Surviving radiation for rectal cancer

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Annie50
Posts: 72
Joined: Mon Jul 16, 2018 3:44 pm

Re: Surviving radiation for rectal cancer

Postby Annie50 » Wed Feb 27, 2019 6:10 am

Eleda wrote:Same here every day got a bit better, but I know when Ur in the throws of it a day to day evaluation is what u want,,,, I'm sure ull find it on mike's thread..... He documented everything firm day one,,,,practly by the hour


viewtopic.php?f=1&t=58447#p460012
ADELE X


Hi Adele
Just noticed it's near your date in March isn't it for your reversal.. hope all well with you xxx Anniexxx

Eleda
Posts: 245
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Surviving radiation for rectal cancer

Postby Eleda » Wed Feb 27, 2019 3:41 pm

Hi ANNE
I'm seeing the surgon on Friday Anne, so hoping I'll have a date then to go ahead within the next month
Thanks
Adele X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

macpudd
Posts: 90
Joined: Tue Jul 21, 2015 7:00 pm

Re: Surviving radiation for rectal cancer

Postby macpudd » Wed Feb 27, 2019 5:41 pm

Hi Eleda, hope fiday gets you your date to happen soon and it goes well
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor growth
Mri Jan 2019 tumour growth Feb Pet scan tumour up to 6cm, no surgery, starting Avastin

Annie50
Posts: 72
Joined: Mon Jul 16, 2018 3:44 pm

Re: Surviving radiation for rectal cancer

Postby Annie50 » Sun Mar 03, 2019 4:51 pm

Eleda wrote:Hi ANNE
I'm seeing the surgon on Friday Anne, so hoping I'll have a date then to go ahead within the next month
Thanks
Adele X


His did it go Adele.. ? Hope you have your date ! Lots of love Xxx Annie xxx

Caat55
Posts: 590
Joined: Sat Dec 23, 2017 6:01 pm

Re: Surviving radiation for rectal cancer

Postby Caat55 » Sun Mar 03, 2019 10:10 pm

Hi Adele,

Beginning to feel real for me. I have colonoscopy in two weeks. Preop appointment with hospital, anesthesiologist. Using by supplies. Count down to begin soon.
How about you?
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Eleda
Posts: 245
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Surviving radiation for rectal cancer

Postby Eleda » Tue Mar 05, 2019 7:27 pm

All good Anne,
He says we're good to go so like u Susan waiting pre assessment clinic in the next week and surely will have a surgery date this week, kinda nervous of the recovery, but has to be done!!!! Lol I've booked a family Vacay for July n Spain with the kids, ( optimistic) much lol
Fingers crossed, it will be uneventful
Will you be having Ur port out also Susan??
I ment to ask so left a message with his secretary to confirm it for me.

Thanks MC Pudd, glad to see you online,,, did u happen to watch Brian Kennedy on the late late Friday night???
Apparently was excellent ( I missed it)
Hope all is good with you,,,,, my Celtic friend X

ADELE x
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Lesk
Posts: 1
Joined: Tue Mar 05, 2019 8:49 pm
Facebook Username: Leslie Hansen Abraham

Re: Surviving radiation for rectal cancer

Postby Lesk » Tue Mar 05, 2019 8:58 pm

Lots of warm baths and butt cream.

Eleda
Posts: 245
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Surviving radiation for rectal cancer

Postby Eleda » Wed Mar 06, 2019 12:25 am

Leek,
Seems like de deja vu to radiation!!!!!!!!!
Same shit all over again ( pardon the pun lol) :D :)
With longer recovery!!!!!!!
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 590
Joined: Sat Dec 23, 2017 6:01 pm

Re: Surviving radiation for rectal cancer

Postby Caat55 » Wed Mar 06, 2019 11:28 am

Could for you planning a trip. My port is out, about three weeks now. Still a little sore when bumped but not like it was when in. Getting in 10000 steps daily and at least 5 to 10 minutes of strength training, shot for 20 minutes but only make it about 3 or 4 days a week.
Preanesthesia call next step.
Can’t wait for the next step to be done, start figuring out what is next. In the mean time I am eating all the foods that are going to be a challenge afterwards, or I suspect my bea based on what I have read. Spicy Mexican food are a challenge now with stoma pain. But enjoying kimchi, raw veggies, beans....
We are getting there Adele.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

macpudd
Posts: 90
Joined: Tue Jul 21, 2015 7:00 pm

Re: Surviving radiation for rectal cancer

Postby macpudd » Wed Mar 06, 2019 6:07 pm

Eleda wrote:Leek,
Seems like de deja vu to radiation!!!!!!!!!
Same shit all over again ( pardon the pun lol) :D :)
With longer recovery!!!!!!!
ADELE X

Hi Adele, always lovely to hear from you and your sense of houmour, hope itgoes well for you. I just got back from Beaumont tonight, no chance of surgery, dr says its round speech and memory and ventriclies are closing up. Onco starting me on Avastin next week so hopefull thede will be some benefit. Time for bed :wink:
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor growth
Mri Jan 2019 tumour growth Feb Pet scan tumour up to 6cm, no surgery, starting Avastin

Eleda
Posts: 245
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Surviving radiation for rectal cancer

Postby Eleda » Thu Mar 14, 2019 1:50 pm

Thanks MC Pudd, likewise my friend,,, great to see u online :D :D
Susan, Anne sorry I haven't replied earlier but was waiting till I had a date which is now this day week :shock: :shock: :shock:
Nurse rang an hour ago,,, a bit anxious now,,,
Pre surgery appointment all done and good on Tuesday so ready to roll now hope all is well with u lot
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 590
Joined: Sat Dec 23, 2017 6:01 pm

Re: Surviving radiation for rectal cancer

Postby Caat55 » Thu Mar 14, 2019 11:57 pm

Good luck.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

macpudd
Posts: 90
Joined: Tue Jul 21, 2015 7:00 pm

Re: Surviving radiation for rectal cancer

Postby macpudd » Fri Mar 15, 2019 2:24 am

Hope the procedue goes well and quick recovery Eleda, likewise for everyone hear. Just leavnig home now to start my Avastin this morning, onc says it should maintain quality of life but wont really prolong things. So sad to hear whats happening in New Zealand, ther aer so many evil people donig bad things.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor growth
Mri Jan 2019 tumour growth Feb Pet scan tumour up to 6cm, no surgery, starting Avastin

Eleda
Posts: 245
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Surviving radiation for rectal cancer

Postby Eleda » Fri Mar 15, 2019 9:58 am

I don't like hearing this MC Pudd :( ,but I get it in relation to comfort and quality,,,, many people have had good results with Avistin,,,,!!!!!!!!
We are all only a phonecall away from a life changing event,,,,," EVERYONE"
We are slightly fortunate ( if I can say that ) if we survive a bit because we get the chance to grab life with both hands,,,,, Many don't get that,,,,,
Do the things we put on the long finger ,,, see the people we love,,,,
If cancer doesn't get us something else will ,,,,
THERE IS ACTUALLY MANY WORSE THINGS
I hope to see u here very often keeping us updated
Thanks for the well wishes,,, fingers crossed,, Thursday will be uneventfull

Your Celtic friend
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Annie50
Posts: 72
Joined: Mon Jul 16, 2018 3:44 pm

Re: Surviving radiation for rectal cancer

Postby Annie50 » Sat Mar 16, 2019 9:29 am

Eleda wrote:I don't like hearing this MC Pudd :( ,but I get it in relation to comfort and quality,,,, many people have had good results with Avistin,,,,!!!!!!!!
We are all only a phonecall away from a life changing event,,,,," EVERYONE"
We are slightly fortunate ( if I can say that ) if we survive a bit because we get the chance to grab life with both hands,,,,, Many don't get that,,,,,
Do the things we put on the long finger ,,, see the people we love,,,,
If cancer doesn't get us something else will ,,,,
THERE IS ACTUALLY MANY WORSE THINGS
I hope to see u here very often keeping us updated
Thanks for the well wishes,,, fingers crossed,, Thursday will be uneventfull

Your Celtic friend
ADELE X


How you doing Adele .. got definite date yet ? Love Annie xxx


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