A year.....

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elissa
Posts: 591
Joined: Mon Sep 20, 2010 1:52 pm
Facebook Username: elissa fenster cazassus

A year.....

Postby elissa » Mon Apr 30, 2012 2:39 pm

Today is a year that I lost my best friend. Today is a year that life as I knew it ceased to be. It has been a long and trying road. I have worked very hard to take care of my boys and myself, and to move forward in this life without John. By February/March, I was really feeling like it was all possible. Then I got knocked down this month. It has actually been more difficult re-living his last two weeks than it was the first time around. But I am strong and I will pull myself up again.
I have been a constant lurker on this site. I have been so saddened by all of the losses and all of the struggles. I think about many of you regularly. I appreciate how caring and thoughtful so many of you were in my time of need. It is something I will always remember.
A special "Thank you" to Kathy in NJ/Seriously WTF for reaching out to me this past week. It really meant a lot to me.
I wish each and every one of you well on your journey.
Elissa
Wife of John, 52
Dx cc 9/3/10; Stage IV
14/25 LN; 2 liver mets
Lynch: MSH2; KRAS mutant
Colon resection 9/9
Various complications
12 rounds of FOLFOX/FOLFIRI
was called home on 4/30/11

NedPlease
Posts: 550
Joined: Fri Mar 23, 2012 3:56 pm

Re: A year.....

Postby NedPlease » Mon Apr 30, 2012 3:04 pm

It's with a heavy heart that I read your post. I wish for you the strength to carry on and for healing to ease the pain of losing your precious husband. Thank you for your thoughtful well wishes- Blessings
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

Seriously, WTF?
Posts: 602
Joined: Wed Nov 17, 2010 10:48 pm

Re: A year.....

Postby Seriously, WTF? » Mon Apr 30, 2012 4:30 pm

xoxoxoxoxoxoxox
ALWAYS IN MY HEART!
5/7/2013

adina91
Posts: 490
Joined: Wed Aug 25, 2010 6:36 pm
Facebook Username: Adina Jewett
Location: Los Angeles, CA
Contact:

Re: A year.....

Postby adina91 » Mon Apr 30, 2012 5:42 pm

Elissa - I can't believe it has been a year. I think of you often and wonder how you are doing. I love it when you pop online. I hope the past year has brought you and your family peace.
Adina 42 yo, mom of 2 sons (5,9)
11/2009 - DX-2B CC-Sigmoid resect/colostomy
Lynch Synd MSH2
1/2010 - FLOX chemo
5/2010 - Subtotal colectomy/hyster/ileostomy
Stage 3A - 1/42 LN +
8/2010 - Chemo done
10/18/2010 - ileostomy takedown
2010 - 2015 - NED
5/1/15 - "suspicious" area in liver on CT
5/14/15 - follow up PET says no metastatic disease
6/19/15 - MRI - NED!

jrw118
Posts: 82
Joined: Tue Nov 02, 2010 1:26 pm
Facebook Username: Jessica Wyeth Klaric

Re: A year.....

Postby jrw118 » Mon Apr 30, 2012 6:16 pm

Elissa,
I think of you often and how you were the first to reach out to me when I was first diagnosed. May my prayers bring you peace and strength to get through this tough time. I hope your boys are doing well
Xoxo
Jess
Jessica Diagnosed at 36 yo
Married, 2 Amazing Boys 7yo and 4 yo
dx 11/1/10
rectal cancer
stage III T3 N1 M0
Folifox to started 11/15
Last chemo 7/2011
Lar 4/6/2011
Ileostomy reversal 7/20/2011
lysis of adhesions 5/16/12
NED

tmn
Posts: 207
Joined: Sun Feb 08, 2009 4:43 am
Location: Sydney, Australia

Re: A year.....

Postby tmn » Mon Apr 30, 2012 6:36 pm

Thinking of you and your family at this time.
Dx Stage IIIC CRC @33 on 20 May 2008
Colon Rescection, 12 Rounds FOLFOX 4
NED

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barbara jayne
Posts: 759
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: A year.....

Postby barbara jayne » Mon Apr 30, 2012 6:54 pm

So nice to "see" you again Elissa,
I can't believe a whole year has gone by either, I've often wondered how you are doing.
I wish you and your boys well especially now when all the reminders must hurt so much.
Take care,
Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
13 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: A year.....

Postby so-scared » Mon Apr 30, 2012 6:54 pm

In a couple of weeks it will be one year since my husband's stage four diagnosis. I know the challenges we have faced over the last year.... I can not even begin to imagine the challenges that you have faced over the same year!!

I noticed your story right away when I joined this forum and have always felt so bad that things went so quickly in your husband's case. I am so sorry that all of this has happened. I really don't know what to say except that my heart truly goes out to you!

So-s
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

seva
Posts: 413
Joined: Tue Jun 22, 2010 2:28 pm

Re: A year.....

Postby seva » Mon Apr 30, 2012 8:38 pm

prayers for your family, you are a special woman.
RC 10/09
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!

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waw4
Posts: 847
Joined: Sun Sep 12, 2010 8:44 am
Location: Durham, NC

Re: A year.....

Postby waw4 » Mon Apr 30, 2012 8:56 pm

Wow. A year already? How quickly it all passes by.

You and I joined the forum within a week of each other in 2010, so I sort of feel like we're like classmates although you've had the harder road to travel.

Sounds like a tough year for you and a naturally hard time at the anniversary of parting with John.

I hope things ease up for you a bit soon and wish you and your boys the very best! Nice to hear from you.
Bill's Colonoscopy 6/29/10; Dx Stage I or II
Surgery 7/15/10; Dx Stage III,15/32 lymph nodes
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
2021 dx MSH6 Lynch Syndrome positive
(as are my brother, sister & son, but not daughter)
Grateful for 2nd Chance NED time!

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: A year.....

Postby michelle c » Mon Apr 30, 2012 9:17 pm

Elissa,

John would be very proud of you, I'm sure.
Love to you and your boys.

Michelle xox
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: A year.....

Postby Bev G » Mon Apr 30, 2012 9:28 pm

Dear Elissa,

I think of you so often, always with very tender feelings and a lot of admiration for your strength and courage. I can't imagine how tough things are at this time of year--recalling and re-living that horrible time in your lives. I hope the knowledge that John is at perfect peace brings you some degree of peace as well, although I know that knowledge does little to ease the real, true burden of day to day life without him. I know he would/is so proud of you, and all you've done, I know finding strength you never even knew you had.

I'll be glad for you when this sad season has passed.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Lisa
Posts: 9
Joined: Wed Sep 21, 2011 4:36 pm

Re: A year.....

Postby Lisa » Mon Apr 30, 2012 9:41 pm

Elissa:

I am so sorry that you have to go through the painful anniversary of his death. The first year without them is pretty awful isn't it. I wish there was something I could say to take away the pain.

Although we would give anything to never have been on the cancer journey, I am so grateful that there us a place like this where Tim found so much support during his life and where I received support upon his death. I am grateful to have "met" you and so many others here. You were so kind to reach out to me when Tim was declining, giving me someone to talk to who knew what I was going through. You did not have to do that when your own loss was so fresh. I now I understand how difficult that must have been.

Sending you lots of hugs at the end of this difficult year. If you need to talk, I am there.

Lisa

Deirdre
Posts: 613
Joined: Mon Sep 06, 2010 7:10 am
Location: Ireland

Re: A year.....

Postby Deirdre » Tue May 01, 2012 2:17 pm

Hi Elissa

I have thought of you often. I hope the boys are doing ok. You have been so string for them. I hope the road ahead is easier for you. Thinking of you
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!


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