end??????

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edinaman
Posts: 1108
Joined: Wed Oct 26, 2005 10:15 pm
Location: Minnesota

Re: end??????

Postby edinaman » Thu May 31, 2012 5:18 pm

Matthew, my condolences to you and your family. You have been such a loving, devoted husband. A part of her will always be alive in you and your children. May the memories be a blessing.
Jeff
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

Olivia
Posts: 9
Joined: Fri May 06, 2011 7:41 pm

Re: end??????

Postby Olivia » Fri Jun 01, 2012 1:45 am

Matthew,
My condolences to you and your family. You must be reeling from the circumstances happening so quickly. Hug your dear precious children. Cry. And then share with them some precious memories with your wife........wishing you peace through your grieving and one day sunshine.........

Deirdre
Posts: 613
Joined: Mon Sep 06, 2010 7:10 am
Location: Ireland

Re: end??????

Postby Deirdre » Fri Jun 01, 2012 6:37 am

Matthew

Sincere sympathies. Thinking of you and your family.
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!

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cecioboe
Posts: 597
Joined: Mon Oct 17, 2011 9:08 pm
Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: end??????

Postby cecioboe » Fri Jun 01, 2012 9:24 am

My sincerest sympathy to you and your family. You are all in my prayers.

Ceci
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16

jdepp
Posts: 488
Joined: Sun Sep 28, 2008 7:53 pm

Re: end??????

Postby jdepp » Fri Jun 01, 2012 9:43 am

Dear Matthew,

I have a message of condolence and thanks.

I am very sorry that you and your family are going through this. I identify with you very closely -- I, too, am in my 40s, have been married for a long time to somebody I cannot imagine living without, have 2 kids...

But I identify even more with your wife, since I am the one with the terminal illness, and my spouse is the one bewildered yet faithful.

With that in mind, your strength, resilience, and love are very heartening to me and I wanted to tell you that.
Colon dx 08 @ 41 Poorly diff. 12+ liver mets, 19/28 LN
Colon rsx /14 x Folfox-Erbitux 08-09
PVE / Liver rsx 09
Lung & LN mets 10
Folfiri, Xeloda, Avastin 10-13
Xelox, Erbitux, UFUR, TS-1, Oxi, Lonsurf 14-16
Stivarga & TIL trial 16
Brain lesion, RO688 trial 18

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hopeful
Posts: 1372
Joined: Mon Jan 04, 2010 11:43 am

Re: end??????

Postby hopeful » Fri Jun 01, 2012 2:16 pm

Matthew, I am so sorry. My prayers are with you and your family.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

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fritts44
Posts: 534
Joined: Thu Dec 30, 2010 3:04 pm
Facebook Username: Lee Fritts

Re: end??????

Postby fritts44 » Sat Jun 02, 2012 7:59 pm

Hi Matthew. I just wanted to let you know that I have been thinking of you & your family today. I can't imagine what you're going through, and I'm just so sad for you. I'm hoping that in these days with your family & friends you can experience some wonderful stories of your wife that will bring you some comfort and peace.

Lee F.
Lee F
RC dx 12/16/10
resection & perm colo 12/17/10
8 rounds chemo, 28 rounds radiation
finished 8/26/2011
clean scope 9/20/2011
clean CT scan 12/26/2011
NED

Matthew
Posts: 181
Joined: Sun Jan 22, 2012 4:04 pm

Re: end??????

Postby Matthew » Sat Jun 02, 2012 8:29 pm

THANK YOU ALL!!!!!!!!!!!!! so much - your support throughout this time has been incredible and all of you mean so much to me.

Honestly, I am heartbroken, and I continue to second guess everything.

For example - it seems finally I got a relatively straight answer FINALLY what caused her dementia symptoms - I thought it was the chemo, the xanax, etc - and so did the docs, EXCEPT for the hospital internist who said it was also the embulism and everything together - she came the closest. Until she was on her deathbed I didn't know - apparently toxins especially ammonia that the liver wasn't able to take out of her system.

Yet I read this: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001347/ so what the heck - had the onc actually PAID ATTENTION treatment could have been tried? Had the hospice been in too much of a hurry to stick her in the ground? At least with treatment she could have had a lucid day or two?

My son always said she needs to go to our HOSPITAL - they always "fixed" her there - the outcome may have been the same, but at least she could have had another day or two of being aware and talking to us.

I know guys I know, but the more I think about this the worse feeling I get about her onc - again a HUGE practice, not a "mom and pop" shop...

As far as the "future" - I found her blanket that she used since she'd been sick - it's mine now - only thing that offers comfort. I'm bringing her ashes home soon, and am working on lots of pictures of her in the house. Memorial service at the school where she worked is next week Sat - I'm just thinking I need to make 8 years (daugther will be out of college by then) after that, I make no promises...

I take this as a lesson - don't ever not discuss what you want to do should treatment fail...
DH to WONDERFUL wife (43 yrs old) of 21 years!!!
Dx 12 Jan 2012
Hospital - 13 Jan 2012 - 26 Jan 2012 removed sig colon 8cm tumor/colostomy
3.5cm met to liver
a few 1 to 2 mm mets to lungs
FOLFIRI - Feb 13, 2012 - add Avastin -mid-March 2012

Matthew
Posts: 181
Joined: Sun Jan 22, 2012 4:04 pm

Re: end??????

Postby Matthew » Sat Jun 02, 2012 8:49 pm

so-scared wrote:Oh Matthew - I am so, so sorry! The love you have for your wonderful wife radiates through the screen! I am a fellow caregiver and I know that I will most likely walk in your shoes one day. I hope that I can be as wonderful to my husband as you have been to your wife. The speed in which this has happened is mind boggling. Cancer has made me fully aware that each day needs to be cherished. Your story has made me even more aware as things can change so quickly. I pray that the beautiful memories of your time with your wife will help you through this most trying time.

So-s

Thank you so scared - yes...CT scan on April 27 said "liver is nearly fully taken over by masses..."
DH to WONDERFUL wife (43 yrs old) of 21 years!!!
Dx 12 Jan 2012
Hospital - 13 Jan 2012 - 26 Jan 2012 removed sig colon 8cm tumor/colostomy
3.5cm met to liver
a few 1 to 2 mm mets to lungs
FOLFIRI - Feb 13, 2012 - add Avastin -mid-March 2012

Matthew
Posts: 181
Joined: Sun Jan 22, 2012 4:04 pm

Re: end??????

Postby Matthew » Sat Jun 02, 2012 8:49 pm

so-scared wrote:Oh Matthew - I am so, so sorry! The love you have for your wonderful wife radiates through the screen! I am a fellow caregiver and I know that I will most likely walk in your shoes one day. I hope that I can be as wonderful to my husband as you have been to your wife. The speed in which this has happened is mind boggling. Cancer has made me fully aware that each day needs to be cherished. Your story has made me even more aware as things can change so quickly. I pray that the beautiful memories of your time with your wife will help you through this most trying time.

So-s

Thank you so scared - yes...CT scan on April 27 said "liver is nearly fully taken over by masses..."
DH to WONDERFUL wife (43 yrs old) of 21 years!!!
Dx 12 Jan 2012
Hospital - 13 Jan 2012 - 26 Jan 2012 removed sig colon 8cm tumor/colostomy
3.5cm met to liver
a few 1 to 2 mm mets to lungs
FOLFIRI - Feb 13, 2012 - add Avastin -mid-March 2012

Matthew
Posts: 181
Joined: Sun Jan 22, 2012 4:04 pm

Re: end??????

Postby Matthew » Sat Jun 02, 2012 8:52 pm

Thank you! Yes, I really would like to chat with you when you have time...

cindyz wrote:Hi Matthew,

I occasionally visit this board and catch up on my friends, and I was compelled to post a reply when I read your post. I'm so very sorry. My husband was 45 when he was dx with Stage IV, and lived almost a year before passing away. My experience was much like yours - a month before he died, we were vacationing in Exuma and two months prior we were snow skiing. Very, very surreal feeling to have that all change so suddenly.

My husband refused Hospice, so he had home health care for the last three days of his life. Not such a great experience, as I didn't really feel he was getting the best care. Stephen was lucid up until the day he died, and he wouldn't let me use Hospice because he felt it was admitting his impending death. It didn't matter. His body was dying no matter who took care of him. The difference was and is, from what I understand, the way in which Hospice can prepare you for it. I know, really nothing can "prepare" you when you are looking at the other part of your physical self slip away...but later when the edge and the rawness is gone a little bit, when you can think, even a little, and look back on your choices and your experiences...maybe that sort of preparation helps at that point. I don't know, but my hope for you is that with time, you and your children are strengthened by a perspective that you cannot possibly have at this point so soon after your wife's death.

It really is the most unreal of feelings to spend every single waking moment trying to find a solution to get rid of cancer and help your partner get better, and then in the last few hours hope for your partner to pass as painlessly as possible. It is so confusing, and overwhelming, and the shock of that is unlike anything you'll ever experience again. That was my experience, anyway. If that was yours, I hope you can come to understand it. It is that sort of love, that sort of unselfishness, that can set you free a little bit if you can bring yourself to look at it from that perspective. Not now, but in time. Always that damn time. You can't rush it or guide it or boss it around, and you sure as hell can't skip ahead a few years. You have to go through it and under it and above it, and it's a journey that will leave you stronger but lonelier, wiser but harder, and sadder but more accepting. I laugh and cry with a different perspective, and one day I'll see all the colors in my rainbow at the same time. As will you, my friend.

Gaelen once told me to take it day by day, hour by hour, even second by second if I had to, in order to get to the next minute, hour, day. I did that. Some days I still do that. If you ever need someone to talk to, I'll be happy to be on that list of folks.

~Cindy
DH to WONDERFUL wife (43 yrs old) of 21 years!!!
Dx 12 Jan 2012
Hospital - 13 Jan 2012 - 26 Jan 2012 removed sig colon 8cm tumor/colostomy
3.5cm met to liver
a few 1 to 2 mm mets to lungs
FOLFIRI - Feb 13, 2012 - add Avastin -mid-March 2012

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: end??????

Postby Badass » Sat Jun 02, 2012 9:24 pm

HI Matthew,
I just wanted to say I am sorry you are in so much pain. Grief is a process and please trust that, as unbearable as your pain is now, that is part of the process, and slowly you come to different perspectives and eventually come back to living. The regret you feel is very common-- ultimately we can all second guess ourselves and death seems to bring up guilt and anger that fuels that process of second-guessing and feeling anger toward doctors and ourselves. Of course, in retrospect, we can find things we wish we had done differently-- but that is always true. It is clear that you did the very best you could for your wife-- death is a difficult and messy process and ultimately we do not have control. Please find it in yourself to access the love you have for her and reassure yourself that, ultimately, that is what you provided for her and take joy in the love the two of you experienced. Let the rest go as best you can and be kind to yourself.
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

Matthew
Posts: 181
Joined: Sun Jan 22, 2012 4:04 pm

Re: end??????

Postby Matthew » Sat Jun 02, 2012 9:28 pm

Thanks rusuja - I know I hear my wife's voice in my head - Matthew LET IT GO!

And I must say I find great comfort in sitting on her spot on the couch where she spent so much time lately, and with her blanket...
DH to WONDERFUL wife (43 yrs old) of 21 years!!!
Dx 12 Jan 2012
Hospital - 13 Jan 2012 - 26 Jan 2012 removed sig colon 8cm tumor/colostomy
3.5cm met to liver
a few 1 to 2 mm mets to lungs
FOLFIRI - Feb 13, 2012 - add Avastin -mid-March 2012

wifenurse
Posts: 164
Joined: Tue Feb 01, 2011 4:05 pm

Re: end??????

Postby wifenurse » Sat Jun 02, 2012 10:16 pm

So very sorry for your loss. Praying for strength for you and your children to get you thru these next difficult days.
Christy
Wife of Jayson, diagnosed Oct 2009 CRC - age 39
Radiation & Chemotherapy Nov-Dec 2009
Colon & Liver resection Feb 2010 - Stage IV
Folfox + Avastin X 12 treatments - finished Aug 2010
NED 10/10, 1/11, 7/11, & 12/11

Matthew
Posts: 181
Joined: Sun Jan 22, 2012 4:04 pm

Re: end??????

Postby Matthew » Sat Jun 02, 2012 10:18 pm

Thank you wifenurse!
DH to WONDERFUL wife (43 yrs old) of 21 years!!!
Dx 12 Jan 2012
Hospital - 13 Jan 2012 - 26 Jan 2012 removed sig colon 8cm tumor/colostomy
3.5cm met to liver
a few 1 to 2 mm mets to lungs
FOLFIRI - Feb 13, 2012 - add Avastin -mid-March 2012


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