UPDATE on radiation

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UPDATE on radiation

Postby Terry » Sat Apr 21, 2012 1:21 am

Hi everyone! Jaynee thought I should come on and and let you know how I am and how radiation is going.

First of all radiation is doing well. My rad. onc. says the tumor looks more like scar tissue than a tumor these days. One reason I haven't been on is because I keep fall asleep. I started writing this at about 6pm tonight and just woke up now with lines of "v"'s al over the place.

The Xeloda seems to be helping my shortness of breath, I pray it continues to do so. I'm through with the rad. on the thyroid and have about 2 weeks left on the nose unless the rad/onc. decides to extend which is a possibility. After that a 2 week break from everything, then back on to Xelox (Yuck!). Oh well, I'll do what I need to.

I better post this before I lose it for the umpteeth time:(
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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Re: UPDATE on radiation

Postby RixInPhx » Sat Apr 21, 2012 1:26 am

You are posting rather late, but thanks for doing so.
Sounds like good progress, and I wish you the best continuation of such.

Hang in there, we know you're a trooper!
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

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barbara jayne
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Re: UPDATE on radiation

Postby barbara jayne » Sat Apr 21, 2012 3:12 am

Thanks for the update Terry,
Sounds like its all going to plan, but also sounds rough on you, :(
Thinking of you and wishing you the the best, take care of yourself.

Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
11 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

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Re: UPDATE on radiation

Postby Mona » Sat Apr 21, 2012 7:38 am

You are so special and doing what your heart is telling you to do. I know that you doing it for your kids, husband, family and for your self. Keep going beatiful girl. I am praying for you.
Much love,
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

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Re: UPDATE on radiation

Postby lauragb » Sat Apr 21, 2012 8:19 am

Thanks Terry for making the effort to get on here. Sounds like this is another ordeal for you but progress is being made! Know that there are many
praying for you at this time and for your family.

Light and prayers your way.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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Re: UPDATE on radiation

Postby JAZZToo » Sat Apr 21, 2012 8:32 am

Good to hear the radiation is doing its job in shrinking/shriveling up the tumors. Radiation is a stress on the body, as is a low/nonfunctioning thyroid secondary to the radiation, so get as much rest and sleep as you need. Once you are on replacement thyroid medications you should feel a lot better and have a return of energy.
Wishing you well and continued success with treatment.

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Re: UPDATE on radiation

Postby BrownBagger » Sat Apr 21, 2012 8:34 am

I wasn't worried because I know Jaynee would let us know if anything changed dramatically, but I'm so glad to hear that the radiation is working and that your treatment is moving forward, Terry. Get as much rest as you need--I've come to appreciate the value of sleep. Nothing better, IMO. Your body knows what it's priorities are.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Re: UPDATE on radiation

Postby CheeseHead » Sat Apr 21, 2012 10:21 am

Thanks a lot, Terry, glad the nose thing is being fried.

Hope the xelox, however icky, will deal with the rest.

Hang in there,

    10 Stg 4 colon srgry
    12 Xelox/Avast
    05 Liver srgry
    -12 Xelox
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    03-07 Ph I trial
    08-11 Regorafenib

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Re: UPDATE on radiation

Postby SkiFletch » Sat Apr 21, 2012 10:34 am

Nuke em till they glow Terry :twisted:
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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Re: UPDATE on radiation

Postby dj2158 » Sat Apr 21, 2012 11:33 am


I am so glad to hear from you. was getting a little worried. great that the radiation is working on you.

i am thinking and praying for you. now, go and get your rest.


Dx 10/'07 age 54 3CC Sigmoid 1/25 nodes lap
Folfox 11/'07-4/'08
Vats Lung 7/'09 met
Vats Lung 7/'10 two mets, Irinotecan/Xeloda 9/'10-2/'11
Lung Resec, 3 1/2 rt ribs 4/'12
10-15 spots both lungs & 1.4cm nodule, 7/'12
xeloda & avastin 9/'12

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Re: UPDATE on radiation

Postby Guinevere » Sat Apr 21, 2012 11:38 am

I came on here this morning to see how you and a couple others are doing before I went to rest. What a blessing to read that the radiation is working! I, too, have fallen asleep while trying to type something. Funny and embarrassing all at the same time. Take it easy and know we're praying for you!
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

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Re: UPDATE on radiation

Postby CRguy » Sat Apr 21, 2012 5:23 pm

Terry wrote:.... and just woke up now with lines of "v"'s al over the place.

That is because "V" is the WW2 victory sign Terry...
and it sounds like things are working towards a victory for you.
I found the radiation really zapped my energy, so rest and recover !!!! If you gotta do chemo...Xeloda is my first choice so I hope it keeps helping you as well.

Sending prayers and POSI ++++++++++ vibes your way.
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Re: UPDATE on radiation

Postby mymom » Sat Apr 21, 2012 7:46 pm

Great news!
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

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