Prayers for my DH Pete today also

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Prayers for my DH Pete today also

Postby Peteswife » Fri Apr 13, 2012 4:15 pm

Hi to all,
This has been a rough week. Peter had a bad Easter weekend, couldn't eat anymore, and me trying anything, built up to a massive bowel obstruction on Tuesday. After a bad night of vomiting, I realized it was bowel obstruction, and we irrigated him. We got rid of it all, after another lot of vomiting, and then he was really without any energy, just lying there. I called the oncologist rooms, and they wanted to test some blood to see what is going on. After the results, the creatinine count is up AGAIN. They admitted him to hospital, and he only got more weak since Tuesday. He only has a urination twice a day, can't get up, and is wheezing. They got him some oxygen also tonight.

After the bowel obstruction, I realized I can't do more than that, I am not a nurse, and I really wish now I was one. When the doctor asked if I want to take him home, and he knows what a fight I put up for this darling husband of mine through the last 8,5 years. I told him I am afraid to take him home. I really am, cause I realize he needs the professionals now.

I don't think he will come home, and if he does come out of hospital, he will probably go to hospice. We are also now in a position where we realize when your time has come. After 8,5 years, your body can only take so much! ...

All my love and prayers to people in the same situation. I really know how you feel.
Ilse Muller
(wife of Peter)
After 8,5 years living with CRC, Pete passed away on 17/4/2012. We had lots of quality time, we said our goodbyes! I am at peace because he doesn't suffer anymore! He is now better off with the Lord! We will surely miss him very very much!!

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Re: Prayers for my DH Pete today also

Postby pmterra » Fri Apr 13, 2012 4:28 pm

I am so sorry Ilse! I will definitely say extra prayers for Pete and for you tonight. My heart is with you, I can't imagine how you are feeling :cry:
caregiver to survivor husband
Stage 3C - Colon
surgery June, 2008
6 mo. chemo/FOLFOX & Avastin
June 2015 - 7 year survivor :)

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Re: Prayers for my DH Pete today also

Postby sadysue » Fri Apr 13, 2012 4:46 pm

Ilse...lots of prayers, peace and good wishes for you and your Pete.
Mary Ann
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012

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Re: Prayers for my DH Pete today also

Postby Bev G » Fri Apr 13, 2012 4:59 pm

My dear Ilse,

My heart goes out to you at this sad, sad time.


58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Re: Prayers for my DH Pete today also

Postby lauragb » Fri Apr 13, 2012 6:14 pm

I am so sorry to read your news. I will send prayers to you.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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Re: Prayers for my DH Pete today also

Postby Jimswife » Fri Apr 13, 2012 6:17 pm

Sorry to hear this , maybe things will turn around ? Didn't they say around 12 months ago the end was near and you signed all the hospice forms but a year passed already and Petes still here ? I'm hoping that is the case xx
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Re: Prayers for my DH Pete today also

Postby ams5796 » Fri Apr 13, 2012 6:19 pm

Ilse, You and your wonderful husband will stay in my thoughts. I wish you the best.

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Re: Prayers for my DH Pete today also

Postby fritts44 » Fri Apr 13, 2012 6:32 pm

Hi Ilse. I'm so sorry. I'll be thinking of you & Pete this weekend.

Lee F.
Lee F
RC dx 12/16/10
resection & perm colo 12/17/10
8 rounds chemo, 28 rounds radiation
finished 8/26/2011
clean scope 9/20/2011
clean CT scan 12/26/2011

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Re: Prayers for my DH Pete today also

Postby jens22 » Fri Apr 13, 2012 7:29 pm

Prayers going out to you tonight. You are giving your husband everything and you are so smart not to take him home. He needs a team to manage his symptoms. Pallative care or Hospice at a facility is a move that will provide both Peter and you with the comfort you need and deserve.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

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Re: Prayers for my DH Pete today also

Postby adina91 » Fri Apr 13, 2012 8:43 pm

Ilse - I am so sorry you and your husband are going through this right now. I hope that he is pain free and thing start looking better. I am thinking of you.
Adina 42 yo, mom of 2 sons (5,9)
11/2009 - DX-2B CC-Sigmoid resect/colostomy
Lynch Synd MSH2
1/2010 - FLOX chemo
5/2010 - Subtotal colectomy/hyster/ileostomy
Stage 3A - 1/42 LN +
8/2010 - Chemo done
10/18/2010 - ileostomy takedown
2010 - 2015 - NED
5/1/15 - "suspicious" area in liver on CT
5/14/15 - follow up PET says no metastatic disease
6/19/15 - MRI - NED!

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Re: Prayers for my DH Pete today also

Postby RixInPhx » Fri Apr 13, 2012 10:39 pm

I'm sorry things are going so poorly for Pete.
At least he has some relief in the hospital.

Prayers and best wishes to you both,
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

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Re: Prayers for my DH Pete today also

Postby Patience » Sat Apr 14, 2012 6:17 am

My thoughts are with you, and hope for a restful and peaceful weekend of improvement.
"Sweet dreams till sunbeams find you.
Sweet dreams that leave all worries behind you."

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Re: Prayers for my DH Pete today also

Postby prtza » Sat Apr 14, 2012 6:26 am

Thinking of you both.

DX CRC 2/29/12 Signet Ring Cell @44 YOA
Left hemicolectomy 3/9/12
T4N2M0 Stage IIIc 10/11 LN
April-June 2012 30 treatments chemoradiation
6 cycles XELOX 7/11/12-11/7/12
12/7/12 NED
Recurrence Jan '13
Starting FOLFIRI 2/20/2013

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Re: Prayers for my DH Pete today also

Postby Sophy » Sat Apr 14, 2012 6:29 am

My thoughts and prayers are also with you. Your loving enjoyment of your time together is always an inspiration. Hoping that you will be able to share many more times with your special husband.
dx T3N1M0 Feb 11 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
June 2020 CT shows nodule, bronchoscopy shows scar tissue, still NED
Dec 2020 stopping Chemo

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Re: Prayers for my DH Pete today also

Postby KarMel » Sat Apr 14, 2012 6:41 am

Prayers being lifted for Pete and you and your family. If it is time for Hospice,I pray you find a place where there is freedom from pain and nausea and he will be in a caring , compassionate place.

Your love for each other is so evident in everything you post, I truly admire your courage and strength.
Stage IV, April 2009.
Treatments...multiple .
Currently none
"It is well, with my soul"

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