The Colon Club

macpudd wrote:Hope the procedue goes well and quick recovery Eleda, likewise for everyone hear. Just leavnig home now to start my Avastin this morning, onc says it should maintain quality of life but wont really prolong things. So sad to hear whats happening in New Zealand, ther aer so many evil people donig bad things.

Eleda wrote:Hi Anne,,, yes thus Thursday

MissMolly wrote:Lake swim:
You are commenting about newfound hip/pelvis pain following chemo radiation and wondering “What’s up?”

I was a physical therapist before chronic ill-health found me and treated many individuals following radiation therapy. Radiation has known effects on the connective tissue that comprises ligaments (anchor soft tissue to bone) and tendons (anchor one bone to another bone). Ligaments and tendons become hardened, less elastic, less pliable, sticky and tacky, and sometimes “frozen.”

Think of a normal elastic rubber band that is dynamic and easily elongates (pre-radiation) that becomes a aged remnant of parched, dry elastic pocketed with surface cracks, with little ability to elongate and that actually breaks as tension is applied.

The hip joint capsule and sacro-iliac joints are particularly vulnerable to radiation. The hip joint capsule thickens and constricts and becomes tacky, manifested as restricted joint movement for external rotation and abduction (movement away from body midline). Crossing one leg over the other will feel tightened or restricted as will sitting cross-legged. Putting on a pair of shoes can be difficult. Assuming a lunge position will feel acutely tight or restricted in the buttocks muscle.

Small micro-movements of the sacro-Iliac joints allow for ease of cloning up and down stairs, as an example. Going up an incline or climbing a series of stairs will be more discomfiting due to radiation effects on the SI joints. SI joint pain is not well localized and is oft felt as referred pain to the hip.

Gentle stretching for the hip, hip joint capsule, and SI joints can be helpful. Slow, slow and gentle stretching. You want to avoid further trauma and micro-years to the ligaments and tendons. Avoid quick, bouncy or ballistic nor movements/stretching. Consult with a personal trainer or physical therapist to help devise a home program of gentle stretches tailored to you. It can be time well invested.
Karen

MissMolly wrote:Lake swim:
You are commenting about newfound hip/pelvis pain following chemo radiation and wondering “What’s up?”

I was a physical therapist before chronic ill-health found me and treated many individuals following radiation therapy. Radiation has known effects on the connective tissue that comprises ligaments (anchor soft tissue to bone) and tendons (anchor one bone to another bone). Ligaments and tendons become hardened, less elastic, less pliable, sticky and tacky, and sometimes “frozen.”

Think of a normal elastic rubber band that is dynamic and easily elongates (pre-radiation) that becomes a aged remnant of parched, dry elastic pocketed with surface cracks, with little ability to elongate and that actually breaks as tension is applied.

The hip joint capsule and sacro-iliac joints are particularly vulnerable to radiation. The hip joint capsule thickens and constricts and becomes tacky, manifested as restricted joint movement for external rotation and abduction (movement away from body midline). Crossing one leg over the other will feel tightened or restricted as will sitting cross-legged. Putting on a pair of shoes can be difficult. Assuming a lunge position will feel acutely tight or restricted in the buttocks muscle.

Small micro-movements of the sacro-Iliac joints allow for ease of cloning up and down stairs, as an example. Going up an incline or climbing a series of stairs will be more discomfiting due to radiation effects on the SI joints. SI joint pain is not well localized and is oft felt as referred pain to the hip.

Gentle stretching for the hip, hip joint capsule, and SI joints can be helpful. Slow, slow and gentle stretching. You want to avoid further trauma and micro-years to the ligaments and tendons. Avoid quick, bouncy or ballistic nor movements/stretching. Consult with a personal trainer or physical therapist to help devise a home program of gentle stretches tailored to you. It can be time well invested.
Karen

Eleda wrote:HI SUSAN
I'm not Gona lie ,, ITS ROUGH!!!!!
I may have turned a corner today??? Lol
Slept for 5hours last night and only 5 times to the toilet this morning ( from 7/11am) clean up is less today which makes all the difference ( skin is in bits)
It's like radiation all over again
Accept for me ( very little bowel control this time ) " no fun"!!!!!!!!!!


But as you know everyone is so different, I hope u will do better ,,
Anything I can help with just ask
ADELE X

Eleda wrote:HI SUSAN
I'm not Gona lie ,, ITS ROUGH!!!!!
I may have turned a corner today??? Lol
Slept for 5hours last night and only 5 times to the toilet this morning ( from 7/11am) clean up is less today which makes all the difference ( skin is in bits)
It's like radiation all over again
Accept for me ( very little bowel control this time ) " no fun"!!!!!!!!!!

I'm waiting to see a continance nurse so that might help,
When u have hemies,( inside and out) it's very painful to try hold poo in.......
But today it was the first day that there was very little clean up after a poo( firmer)
Today slightly thicker than a jelly snake lol( not sure u have them in the US) usually ( since surgery) the with of my baby finger.......
But I'll keep up the good fight lol
Stock up on all Ur previous meds from radiation, and add adult pull ups or pads( not much help but a catcher net for poo) poo doesn't absorb into a pad so try get it off immediately because for me it's very acidy and that's burning the skin!!!!
I've added psyllium husk 2 days ago 1x teaspoon
Then 2x teaspoons yesterday and today at breakfast time with half a banana
That might b helping???????
I've tried the fasting I was so desperate for relief, and it worked the opposite for me ( clustering and soft poo)
But as you know everyone is so different, I hope u will do better ,,
Anything I can help with just ask
ADELE X

Eleda wrote:HI SUSAN
I'm not Gona lie ,, ITS ROUGH!!!!!
I may have turned a corner today??? Lol
Slept for 5hours last night and only 5 times to the toilet this morning ( from 7/11am) clean up is less today which makes all the difference ( skin is in bits)
It's like radiation all over again
Accept for me ( very little bowel control this time ) " no fun"!!!!!!!!!!

I'm waiting to see a continance nurse so that might help,
When u have hemies,( inside and out) it's very painful to try hold poo in.......
But today it was the first day that there was very little clean up after a poo( firmer)
Today slightly thicker than a jelly snake lol( not sure u have them in the US) usually ( since surgery) the with of my baby finger.......
But I'll keep up the good fight lol
Stock up on all Ur previous meds from radiation, and add adult pull ups or pads( not much help but a catcher net for poo) poo doesn't absorb into a pad so try get it off immediately because for me it's very acidy and that's burning the skin!!!!
I've added psyllium husk 2 days ago 1x teaspoon
Then 2x teaspoons yesterday and today at breakfast time with half a banana
That might b helping???????
I've tried the fasting I was so desperate for relief, and it worked the opposite for me ( clustering and soft poo)
But as you know everyone is so different, I hope u will do better ,,
Anything I can help with just ask
ADELE X