Surviving radiation for rectal cancer

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Caat55
Posts: 648
Joined: Sat Dec 23, 2017 6:01 pm

Re: Surviving radiation for rectal cancer

Postby Caat55 » Sun May 12, 2019 10:00 am

Happy Mother’s Day. Glad we are on this side of it, hope we stay clear.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Eleda
Posts: 286
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Surviving radiation for rectal cancer

Postby Eleda » Sun May 12, 2019 10:05 am

Hi Anne,
How r u doing,,,,
Have u made a decision on W&W
HOPE ALL IS GOOD

Adele X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Eleda
Posts: 286
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Surviving radiation for rectal cancer

Postby Eleda » Sun May 12, 2019 10:06 am

Hi Susan,
are you impoviding any bit????

ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 648
Joined: Sat Dec 23, 2017 6:01 pm

Re: Surviving radiation for rectal cancer

Postby Caat55 » Sun May 12, 2019 10:59 pm

Yes thanks Adele. I have to drink plenty of water, keep things moving. I have been taking one gabapentin daily for safety. I enjoyed fresh asparagus and strawberries today without any problems so far. Pretty much normal life except thinking, worrying about bathrooms.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Rock_Robster
Posts: 69
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Surviving radiation for rectal cancer

Postby Rock_Robster » Thu May 16, 2019 6:10 pm

Hi all, today I finished my 25th and final fraction of pelvic radiation, with Xeloda 3000mg/day. I must say after reading this thread I was pretty terrified going into this. This post isn’t meant to diminish the difficulties I know many folk have had - clearly this can be a very tough process with long-lasting effects.

Overall I was fortunately to find it fairly tolerable, with the main side effects being diarrhoea, fatigue, and some local burning-type pain. Imodium, MooGoo cream and a bidet toilet attachment were my friend. On a couple of days I also had some nausea, so Zofran and Buscopan helped a lot there. I was doing treatment ‘supine’ (on my back) due to my liver surgery wound (rather than the usual ‘prone’, ie face down), which I was told would result in more gastrointestinal symptoms but likely less local skin damage. The first 2-3 weeks were largely side effect-free, with the last 2 weeks being a bit more challenging. I wasn’t working thankfully though probably could have, with the exception of maybe 2-3 days in total where nausea and fatigue was worse. Overall, I found this much more manageable than FOLFOX chemo.

I had a good naturopath who helped me throughout with vitamins, glutamine and pre/probiotic supplements to try to maintain gut health.

This is just a brief note to give folk some hope going into this that all outcomes are possible in terms of side effects, particularly if you’re prepared and get on top of them early. Best of luck to all.
Male 37 years; Melbourne, Australia
10/2018 Dx: 3.5 cm rectal adenocarcinoma, 10 cm from verge. Well/mod diff (G1-2), T3bN1bM1a.
3 enlarged local lymph nodes and 4 liver lesions.
MSS, MMR-proficient, mutated in NRAS (G13R).
CEA: Oct-18 = 12; Nov-18 = 14, Mar-19 = 2.4
11/18 - 6 rounds neoadjuvant FOLFOX
12/18 - DVT, started clexane
3/19 - Liver resection, R0
4-5/19 - Long-course pelvic chemoradiation (45 Gy w/ Xeloda)


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