Olymphians - Finally - good news
Olymphians - Finally - good news
I finally got some very good news. I met with Dr. Lenz today. I can see why so many of you like him so much. He feels my lymph node and cancer markers are all still from the HIPEC/complications and feels I have no signs of cancer. Beginning immediately, I'm off the chemo. I'll have PET/CT in a few weeks, and then two months later have another scan. If tests are the same, then he feels cancer is not in the lymph node! I was so shocked when he told me. He agreed with my concern that my SUV on this node had never been over 3.6. He felt if it was in 6 or 8, then probably cancer. I am so happy to finally have a chemo break and hope it's a very long break. Off for the traditional happy dance....
Last edited by Ashlee H. on Tue May 01, 2012 10:42 pm, edited 1 time in total.
Stage IV w/liver met dx 7-1-09
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga
LIVE LIFE!
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga
LIVE LIFE!
-
Bev G
- Posts: 5856
- Joined: Thu Jan 07, 2010 11:19 pm
- Facebook Username: Bev Golde
- Location: Quechee, VT
Re: Olymphians - Finally - good news
THIS.IS.THE.BEST.NEWS.EVER (but you know what I think, and I promise this is the last time I will say I told you so 
)
YIPPEEEEEEEEE!!
Much love,
Bev
)YIPPEEEEEEEEE!!
Much love,
Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
Re: Olymphians - Finally - good news
Ashlee - that is fantastic news and just what you needed! Yay!!! LIVE YOUR LIFE! 
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012
Re: Olymphians - Finally - good news
Ashley,
I am so very HAPPY, HAPPY, HAPPY for you!!!!
As Bev said, this is the BEST NEWS!!!!
Enjoy your good health, and I hope I can say this,
WELCOME TO NEDville!!
Lee
I am so very HAPPY, HAPPY, HAPPY for you!!!!
As Bev said, this is the BEST NEWS!!!!
Enjoy your good health, and I hope I can say this,
WELCOME TO NEDville!!
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
Re: Olymphians - Finally - good news
That is awesome news. Enjoy the break. I hope it lasts forever.
RC 10/09
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!
Re: Olymphians - Finally - good news
Wow, Ashlee, that really is such FANTASTIC news!!! You must be on Cloud Nine! There is always hope.
Ann
Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
Re: Olymphians - Finally - good news
Nice to be shocked with good news! Congrats & I am very happy for you!
Bill's Colonoscopy 6/29/10; Dx Stage I or II
Surgery 7/15/10; Dx Stage III,15/32 lymph nodes
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
2021 dx MSH6 Lynch Syndrome positive
(as are my brother, sister & son, but not daughter)
Grateful for 2nd Chance NED time!
Surgery 7/15/10; Dx Stage III,15/32 lymph nodes
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
2021 dx MSH6 Lynch Syndrome positive
(as are my brother, sister & son, but not daughter)
Grateful for 2nd Chance NED time!
Re: Olymphians - Finally - good news
I follow your posts closely and am incredibly happy for you!! Yay for really enjoying life!
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED
Re: Olymphians - Finally - good news
Bev G wrote:THIS.IS.THE.BEST.NEWS.EVER
YIPPEEEEEEEEE!!
X2 !!!!!!!
I'm so happy for you Ashlee!
-Rick
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192
-
mlibertone
- Posts: 261
- Joined: Wed Nov 02, 2011 12:56 pm
- Facebook Username: Michelle Libertone-Cook
Re: Olymphians - Finally - good news
So Happy for you! What amzing news! YAY!!
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!
Re: Olymphians - Finally - good news
Absolutely FANTASTIC news!!!!!!!!!!!!!!!!!! I am so happy for you! You have really been on quite the ride - enjoy the break!!
So-s
So-s
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14
-
simon031003
- Posts: 553
- Joined: Mon Jan 17, 2011 10:17 pm
- Location: Central Texas
Re: Olymphians - Finally - good news
Oh Ashley I am so very happy for you. I know you have been struggling, and this is just the news that you needed to hear. Enjoy your break.
Michelle wife of Esteban
T3N1M0 12/31/10
Folfox 2/22/11
9/19/2011 confirmed cancerous lymph nodes via biopsy; started FOLFIRI with Avastian turned into FOLFIRI with Ebritux now FOLFIRI w Vectibux 12/12 mets to liver and pancreas
2/17/13 resting in Heaven
T3N1M0 12/31/10
Folfox 2/22/11
9/19/2011 confirmed cancerous lymph nodes via biopsy; started FOLFIRI with Avastian turned into FOLFIRI with Ebritux now FOLFIRI w Vectibux 12/12 mets to liver and pancreas
2/17/13 resting in Heaven
-
SkiFletch
- Posts: 6361
- Joined: Mon Dec 07, 2009 3:39 pm
- Facebook Username: Michael Fletcher
- Location: Buffalo, NY
Re: Olymphians - Finally - good news
You needed a breather Ashlee, and we all needed a little good news here today. I'm so happy for you. Celebrate some more 
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
Re: Olymphians - Finally - good news
Hmmm, somehow something happened to my earlier post but HURRAY!!! So thrilled for you! Can't imagine what it must feel like to be out from under the chemo routine. Enjoy every second of what I hope is a very LONG break!!!
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace
Re: Olymphians - Finally - good news
Congratulations Ashlee! I can't even imagine the relief you're feeling! I'm so glad are off chemo & will now have a chance to recuperate!
Lee F
Lee F
Lee F
RC dx 12/16/10
resection & perm colo 12/17/10
8 rounds chemo, 28 rounds radiation
finished 8/26/2011
clean scope 9/20/2011
clean CT scan 12/26/2011
NED
RC dx 12/16/10
resection & perm colo 12/17/10
8 rounds chemo, 28 rounds radiation
finished 8/26/2011
clean scope 9/20/2011
clean CT scan 12/26/2011
NED
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