5 years ago today!!

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5 years ago today!!

Postby weisssoccermom » Fri Apr 20, 2012 5:30 pm

Well, FIVE years ago today I had my surgery - my last treatment! Five years of being clean, no problems, nothing, nada!
A few months back when I was scheduling all of my appts, it truthfully didn't dawn on me that today was a special day (at least it is for me!). Surgeon was ecstatic - said I really didn't need to keep coming in every 6 months - I could stretch those 'look see' appts out or even stop them but....told her I'm not sure if I'm quite ready for that yet so she told me I could call the shots about the timing (probably will continue the 6 month for now). At any rate, she said she really didn't think I needed any more scans (GP concurs) and since my onc has 'retired' (his own cancer came back) and I don't really want to break in a new onc, I'm taking my surgeon's advice. She didn't feel I needed to keep getting CEAs every 3 months as well - her opinion is to have one done every 6 months. I even set up my next scope for Dec 27th...no time yet but at least I have the date and the anesthesiologist requested for propofol administration.

I am giddy- no more scans, no more onc appts, fewer CEA tests and oh yeah, after this scope (unless some yucky results), I get to 'graduate' to 5 year scope plan. As a side note, I asked her if she truly felt that a 10 year period between scans ( for people with no risk factors) was advisable and her reply was an emphatic NO! Her response was that this 'theoretical' 10 year to turn cancerous timeframe was just that - theoretical. She would like to see the guidelines changed to every 5 years.

Anyway, good day in our house! Hoping all of you are enjoying some well deserved good news as well!

Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
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Re: 5 years ago today!!

Postby martoonca » Fri Apr 20, 2012 5:49 pm

Congratulations thats great, I hope you have a wonderful time celebrating this weekend........
dx stage 3c CC 09/08
folfox started 11/08
finished chemo 05/09
ileo reversal 10/09
lynch positive mlh1

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Re: 5 years ago today!!

Postby lauragb » Fri Apr 20, 2012 6:42 pm

It is so good to hear news like this. Thanks for sharing and I hope you're having a great weekend!

RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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Re: 5 years ago today!!

Postby hart2hart » Fri Apr 20, 2012 7:12 pm

Jaynee -

Whooooohooohooo from Pete and Julie. W want to THANK YOU for all the knowledge, tips and plain ole
good advice on Pete's journey.......Wish you lived closer!


Julie and Pete
Hubby Pete - Doin
Doing Great - LAR RC Surgery = 4/12
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2020
Hai Pump/Port Removed - 1/2020

Staci's team
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Re: 5 years ago today!!

Postby Staci's team » Fri Apr 20, 2012 9:31 pm

Congrats, Jaynee -- that's got to be an important psychological milestone to conquer! Here's to continued good health!

Husband to Staci, diagnosed at age 32
Clinical dx Stage II/III rectal cancer, 7/2009
APR surgery 11/09 leading to...
Pathological dx Stage IIIB, ypT3N1M0, 11/2009
Member of The Colon Club's Board of Directors

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Re: 5 years ago today!!

Postby cptmac » Fri Apr 20, 2012 9:44 pm

Woo Hoo!!! Happy dance, happy dance, happy dance..... Welcome to the 5 year club..... Truly a reason to celebrate... Thanks for sharing your joy with us. :D
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

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Re: 5 years ago today!!

Postby Surroundedbylove » Fri Apr 20, 2012 10:33 pm

Happy dance Jaynee!

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

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Re: 5 years ago today!!

Postby Rick7 » Fri Apr 20, 2012 11:37 pm

Yay! Congratulations on the 5 year mark. Here's to many more anniversaries! Cheers!

CC DX 1-7-09 at age 40 - Stage IV, T4-N1-M1
Surgery 1-16-09 - Folfox6 Feb-Aug 2009
Clear scans - PET/CT 9-09, CT 3-10, CT 9-10
Head MRI 3-11, CT 9-11
Head CT 2-12, PET/CT 9-12

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Re: 5 years ago today!!

Postby kimmercans » Fri Apr 20, 2012 11:43 pm

This is good, good, good to see. What a wonderful blessing you have received.
Enjoy and cherish:)
Kimberly Age 54 Diagnosed at 44
Dx'd rectal ca 10/12/09
LAR,TME 10/14/2009 Stage 2a
Opted out of Folfox.
4/19/12 CT scan clear NED CEA<0.5
10/2019 still NED
Taking curcumin, Celebrex, vitamin d, digestive enzymes, bio identical hormone replacement.
2015 to present. Stopped all surveillance. Living life one glorious day at a time.

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Re: 5 years ago today!!

Postby Ron50 » Sat Apr 21, 2012 12:41 am

Hugs Jaynee ,I'm glad you have made the big five and I hope you can put some of the baggage of cancer behind you . Most of all I wish you good health ,from bitter experience I know that being ca free does not mean that health is a given. Good luck Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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barbara jayne
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Re: 5 years ago today!!

Postby barbara jayne » Sat Apr 21, 2012 3:15 am

Hi Jaynee :D
That's such good news I'm so pleased for you, have fun !!!!!

Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
11 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

justin case
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Re: 5 years ago today!!

Postby justin case » Sat Apr 21, 2012 8:29 am

That's wonderful! I plan to follow in your footsteps, as you are such a good teacher :wink:
Warm regards,
7/11 diagnosed Stage 2 colon and rectal cancer
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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Re: 5 years ago today!!

Postby BrownBagger » Sat Apr 21, 2012 8:36 am

I'm giddy, too. Congratulations, Jaynee! Celebrate this wonderful milestone!
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Re: 5 years ago today!!

Postby beth568 » Sat Apr 21, 2012 9:02 am

Lovely milestone! Enjoy as you celebrate it. :)
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13

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Re: 5 years ago today!!

Postby nbrandt » Sat Apr 21, 2012 9:32 am

So Happy for you. Enjoy life and celebrate a truly memorable occasion. I agree I would continue appointments to be on the safe side.
DXCCT3N2aMx 5/20LN
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health

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