Don't look if you have a weak stomach/update 3/17

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Terry
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Re: Don't look if you have a weak stomach

Postby Terry » Thu Mar 15, 2012 2:26 pm

It seems to be getting a little better every day. I keep hoping they made a mistake and maybe it was just circulating tumor cells in the blood they picked up and not really a cancerous tumor. It's pretty big a oogly though.

Thanks for the prayers:)
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

clarabelle64
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Re: Don't look if you have a weak stomach

Postby clarabelle64 » Thu Mar 15, 2012 2:29 pm

Dear Terry, it's great to know that tumour is drying up and shrinking....damn thing, it's unbelieveable how the CC has done this to you...I loathe and despise this disease. God speed on your healing journey Terry, the chemo is working!!
Clarabelle
Clarabelle, Mother of Deborah who has CC with mets to liver + lungs.
Has been on Folfiri then 5FU + Oxi
Lung Mets progressed
Currently on Intravenous Vit C + diet + supplements
My darling girl passed away 18.8.2011

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live2jett
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Re: Don't look if you have a weak stomach

Postby live2jett » Thu Mar 15, 2012 3:45 pm

That is a PUNK cancer ...unbelievable pic friend...come on CHEMO:)
Age:51
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014

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BrownBagger
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Re: Don't look if you have a weak stomach

Postby BrownBagger » Thu Mar 15, 2012 4:03 pm

Forgive me for delaying taking a peek, Terry. I'm about up to my neck in blood and guts stuff.

Of course, all the best to you & I hope you're right about what's happening with that ugly little sucker.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

disco nap
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Re: Don't look if you have a weak stomach

Postby disco nap » Thu Mar 15, 2012 4:49 pm

Terry, you have been through so much and tolerated so much - I'm so impressed with you. You are quite inspirational -stay strong, Girl! You've come this far! Bulletproof!
DX July 2 '10 CC Stage IIIC, 11/18 nodes+
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 2012: Lynch Syndrome MLH1
"Declared well" and been well ever since.
Update: Oct 2019 - still NED.

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Terry
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Re: Don't look if you have a weak stomach

Postby Terry » Thu Mar 15, 2012 10:44 pm

There's not much info on the web about mets from cr cancer to the nose, what I did find isn't good. There was a 52 y.o. female (I'm 51) in 2008 and she died 3 months after diagnosis. She only had radiation, no chemo and it was also spread to the brain which according to them mind is not.

SCAREY!

I'm ready if that's the case. The Lord has kept me here for Holly until she can handle it. Our church family and our famiy will help Troy and the kids through. Shana (my oldest) is strong and will be O.K. and help too. I think when the Lord knows I'm suffering he'll take me and I'll be O.K. with that.

What else is there to do. I'm still fighting, until my last breath I will fight.
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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Bill5107
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Re: Don't look if you have a weak stomach

Postby Bill5107 » Fri Mar 16, 2012 12:14 am

Terry wrote:Thanks Bill Lilb for fixing my avatar for me:) I was about 36 there. Advice to those that smoke don't want until your in your 50's you get those ugly lines around the mouth which you can see in the picture of my nose tumor. Ugly! I've been quit for a while and they ain't going no where! So don't do it if possible.

Thanks again Bill!:)

Wow...that's quite interesting Terry. I bet it feels good to be able to see direct confirmation that chemo is working!

As for the pic, any problem Terry! They are easy to do!

Thanks for the PSA too! I have been trying to share my new line in this respect: Quit early and quit often! I never smoked myself, and it always turns me off when folks I know and care about, even strangers, smoke. I don't like others polluting my air. . . makes me want to load up on eggs cabbage and whatever else will make me gassy and rank so I can go upwind from a smoker at the store entrances and share with them an example of how inconsiderate they are being.

But that would be evil, wouldn't it? Really what I wonder is if there is anything anyone could have heard when they were young to have avoided taking up smoking in the first place :roll:

I'm always glad to hear about folks successfully stopping. I have a few friends also sworn off drinking too recently. We'll see how that goes to. I really know nothing about supporting folks in these things!

But back to you Terry, you are quite the fighter. You are one of my inspirations actually in terms of more and more treatments being available. . . with my recurrence, I really was having trouble with seeing that I had any real options. . . even though I just started my new journey. I do thank you as one of the folks who shares how much hope and room there can be even as this disease progresses.

Wishing you the best Terry.
2010-07-02 Dx rectal cancer (Stage 3)
'-07-21 Chemoradiation
'-10-13 APR surgery, 10/18 nodes still active
'-11-22 12x2wk rnds FOLFOX
2011-12-07 Mets X-P
Don't retreat, reload!

Deirdre
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Re: Don't look if you have a weak stomach

Postby Deirdre » Fri Mar 16, 2012 12:18 am

Terry

Unbelievable pic. I hope that its blitzed ASAP for you. You are so strong & you are in many many thoughts right now.

Takecare
D
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!

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Candyys03
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Re: Don't look if you have a weak stomach

Postby Candyys03 » Fri Mar 16, 2012 8:39 pm

Wow!
Praying for you Terry!
Candy
DX8/0642yrIVCCmtsliver
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07oxy
08livernonop
08iri+erb
1/09opliver
NED11m
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Grace14
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Re: Don't look if you have a weak stomach/update 3/17

Postby Grace14 » Sat Mar 17, 2012 8:56 am

OMG Terry that picture is crazy!! I can't believe that it can spread to the nose!! I hope the chemo zaps everything away Terry! I admire you so much! Your a great person always there for everyone! I hate that this is happening to you or any of us..life is so unfair sometimes!! God Bless!!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

lauragb
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Re: Don't look if you have a weak stomach/update 3/17

Postby lauragb » Sat Mar 17, 2012 10:36 am

I'm no expert on tumors but I think the vascular parts look lighter and while it does look a little more spread out, it also
looks somewhat deflated. Let's hope it's cells are dying rapidly.

Light and prayers to you.
Laura
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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CheeseHead
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Re: Don't look if you have a weak stomach/update 3/17

Postby CheeseHead » Sat Mar 17, 2012 10:45 am

Terry,

Very weird that it got into you nose... but really hoping Folfox will kick the crap out of it.

At least (however gross it is) you have a fairly easy way of seeing (and feeling) if the Folfox is helping.

All the best,
Cheese
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

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Icesk8tr
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Re: Don't look if you have a weak stomach/update 3/17

Postby Icesk8tr » Sat Mar 17, 2012 11:11 am

Terry,
I hope the chemo destroys it all. Sending good thoughts and prayers your way.
You are a tough one and I admire your diligence.

Christine
Stage IV CC 2010

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Terry
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Location: Silver Cliff, Wisconsin

Re: Don't look if you have a weak stomach/update 3/17

Postby Terry » Sat Mar 17, 2012 11:27 am

I thought it looked less vacscular too. I would think that's a good thing, but what do I know. All I know is it scares me, I'm afraid it' going to go to the brain. Only thing good about that is that I'll probably go into a coma, hopefully, pretty quick or not know what's going on. Hard for my family though.

The only reason I'm posting is so you guys can help me judge what you think it's doing (larger, smaller, less or more vascular, whatever).

Thanks all!j

OH AND JUST AN FYI, it is VERY, VERY, VERY rare for it to go to the nose so don't worry. I can only find one person on the inet that's even had this. Leave it to me to be one of the lucky one :shock: s
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

gracie
Posts: 110
Joined: Tue Feb 23, 2010 10:37 am

Re: Don't look if you have a weak stomach/update 3/17

Postby gracie » Sat Mar 17, 2012 3:52 pm

Terry it may look a little bigger? But the color has changed. Probably for the good)
What did the Doctor say about it?

As close as it is to the 'Outside' it may be moving out?
Be on the guard for that as you may need to take it to the Doctors for an exam.

(they told me I might lose my rectal tumor before the treatment was finished, but I didn't).

Hopefully the Chemo is doing what it is suppsose to do.

I wish you the very best and keep us posted.

gracie
rectal cancer DX Sept 9th of 09 (stage 3)
chemo/rads 6weeks starting Nov 09
Surgery April 13 2010
chemo/ 5FU and Oxi starting 6 sessions (developed blood clots, heart and breathing problems)
suppliments with Naturepath Dr 2010


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