My GI doc called yesterday (who I haven't seen since the colonoscopy in Dec) and offered me the testing for HPNCC at a local center. I go on Thurs next week. The woman that I spoke with said insurance may or may not pay for it and that if they didn't it could cost $2,000! I want the testing, but I just pray the insurance will pay for it. I really can't pay for it right now with all the other bills. She did say that if I am tested and am positive, that my siblings could be tested and it would only cost they about $400 (since they would have my baseline DNA). I thought that was interesting.
Good luck to you with your testing. I know there are other genetic possibilities out there, but they believe this is most likely with my family history.
Diagnosed Dec 2005 stage 3C
LAR Dec 2005
Mom finished chemo for stage 3B Jan 2006
I had chemo Feb 2006-Aug 2007