have different ways of dealing with this disease and all the crap that it brings. Just try to be kind to each other and realize we are all different even if we are facing a lot of the same things.
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!

SkiFletch
Posts: 6361
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: So done with this club!

Postby SkiFletch » Thu May 31, 2012 11:09 pm

Seriously, WTF? wrote::shock: :shock: :shock: :shock: WTF. did I miss???? Damn!!!!
PLAY NICE!!!!


Like

Forum drama always amuses me, it's like watching Wolf Blitzer interview Donald Trump. Hilarious listening to two people yell at each other knowing full well that neither will change the other's view yet still going through the motions. The anonymity of the internet is both a great and a horrible thing at the same time; the reality of which is embodied by this thread. In the end, clearer heads will prevail, and I know I have too much love for everyone on here to be petty :). We've all got a greater enemy that starts with C and ends with R...
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

Laurettas
Posts: 1606
Joined: Tue Jun 21, 2011 9:49 pm

Re: So done with this club!

Postby Laurettas » Thu May 31, 2012 11:41 pm

CRguy is my enemy?
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

Cj51
Posts: 893
Joined: Thu May 13, 2010 5:58 pm
Location: Midwest

Re: So done with this club!

Postby Cj51 » Thu May 31, 2012 11:44 pm

<snort> Honestly, Laurettas, that was MY first thought, too.....
DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED

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Russian27
Posts: 491
Joined: Sun May 17, 2009 9:47 am

Re: So done with this club!

Postby Russian27 » Thu May 31, 2012 11:50 pm

Guys please don't fight! All we need is love!
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015

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Russian27
Posts: 491
Joined: Sun May 17, 2009 9:47 am

Re: So done with this club!

Postby Russian27 » Thu May 31, 2012 11:53 pm

Cj51 wrote:<snort> Honestly, Laurettas, that was MY first thought, too.....

Oh wait until CR guy comes here he'll write a poem...
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015

AJS
Posts: 753
Joined: Sun Feb 17, 2008 10:47 am
Facebook Username: Angie Jennings Stratton
Location: Virginia

Re: So done with this club!

Postby AJS » Thu May 31, 2012 11:57 pm

Forum drama always amuses me, it's like watching Wolf Blitzer interview Donald Trump. Hilarious listening to two people yell at each other knowing full well that neither will change the other's view yet still going through the motions. The anonymity of the internet is both a great and a horrible thing at the same time; the reality of which is embodied by this thread. In the end, clearer heads will prevail, and I know I have too much love for everyone on here to be petty . We've all got a greater enemy that starts with C and ends with R...

So true Skifletch!

Cj51 thanks for posts! You said exactly what I was thinking.

I appreciate Gaelen's posts and I've been on here since 2008. She is a fountain of information and has been willing to share her knowledge with us. Cancer is NOT a pretty disease and yes, everyone should have hope but we all have to be realists in dealing with it as well whatever the stage.

Easy fix to this is: If you don't like someone's posts, DON'T read them. It seams pretty simple to me.
Last edited by AJS on Thu May 31, 2012 11:59 pm, edited 1 time in total.
[size=50][color=#FF00FF]Diverticulitis/Resection 12/27/07
Dx 1/08-Stage IIIA CC-2/15 Lymph Nodes-42 yrs old
2/08-8/08 -Folfox/Erbitux
Hysterectomy 3/09-CC on Ovary-Folfiri&Avastin
1/12-resection,bladder surgery,illeostomy
3/12-Illeostomy takedown
5/13-Folfiri/Avastin

scattered edge
Posts: 405
Joined: Sun Jul 31, 2011 6:45 pm
Facebook Username: Rosie Englebert-Elmore

Re: So done with this club!

Postby scattered edge » Thu May 31, 2012 11:59 pm

Where the heck is CRguy? I've been missin' him for quite some time :(

Rosie
resection 2/11/11
T3N2M0 (17/24LN)
joined the IV olympians ..... 7/12 mets to distant nodes
mets to pancreas, liver, spine
chemo for life, panitumumab for now

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live2jett
Posts: 762
Joined: Wed Mar 11, 2009 4:36 pm
Facebook Username: debbie jett
Location: San Diego, Ca. www.live2jett.com
Contact:

Re: So done with this club!

Postby live2jett » Fri Jun 01, 2012 12:01 am

Hello Friends
Support Group: A group of people with common experiences and concerns who provide emotional and moral support for one another.

Love you all:)

p.s did i mention i will be running my 4th 1/2 marathon( Advanced Stage3 Cancer 2008) this sunday in HONOR of ALL my COLON PEEPS? You all inspire me to be present and soak in every second that i have xoxo
Age:51
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014

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aussielones
Posts: 403
Joined: Mon Jan 24, 2011 6:17 am

Re: So done with this club!

Postby aussielones » Fri Jun 01, 2012 1:33 am

Howza 'bout a big old group hug, huh?!

Guys....guys?

I've had my share of...ahem...angry dealings on here. But also a lot of good dealings and advice. Sometimes I have a bad day, or I feel upset, and I let things get to me. But then I remember that we all have a CHOICE in how we react to things.

Go outside, take a breath of fresh air, take your shoes off and rub your feet in the grass. Play with your dog, pat your cat, hug your kids, do some yoga, meditate, laugh with your friends. But don't be a keyboard warrior - I've done it, and I learned my lesson. The person that everyone is mad at, I have so much respect for telling it how it is. It's just one side of the story. Please calm down everyone, life's too short!

It took me a long time to come to terms with the realities of this shitty disease, and once I have faced my fear, see it for what it is, I am free. I have never been happier. And it is thanks to both the 'realists/facts' people, the 'hope/positivity' people, the religious people, the young people, the oldies, the newbies, just everyone! We are a CLUB, a FAMILY, and we can NOT let differences in opinion divide us, make us feel like we have to leave, because let's face it, we're all going through our own cancer journeys but we have each other for support.

PEACE! (and Aussie sunshine)
31y/o
Dx 24/9/10
Cecum, liver, LN, lungs
Sg IV C.C inoperable
Folfiri, Xeloda ,FOLFOX. More FOLFIRI
Regorafinib nearly killed me. But I'm still alive! LOVE BEATS CANCER

Olivia
Posts: 9
Joined: Fri May 06, 2011 7:41 pm

Re: So done with this club!

Postby Olivia » Fri Jun 01, 2012 2:03 am

ausselones, love your post!........ I'm so glad you're back!.........been missing your spirit and spunk!

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wayne's wife
Posts: 123
Joined: Sat Mar 05, 2011 2:12 am
Facebook Username: Becky.Cutcher
Location: Birmingham, Alabama

Re: So done with this club!

Postby wayne's wife » Fri Jun 01, 2012 6:39 am

Ok now, Let's do what my Mom always would say to my Dad, and I quote "Let's agree to disagree", makes me laugh the way she would say that. My Mom & Dad(2 weeks apart from each other) passed away 4 years ago this May, and I so love to remember her little sayings. I haven't been on in a few well several days or even weeks, so don't know what has been going on to make some of you upset. I hope things have settled down tho. I know somedays I have it really hard and want to scream (which I do). All the treatments, and then the waiting and then when hubby isn't feeling like doing anything it gets to me. Don't get me wrong I want him to rest as much as he wants to and whatever is needed. But i get so mad at this cancer invading us daily. We go today for his CT scan, so I am really nervous and wanting to know exactly how this last procedure has effected the tumor in the liver. He has had some very bad side effects with this so it better have done alot. I will get back on later tonight and give you up date. I really did not know alot about the chemo embolization which is what they did on May 2. Hope everyone is doing best you can and enjoy each day, make a point to find happiness that cancer can't touch! Love & Hugs my friends.

In This Together!
Becky
Husband dx. 12/07/2010
Colon resection 12/13/2010
Stage IV to liver and lungs
Completed 12 treatments as of July 20, 2011
Started maintenance chemo every 3 weeks
Is now as of 08/23/2012 on Camptosar and 5FU weekly
Age 57 Passed Away - Sept. 25, 2012

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Sunwaterandsky
Posts: 164
Joined: Fri Oct 14, 2011 10:06 am
Location: Hong Kong

Re: So done with this club!

Postby Sunwaterandsky » Fri Jun 01, 2012 9:11 am

I value every post that I read on this forum but I don't agree with all of them. Occasionally I read posts and realise that I don't have the same philosophy as the poster. I would post if I disagreed with their opinion but I hope that I never attack an individual.

Yes, I have favourites and I also have a few that I avoid at all costs but I feel that those preferences and dislikes are better off unsaid. I am fighting cancer, not people with cancer.

I am sending out all my love and good thoughts to all of you. May you find peace in every day of your life

Sunwaterandsky
Stage 3B colon cancer at 47 years of age
small benign tumour on Rt adrenal gland
Xelox started 28/10/2011 finished 04/2012
CT scan clear 16/2012
Colonoscopy Clear October 2012
CT scan clear January 2013
CT scan Jan 2016 - small 9mm lung nodule
CT scan April 2017 - lung nodule 1.5 cm, bilateral thyroid lesions
Aug 2017 Right upper lobe lobectomy for lung nodule CC met

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pollo65
Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: So done with this club!

Postby pollo65 » Fri Jun 01, 2012 10:19 am

I know that this won't be approved, but I am saying it anyway. Throughout life there are always some little primadonnas who only want to hear what they "perceive" as nice. In reality they always pick on the people who tell the truth about life. If the little prima donnas can't take reality it is their loss. As my late father said"maybe you need to grow up."
pollo 65
YES< this was written in anger
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

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Kathryn in MN
Posts: 2970
Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: So done with this club!

Postby Kathryn in MN » Fri Jun 01, 2012 11:04 am

Sunwaterandsky wrote:I am fighting cancer, not people with cancer.
Sunwaterandsky


AMEN!!!!!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume


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