mozart13 wrote:I had 25 sessions of chemo/rad(xeloda/radiation), cancer completelly erased. Almost 2 years ago, still negative.
Felt tired after those 25 sessions, but overall not bad. Pushed to have folfox after, my surgeon was ok with that. He thought that 10 rounds was a bit over killing. Managed to get 8 in, plus 2 xeloda rounds.
Neuropathy from oxylaplatin setlled inn, and ain't going any where, but it's small price to pay. Didn't need surgery, am on close observation.
Sometimes I get burning sensation where radiation was, my surgeon says that radiation works for years.
Peak of radiation is about 16,17 weeks from the start of radiation, probably the best time to start with chemo, folfox (TNT-new trend), as oxylaplatin is very potent, specially when combined with radiation.
Hi thanks so much .. could you tell it had worked after the 25 weeks ? Or did you have no idea ? That's interesting having chemo without surgery, I thought if they put you on "watch and wait" they didnt give chemo ? Was there a reason ? Did you have bad side effects ? Xxxx Annie xxx
There is another tread on this forum with a lot's of useful links and info:
Eleda wrote:I'll do that no problem Anne,,,it was 2.5/3cm above AV so really really low, apparently TATME is mainly used for men ( narrow pelvis, or grossly obese) but yes as u said becoming very popular,,
I'm fact I had chosen against this surgery with the other surgon but in the end had it with my original one,,,,, I had quite a bit removed because I also had a polop at 15cm and 6 effected lymphs, so my complete misseorectal envelope was removed this way
So it can be done
mozart13 wrote:Hi Annie!
W&W approach is changing.
Used to be only chemo/rad, risk was high, one doesn’t know if any microcell is left in the body, or not. That extra chemo is to wipe out those questionable microcells.
California was most advaneced, they have been doing this kind of approach for more than 10 years. Originally started in Brazil, so call Habr-Gamma, it has evolved since than.
Memorial sloan hospital from NY is lead hospital in big study when it comes to that kind of approach:
https://www.mskcc.org/clinical-updates/ ... alResearch
They call it Total neadjuvent therapy. Even people that don’t have complete clinical response and need surgery benefit from this kind of approach, as is very often dificullt to start and complete chemo right after surgery.
I did know that my cancer is gone after 25 sessions of chemo/rad,they call it complete clinical response. It was my choice to have extra chemo( folfox) after, would do it again regardless of symptoms.
I did a lot’s of research on my own.
Always check with your surgeon and oncologist what is best approch for you personally, at the end they are professionals.
Good luck to you!
Eleda wrote:Sorry Anne, I missed Ur reply,,, IIf u saw me also
I LOOK THE PICTURE OF HEALTH LOL
If I knew how to upload a picture I would lol
I know it seems weird that the symptoms begun near end of radiation, but have no explanation as to why,,, after they did disappear,
When are you due to have Ur sigmoid????
I remember the night before mine feeling sick with worry that it didn't shrink,,,,,,
I did everything possible to help Inc ,,,
I had VIT C INFUSIONS
CANABIS OIL etc
U have done what u can, NOW it's only wait to see results
Finger's crossed it's enough
Eleda wrote:Hi Anne,
I had a sigmoid after my radiation,, 8 weeks after if I remember correctly, because apparently would be too sore any earlier,,,, no scan or MRI at that stage,,,
Then organised surgery,,, was able to talk to the surgon during sigmoid so was good,,,
No waiting for results
( That kills me " the waiting" ) booked in the surgery that week!!!!
Going for gastro enema Tomorrow for leek check,,,
Again,,,,, slightly anxious, evan tho I'm sure id know if there was a leek,,,,
Back to surgon Dec 7th to book reversal
When is Ur next proceedure???
Eleda wrote:A Very skilled surgeon I think Anne,
yes just inside,,
He can feel it with his finger in an exam
( Great fun lol)
It s 17 weeks from beginning so u seem to be on track,!!!
We take a lot from the USA in relation to proceedure but then again
Apparently new protocol is now 3 months adjuvant chemo but a lot of Americans on here are still doing 4/6 months!!! Do u know the name of Ur surgon???
My sigmoid was 17 weeks after begining radio
Eleda wrote:It's the chemo after surgery Anne
I was on folfox( 5FU & Oxaliplatin) for 3 months,,,,
only Finnish last Tuesday,,,, I had 6 OXI and 85FU because of an allergic reaction innitally to OXI......
Looks like Ur in good hands Anne
https://www.iwantgreatcare.org/doctors/ ... ziz?page=2