Here's the plan. Hope it works!

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Here's the plan. Hope it works!

Postby Terry » Sat Mar 24, 2012 1:18 pm

So I saw the radiation oncologist yesterday because this tumor in this nose has taken on a life of it's own. I'm sure because they cut into it to biopsy it, for some reason you cut into MY cancer and it gets really pissed off and says "I'll show you" and spreads!

Anyway, I go and get fitted (scanned in the head first) for a mask on Monday and they want to start A.S.A.P. so either Wed. or Thurs. I'll be starting radiation. Right now I have complete occlusion and it's just about to be on the outside of my nose. It's the ugliest thing I've ever seen. He said it won't put a hole in my face which I was a little worried about. He's also going to radiate the thyroid too since it also has rectal cancer in it. These docs just can't believe that my cancer has spread to the thyroid and nose, they thought for sure it was a new cancer.

They're doing another surgery like I just had done and the liason had to make sure she came and told me that. I guess not many have been done. It's not the colostomy part, it's the removing a tumor from the S1 S2. I really think that's why the guy at Froederdt dinked around and wanted to send me to Ohio, because he had never done it. Well now they can send patients to Green Bay which they called (well they didn't, but one of the nurses did) hick doctors. Hmmm, Deanna Farve had her breast cancer treatment there and the rest of the packers have stuff done there so I doubt it's full of hick docs.

Anyway, that's the plan. I'll be doing that and Folfox, yippee! I'm hoping I can do both. I had to go in last week Monday and have 2 bags of fluids, potassium, a GI cocktail and they gave me a bunch of new drugs from the first folfox. I've had it twice already and it never made me so sick. I guess what doesn't kill you only makes you stronger, right!;) Maybe since it's making me so sick it will actually work :roll:

Hugs and prayers you all!
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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Re: Here's the plan. Hope it works!

Postby Icesk8tr » Sat Mar 24, 2012 1:35 pm

Hugs and prayers to you Terry. That's alot to deal with. I'm glad they are going ahead with a plan quickly.
I will be praying very hard for you, for a successful outcome.

Stage IV CC 2010

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Re: Here's the plan. Hope it works!

Postby soccermom » Sat Mar 24, 2012 2:58 pm

Stay strong. I am amazed at the strength of the people on this forum. Praying for you.
Stage 2A colon cancer
T3 N0 M0
0/21 lymph nodes
Jan 2012 to June 2012 Folfox
9 rounds of oxi

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Re: Here's the plan. Hope it works!

Postby dj2158 » Sat Mar 24, 2012 3:09 pm


you are so unbelievable!! you are like the energizer bunny, you just keep on going, and going, and going............. i am hoping and praying that all this stops for you. i just don't know how you are doing this. i wish my grandmother was still here and she could get her candles and blessed oil and take the evil away from us. i wish you all the best.

love, donna
Dx 10/'07 age 54 3CC Sigmoid 1/25 nodes lap
Folfox 11/'07-4/'08
Vats Lung 7/'09 met
Vats Lung 7/'10 two mets, Irinotecan/Xeloda 9/'10-2/'11
Lung Resec, 3 1/2 rt ribs 4/'12
10-15 spots both lungs & 1.4cm nodule, 7/'12
xeloda & avastin 9/'12

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Bev G
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Re: Here's the plan. Hope it works!

Postby Bev G » Sat Mar 24, 2012 5:24 pm

Praying for you, sweet Terry.

Much love and many hugs to you, I wish I could deliver them in person.

58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Re: Here's the plan. Hope it works!

Postby JanC09 » Sat Mar 24, 2012 5:57 pm

Good thoughts for a quick and successful treatment!!
Virtual hugs to you
JanC09-Age59-Feb'08 Stage IIIc
Folfox,12 tx.
recurrance March'10
Folfiri, 10 tx
Radiation on pelvis, 28 tx
SBRT July '11
Folfiri March'12-June'12
Avastin only July'12-Feb.'13
Xeloda+Avastin- Feb'13-Oct'14
Irinotecan/Avastin- March'15 -4tx then scan

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Joined: Fri Feb 06, 2009 10:07 am

Re: Here's the plan. Hope it works!

Postby ams5796 » Sat Mar 24, 2012 6:13 pm

Terry, I'm sending you my best. You are amazing.

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Joined: Tue Jun 22, 2010 2:28 pm

Re: Here's the plan. Hope it works!

Postby seva » Sat Mar 24, 2012 6:43 pm

I hope your tx is successful. Sending prayers your way

RC 10/09
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!

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Ashlee H.
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Re: Here's the plan. Hope it works!

Postby Ashlee H. » Sat Mar 24, 2012 7:19 pm

Gosh Terry - I just don't know what to say. You are such a strong person and putting those of us with wimpy complaints in our place! Hugs and prayers to you.
Stage IV w/liver met dx 7-1-09
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga

Seriously, WTF?
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Re: Here's the plan. Hope it works!

Postby Seriously, WTF? » Sat Mar 24, 2012 7:36 pm

tons of love your way!!! xoxoxoxoxo

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Re: Here's the plan. Hope it works!

Postby scattered edge » Sat Mar 24, 2012 7:40 pm

Terry - you're an awesome fighter. Sending warm wishes, strongest thoughts, many prayers and positive energy your direction.

resection 2/11/11
T3N2M0 (17/24LN)
joined the IV olympians ..... 7/12 mets to distant nodes
mets to pancreas, liver, spine
chemo for life, panitumumab for now

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Re: Here's the plan. Hope it works!

Postby live2jett » Sat Mar 24, 2012 8:56 pm

Hi Friend,
Sounds like a great plan!! I love you pal....and rooting for you:)
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014

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Joined: Wed Jul 20, 2011 3:43 pm
Location: Houston, TX

Re: Here's the plan. Hope it works!

Postby las » Sat Mar 24, 2012 9:35 pm


I am praying for you and hope it works, I don't know how you are handling this, but fight this and I hope they are able to zap it. Why can't they cut it out? That might be a stupid question or you might have already explained this.

Fiance DX 6/27/11 CC IV w/liver mets,adrenal glnd,pet.
7/25/11 folfox
8/2/11 surg.colon wall removal of tumor
8/24/11 folfox ,3/12 5FU, 5/12 irinitecan failed, 7/12 didn't qualify regronfenib
8/13/12 Hospice, 8/18/12 married, died 9/10/2012

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Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Here's the plan. Hope it works!

Postby NWgirl » Sat Mar 24, 2012 10:16 pm

Thinking of you Terry.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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Location: Phoenix

Re: Here's the plan. Hope it works!

Postby RixInPhx » Sat Mar 24, 2012 10:25 pm

Keep fighting, girl, you have my best wishes for complete success ASAP.

M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

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