Don't look if you have a weak stomach/update 3/17

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Terry
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Location: Silver Cliff, Wisconsin

Don't look if you have a weak stomach/update 3/17

Postby Terry » Wed Mar 14, 2012 3:43 pm

This is the tumor in my nose. It was all gray, now showing some red so hopefully drying up and dying!

Image
Hopefully this shows up.





Image

Is it getting bigger? Hard for me to tell almost looks bigger.
Last edited by Terry on Sat Mar 17, 2012 4:19 am, edited 1 time in total.
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

NWgirl
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Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Don't look if you have a week stomach

Postby NWgirl » Wed Mar 14, 2012 4:43 pm

Whoa. Amazing pic - I hope the next one shows less tumor. This just sucks Terry, I'm so sorry you are having to go through this.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

lauragb
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Re: Don't look if you have a week stomach

Postby lauragb » Wed Mar 14, 2012 5:02 pm

Tumor be gone! Terry, is this a primary or colorectal met?
The beast sure hops around. I just want you to know your response
to my post about chemo or no chemo is one of the reasons I am
doing adjuvant chemo. I appreciated your frankness.

It's clear you are strong and fighting. I'm praying for you all the way!

Keeping you in the light. Laura
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

adina91
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Re: Don't look if you have a week stomach

Postby adina91 » Wed Mar 14, 2012 5:30 pm

Wow! What a crazy/amazing picture! Here's to that nasty nose beast shriveling up and dying!!!! Thinking of you!
Adina 42 yo, mom of 2 sons (5,9)
11/2009 - DX-2B CC-Sigmoid resect/colostomy
Lynch Synd MSH2
1/2010 - FLOX chemo
5/2010 - Subtotal colectomy/hyster/ileostomy
Stage 3A - 1/42 LN +
8/2010 - Chemo done
10/18/2010 - ileostomy takedown
2010 - 2015 - NED
5/1/15 - "suspicious" area in liver on CT
5/14/15 - follow up PET says no metastatic disease
6/19/15 - MRI - NED!

disco nap
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Re: Don't look if you have a week stomach

Postby disco nap » Wed Mar 14, 2012 6:30 pm

wow, that is fascinating, Terry, does it interfere with your breathing at all, it looks like it might?
DX July 2 '10 CC Stage IIIC, 11/18 nodes+
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 2012: Lynch Syndrome MLH1
"Declared well" and been well ever since.
Update: Oct 2019 - still NED.

beth568
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Joined: Fri Mar 25, 2011 7:49 am
Location: Boston area, MA

Re: Don't look if you have a week stomach

Postby beth568 » Wed Mar 14, 2012 7:49 pm

Oh, dear, that looks uncomfortable. :(

Now it needs to shrivel up and GO AWAY!
Beth
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net

KimT
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Joined: Sat Feb 20, 2010 8:53 pm

Re: Don't look if you have a week stomach

Postby KimT » Wed Mar 14, 2012 8:06 pm

Wow! Hoping it shrivels up and dies soon. Were you having any symptoms?
2/10 dx colon cancer
right hemicolectomy 3/19/10
Stage 2a 0/43 nodes
Lynch syndrome
3/14/10 colon resection/ removal of metal clips
Nov 11 dx ovarian cancer

Granny
Posts: 345
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Re: Don't look if you have a weak stomach

Postby Granny » Wed Mar 14, 2012 8:12 pm

What are they doing to get rid of this?
Sending prayers for you.
Granny

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Russian27
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Re: Don't look if you have a weak stomach

Postby Russian27 » Wed Mar 14, 2012 8:55 pm

Terry many hugs ans best wishes go your way.
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015

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edinaman
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Location: Minnesota

Re: Don't look if you have a weak stomach

Postby edinaman » Wed Mar 14, 2012 8:57 pm

Terry, that looks uncomfortable. Is there a plan to get rid of it, or just wait and see if it dies? You know, with your title, you have to look. It's like when a waitperson says to be careful the plate is hot, and of course you have to touch it. Or when you see a wet paint sign.
Jeff
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

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Terry
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Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: Don't look if you have a weak stomach

Postby Terry » Wed Mar 14, 2012 9:09 pm

Oops, double post.
Last edited by Terry on Thu Mar 15, 2012 2:23 pm, edited 2 times in total.
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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Terry
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Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: Don't look if you have a weak stomach

Postby Terry » Wed Mar 14, 2012 9:09 pm

It actually looks better than it did Sunday believe it or not. Yes my breathing on that side of the nose was completely 100% occluded, until yesterday when I could blow out of it just slightly, today I can actually suck in just a little so hopefully the chemo is working.

It's a mets. from the colorectal cancer which just astounds my docs, they've never heard of cr cancer metastasizing to the thyroid or nose. Yes thyroid. I thought it was a node by the thyroid but it's in the thyroid. They were going to cancel chemo again until have this taken out of my nose but decided to do chemo and try and shrink it. I believe since surgery for me means cancer spread that's what they were afraid of. Me too!

I'm actually doing much better with the folfox this time, maybe because it's folfox and not xelox, maybe because of the resveratrol, graviola or all the gatorade, or all combined. I don't know but so far I'm tired off and on and get a stomach ache about 4 to 6 pm, take a prilosec and compazine (had emend) and feel better, so can't complain :wink:

Had some good talks with my husband and daughters and some friends about being ready when I feel I can't do this anymore and they understand. I'm more concerned about my husband at this point. I'm glad I'm ready and glad I've come to realize that my husband is going to be so terrible lonely and sad. Not happy that he's going to feel that way, but glad to realize it and he's opening up so I can take this time to help him through.

Oh hell let's face it, I'm not going anywhere for a couple of years yet anyway! I have to get Holly and Keith #2 married (my oldest daughters DH is named Keith) and be there for her to have her first baby. So I'll be here for awhile. I also want my grandkids I have now to be old enough to remember me. Need to get my sheep and care for them, our free range chickens for organic eggs and I'd love to be able to get a few alpacas but to much money to buy.

All I know it right now the world is good and I'm hanging in here and kicking this pac man but things they eat;)

Prayers and hugs you all!
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

User avatar
Terry
Posts: 5536
Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: Don't look if you have a weak stomach

Postby Terry » Wed Mar 14, 2012 9:21 pm

Thanks Bill Lilb for fixing my avatar for me:) I was about 36 there. Advice to those that smoke don't want until your in your 50's you get those ugly lines around the mouth which you can see in the picture of my nose tumor. Ugly! I've been quit for a while and they ain't going no where! So don't do it if possible.

Thanks again Bill!:)
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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Kathleen808
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Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: Don't look if you have a weak stomach

Postby Kathleen808 » Thu Mar 15, 2012 12:56 am

Wow Terry, that picture is incredible. I hope it gets smaller and smaller.

Holding you in prayer.

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: Don't look if you have a weak stomach

Postby Lee » Thu Mar 15, 2012 11:19 am

Wow Terry,

That is something. I hope the chemo knocked the crap out of that tumor. Good luck with the chemo and radiation, I'm rooting for the pac man to eat all those bad cells.

Give em hell Terry,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!


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