Eleda wrote:Hi Susan,,, that's Great,,, I'm in in end of February,,,,
I'd be curious to see the diet involved,,, pictullarly because I've again gained 2st during Chemo,,,,
ADELE X
lakeswim wrote:Annie....ps... you must be doing TNT AS WELL you are at a similar place in treatment as me!
susie0915 wrote:That is awesome news. . The watch and wait option is very interesting to me. Losing most of your rectum and having surgery causes a whole set of new problems. I have figured out what works for me but there are definitely lasting side effects from both the surgery and chemotherapy. I know there is an option of doing additional chemotherapy and no surgery as well. I know it is a tough decision, I wish you luck.
Eleda wrote:OMG ANNE
Thats amazing, couldn't have asked for anymore,,,,
Anxiety over for a while now lol
It shows dark on an MRI,,,,
Non surgical would be Watch & Wait!!!!!!!!!
Follow lakeswim,,, she's where u are ATM , so would be very helpful,,,,
There's pros and cons to both!!!!
Only con I can see with non surgical is anxiety of reacurance ( I personally couldn't deal with that)
I was throwing up the day before my sigmoid to check on shrinkage!!!!!!
I'm generally not anxious person,,, but when it comes to this cancer,,, I'm always afraid of my next scan etc
But on the flip side u won't have any of the possibility of LARS
Then again who knows how u will be after a reversal
No one knows until it's done!!!!
Uve a lot to think about here with life-changing concaquences either way!!!!
Only u can decide what's best for u
But definitely talk to people here who were n Ur position,,, because until Ur faced with it I don't think u can understand the predicament
I'm so happy with Ur good news,, Long may it last
Adele X
Hi Adele .. hope you are ok ? Yes I can't really believe it .. ! I sort of had crossed it off in my mind .. just assumed I wouldn't have complete clinical response !? Esp with him taking 8 biopsies ! As you say the worry of recurrence is always there and I am a bit confused about chemo assumed to be not needed ? Oh Adele so much to think about .. but I am feeling very lucky to have had such a complete response as I believe it must be good news whatever that response has been so good .. how are you doing with yours ? Xxxx Much love Annie xxxxx
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mozart13 wrote:Hi Annie!
W&W approach is changing.
Used to be only chemo/rad, risk was high, one doesn’t know if any microcell is left in the body, or not. That extra chemo is to wipe out those questionable microcells.
California was most advaneced, they have been doing this kind of approach for more than 10 years. Originally started in Brazil, so call Habr-Gamma, it has evolved since than.
Memorial sloan hospital from NY is lead hospital in big study when it comes to that kind of approach:
https://www.mskcc.org/clinical-updates/ ... alResearch
They call it Total neadjuvent therapy. Even people that don’t have complete clinical response and need surgery benefit from this kind of approach, as is very often dificullt to start and complete chemo right after surgery.
I did know that my cancer is gone after 25 sessions of chemo/rad,they call it complete clinical response. It was my choice to have extra chemo( folfox) after, would do it again regardless of symptoms.
I did a lot’s of research on my own.
Always check with your surgeon and oncologist what is best approch for you personally, at the end they are professionals.
Good luck to you!
lakeswim wrote:Ps - Also interested in the biopsies. My onc said (when I asked about biopsies) that they wouldn’t fool with the tumor site if it’s clear as to not potentially spread anything. But I see others get the biopsies, so...? And how will they know it’s a pCR (right?) if they don’t do biopsies? More questions for surgeon, I guess.....
susie0915 wrote:This is my question about wait and watch. I had a sigmoid and pet scan after radio/chemo. The pet scan showed no cancer and the surgeon said all that was left was scar tissue after the sigmoid. I did have surgery and the pathology did show minimal residual cancer cells in the area where tumor was, but clear margins and 0/24 lymph nodes. So if no biopsies were done pet scan was NED, and sigmoid showed only scar tissue I definitely would've had a recurrence if was offered wait and watch. All the was offered to me was the possibility of no chemo after surgery depending on pathology.
Eleda wrote:OMG ANNE
Thats amazing, couldn't have asked for anymore,,,,
Anxiety over for a while now lol
It shows dark on an MRI,,,,
Non surgical would be Watch & Wait!!!!!!!!!
Follow lakeswim,,, she's where u are ATM , so would be very helpful,,,,
There's pros and cons to both!!!!
Only con I can see with non surgical is anxiety of reacurance ( I personally couldn't deal with that)
I was throwing up the day before my sigmoid to check on shrinkage!!!!!!
I'm generally not anxious person,,, but when it comes to this cancer,,, I'm always afraid of my next scan etc
But on the flip side u won't have any of the possibility of LARS
Then again who knows how u will be after a reversal
No one knows until it's done!!!!
Uve a lot to think about here with life-changing concaquences either way!!!!
Only u can decide what's best for u
But definitely talk to people here who were n Ur position,,, because until Ur faced with it I don't think u can understand the predicament
I'm so happy with Ur good news,, Long may it last
Adele X
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