Benefit
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sandrichelle
- Posts: 396
- Joined: Tue Feb 21, 2012 10:31 am
- Location: Albany, NY
Benefit
Family and friends are throwing a benefit for me...def not my idea but helps them in this healing process so I am ok with it. Was wondering if anyone knew if the large colon that I hear of so often is rentable for events?
Dx Stage IV CC 02/12-56.1 CEA
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com
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Bev G
- Posts: 5856
- Joined: Thu Jan 07, 2010 11:19 pm
- Facebook Username: Bev Golde
- Location: Quechee, VT
Re: Benefit
Hello:
I'm sorry I don't know the answer to your question, but I'm bumping you up, hoping someone else knows. I wish you so much luck with the benefit. I'm glad your family/friends are doing this for you.
Bev
I'm sorry I don't know the answer to your question, but I'm bumping you up, hoping someone else knows. I wish you so much luck with the benefit. I'm glad your family/friends are doing this for you.
Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
Re: Benefit
The Colon Club has one to rent, it is pricey, depending on where in the, because of shipping, it can be upwards of $10,000 to get her to an event. here is the link:
http://www.colonclub.com/the-colossal-colon/
I have seen another one in the Northwest are, Belle AKA NWGirl, I think Anita used it recently. I wonder where that one is from and the cost?! I also heard that maybe CCA has one too.
The problem is these traveling "Colons" are BIG and HEAVY and costing to ship around. But I do know there are several out there now.
Good luck and let us know what you find out!!
http://www.colonclub.com/the-colossal-colon/
I have seen another one in the Northwest are, Belle AKA NWGirl, I think Anita used it recently. I wonder where that one is from and the cost?! I also heard that maybe CCA has one too.
The problem is these traveling "Colons" are BIG and HEAVY and costing to ship around. But I do know there are several out there now.
Good luck and let us know what you find out!!
Blessings,
Liz DENNIS
Tempe,AZ
DX 05/06 Rectal
6 Weeks radiation with 5FU
LAR 10/06 Stage III
Temp Ileo, reversal failed in 05/07 after 1m in hospital came out with a permanent colostomy
http://www.runlizrun.com
Liz DENNIS
Tempe,AZ
DX 05/06 Rectal
6 Weeks radiation with 5FU
LAR 10/06 Stage III
Temp Ileo, reversal failed in 05/07 after 1m in hospital came out with a permanent colostomy
http://www.runlizrun.com
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sandrichelle
- Posts: 396
- Joined: Tue Feb 21, 2012 10:31 am
- Location: Albany, NY
Re: Benefit
I will check it out...thanks!
Dx Stage IV CC 02/12-56.1 CEA
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com
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