Prayers for my DH Pete today also

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pollo65
Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: Prayers for my DH Pete today also

Postby pollo65 » Sat Apr 14, 2012 7:27 am

Prayers for Pete and prayers of peace for you. You two are inspirational.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

las
Posts: 758
Joined: Wed Jul 20, 2011 3:43 pm
Location: Houston, TX

Re: Prayers for my DH Pete today also

Postby las » Sat Apr 14, 2012 10:02 am

Ilse,
Prayers for you and your hubby, what a strong fight Pete has given and I hope he pulls thru and If not, 8.5 yrs is a very long time to fight this nasty cancer. You never know what God can do, so please stay strong.

Lisa
Lisa
Fiance DX 6/27/11 CC IV w/liver mets,adrenal glnd,pet.
7/25/11 folfox
8/2/11 surg.colon wall prefor.no removal of tumor
8/24/11 folfox ,3/12 5FU, 5/12 irinitecan failed, 7/12 didn't qualify regronfenib
8/13/12 Hospice, 8/18/12 married, died 9/10/2012

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Guinevere
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Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Prayers for my DH Pete today also

Postby Guinevere » Sat Apr 14, 2012 10:13 am

Ilse,
I'm so very sorry that things have taken the turn they have. Please know I'm praying for you both. Let us know how Pete and you are doing when you feel up to it.
God bless ~
Gwen
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: Prayers for my DH Pete today also

Postby Lee » Sat Apr 14, 2012 1:27 pm

Dear IIse,

I am so sorry to read your post. You and Pete have fought this battle long and hard. You both will be in my thoughts and prayers in the days ahead.

(((HUGS)))

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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CRguy
Posts: 10264
Joined: Sun Feb 10, 2008 6:00 pm

Re: Prayers for my DH Pete today also

Postby CRguy » Sat Apr 14, 2012 2:16 pm

Prayers and Harmony for the challenges you both are facing now.
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Surroundedbylove
Posts: 3124
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Re: Prayers for my DH Pete today also

Postby Surroundedbylove » Sat Apr 14, 2012 6:40 pm

Ilse,

My heart goes out to you and Pete. He has battled this disease for so long and from all of your posts it sounds like he has done so with an indomitable spirit. My prayers are with you both.

SBL
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

Cj51
Posts: 893
Joined: Thu May 13, 2010 5:58 pm
Location: Midwest

Re: Prayers for my DH Pete today also

Postby Cj51 » Sat Apr 14, 2012 11:31 pm

Ilse,
I'm so sorry to hear this. My prayers are with you both.

Cj
DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED

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wayne's wife
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Facebook Username: Becky.Cutcher
Location: Birmingham, Alabama

Re: Prayers for my DH Pete today also

Postby wayne's wife » Sun Apr 15, 2012 3:02 am

Dear Ilse,
I am so sorry to hear that Pete is having such a rough time with ecerything, but glad that he is where he needs to be. I hope that you both and find time with some comfort and be there with each other, and mostly the team of drs. and nurses. Also that you get much needed rest. I know that when the time comes that my dear Wayne needs nursing care, I probably won't be such a good nurse either. I get all nervous when I know things are very serious and afraid I would do the wrong thing.I pray they can keep Pete comfortable. Take care of yourself also and try and rest when you can.

Becky
Husband dx. 12/07/2010
Colon resection 12/13/2010
Stage IV to liver and lungs
Completed 12 treatments as of July 20, 2011
Started maintenance chemo every 3 weeks
Is now as of 08/23/2012 on Camptosar and 5FU weekly
Age 57 Passed Away - Sept. 25, 2012

Deirdre
Posts: 613
Joined: Mon Sep 06, 2010 7:10 am
Location: Ireland

Re: Prayers for my DH Pete today also

Postby Deirdre » Sun Apr 15, 2012 6:31 am

Ilse
I wasn't on for a few weeks and am so do sorry to read this. You are tremendous support & you have been the nearest thing to a nurse and an angel to Pete. I hope you get the professional help and support you need now. Thinking of you
D
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!

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Terry
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Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: Prayers for my DH Pete today also

Postby Terry » Sun Apr 15, 2012 7:39 am

Oh Ilse I'm so sorry your going through this. I need to stop being so self absorbed in my stuff and should have known this, I'm sorry for not seeing it on FB and not being on here enough.

You have been such a blessing to your DH Pete, you wouldn't have been better if you were a nurse. Being a nurse only means you know more and can do less than a nurse and making decisions can be more difficult. At this time pain control is the issue and often the pain control needed cannot be given in the home (I've discussed this with my family). Be with him as much as you can, but take some breaks for yourself. Have someone else come and sit with him if you feel guilty leaving him alone. He's put up such a long courageous battle.

I pray for no pain for Pete and no fear to be with the Lord. I pray for strength for you to go through this with your husband, and to know you'll be reunited in God's kingdom some day. Pete will go ahead and get your house all organized for you:) Your in my prayers and in my heart.

Prayers, hugs and love.
Terry
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

SMR
Posts: 631
Joined: Thu Feb 16, 2012 1:20 pm

Re: Prayers for my DH Pete today also

Postby SMR » Sun Apr 15, 2012 9:29 am

I'm so sorry to hear your news, but I am awed by how you are handling things. I wish you both strength and serenety during this part of your battle. Much love to you.
DH DX 10/11 st IV unkown prmry
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed

Peteswife
Posts: 218
Joined: Sat Jun 27, 2009 2:45 pm

Re: Prayers for my DH Pete today also

Postby Peteswife » Sun Apr 15, 2012 2:40 pm

Thanks to every one of you here! Peter is not doing so well! Had a fall at 3:00 am this morning because het wanted to go to the bathroom, and with all the fluids they give him. He can't remember (or don't want to) ring the bell for help. Now he is going for x-rays tomorrow morning. He was without any pain at this late stage, now he has pain. I am actually upset. I am not in denial. But I don't like to see him in pain. I called the nurses twice because the pain medicine doesn't work. I have to give him water through a syringe, and jelly and custard. His creatinine was 169 on Tuesday, and was 183 on Friday. He asked me this morning how did he get there, who booked him in. I asked if he remembers how sick he was last weekend, and if he remembers the bowel obstruction etc. No, he doesn't remember anything. But he still knows who we are. But he sleeps a lot. They are giving him decadron, some cocktail of panado and mycostatin for the eusophagus, because he can't swallow. I also saw Pantocid , maxolon etc. etc.. Tonight before I left, I called the sister on duty in the room, and asked them to wake him and ask if he wants to pp. He will say yes if he wants to, otherwise they are in for cleaning beds tonight. His HB is 9,3, he gets oxygen and that comforts him. But he couldnt eat or drink of the sores in his mouth and throat. I don't know what tomorrow holds! But, we had so much grace and peace for the last 8,5 years, and we had time to prepare. I don't want to see him suffer like this. He was always a very proud person - and very independant. Now everybody else must do everything for him. I am off te bed. It is 9:15 here now. I need some sleep, and to get up early tomorrow morning again. Love to you all!
After 8,5 years living with CRC, Pete passed away on 17/4/2012. We had lots of quality time, we said our goodbyes! I am at peace because he doesn't suffer anymore! He is now better off with the Lord! We will surely miss him very very much!!

dianne052506
Posts: 1651
Joined: Sun Nov 02, 2008 11:57 pm
Location: North Carolina

Re: Prayers for my DH Pete today also

Postby dianne052506 » Sun Apr 15, 2012 2:54 pm

Ilse,
I don't have any words of wisdom to offer, but I will offer up the prayers you requested, for pain-free time, for comfort, and for peace.
Dianne
May 06 Stage IV CC: liver,ovarian mets
Oct 07 inoperable lung mets
Feb 08 - Apr'12 chemo
allergic to oxaliplatin, irinotecan
Aug '12-Feb'14 Genentech PD-L1/Avastin trial
Mar '14 -radiation to largest lung nodule
still recovering; looking at trials again

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CheeseHead
Posts: 1171
Joined: Sat Jul 31, 2010 2:36 pm
Location: Netherlands

Re: Prayers for my DH Pete today also

Postby CheeseHead » Sun Apr 15, 2012 11:46 pm

Dear Ilse,

I'm so sorry to see this. Hope the hospital staff will be able to take care of Pete as well as possible.

Please don't forget to sleep and eat yourself...

Groete,
Cheese
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

Mona
Posts: 910
Joined: Wed Jan 19, 2011 10:27 am
Facebook Username: maria kucharek
Location: NY

Re: Prayers for my DH Pete today also

Postby Mona » Mon Apr 16, 2012 11:45 am

Ilse, I am so sorry for what you are going through right now. I am praying for no pain for Pete. I am praying for you and your family to stay strong. I am so mad at this Monster it is taking too many lives
Much love,
Maria
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri


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