Please help me someone...

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spy33
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Please help me someone...

Postby spy33 » Wed Feb 15, 2012 6:36 am

I am a 33 year old male...going crazy over various symptoms that gastroenterologists have said not be alarmed about...Here goes...
In December I felt abdominal discomfort all aroung for 8 hours...I had the exact same feeling following a cold i had end of january...
lately my stool have a dark brown colour...but what i fear the most is that i feel an almost continuous discomfort (not pain) right below my right ribcage
going all the way down until the pelvic area...it feels like a fullness (but on the side) - i dont think it radiates from the intestines...

Please...any help would be most appreciated

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Please help me someone...

Postby NWgirl » Wed Feb 15, 2012 11:03 am

All we can really do to help is to encourage you to see other doctors until you will find one who will listen to your concerns and find a way to diagnose what is causing you this discomfort. If one doctor doesn't listen, go to another; and another. Unfortunately many of the folks here found that the first doctor they visited with concerns of symptoms didn't listen. You have to be your own advocate with your health care issues and keeping searching until you find the 'right' doctor who will work with you.

Best of luck.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

VerusX
Posts: 2
Joined: Wed Feb 15, 2012 11:05 am

Re: Please help me someone...

Postby VerusX » Wed Feb 15, 2012 11:15 am

I can confirm my PCP and first Gastro guy ignored my symptoms. See another Gastro right away.

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Please help me someone...

Postby alphagam » Wed Feb 15, 2012 11:15 am

I can only agree with NWgirl. Keep bugging your doctors until there is an answer!
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

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dianetavegia
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Please help me someone...

Postby dianetavegia » Wed Feb 15, 2012 12:04 pm

Please ask your doctor for an ultrasound of your gall bladder. My gall bladder attacks felt like muscle spasms in my back.

The color of your stool is no big deal. Unless it's bloody, black as tar or a very pale clay color or white, it's probably caused by foods, dyes in foods you eat, vitamins or drinks (a friend's son drank Kool Aid at a day care and she had major anxiety when his poo was lime green).
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Peabody5422
Posts: 334
Joined: Fri Dec 09, 2011 10:21 am
Facebook Username: debbie.whitaker

Re: Please help me someone...

Postby Peabody5422 » Wed Feb 15, 2012 12:19 pm

Over the years I have ended up in surgery 4 times after being told to go home and take anti acid tablets or the biggest joke was "what, you think you have a brain tumor every time you have a headache". That turned out to be walnut size bilateral kidney stones and gall stones also. I wished he could have tried to "pass" with those suckers. I was passing out with pain before I ended up in the ER. Ouch! My foot was broken but it was dx: as arthritis for 3 months before a resident decided to x-ray it. Surgery again.

Keep going to drs until you get an answer. Some people do not have symptoms of what they really have.

Rectal Cancer
DX: 11/22/11
Micro Surgery: 12/21/11
Chemo & Radiation: 1/24/12
T1 N1c MX
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery

jjlist
Posts: 654
Joined: Fri Jan 21, 2011 11:56 pm

Re: Please help me someone...

Postby jjlist » Wed Feb 15, 2012 1:41 pm

only way to diagnose things is to get tested,
cat, pet, scopes etc.
we can not diagnose you
good luck
age 56
11/16/09 DIAG low rectal tumor ST II T3N0M0
12/21/09 chemopump radiation
3/18/10 suregry colo-anal anastomosis, no nodes,.
4/29/10 Abcess infection
6/3/10 started 12 folfox sessions completed 10.
1/11/11 ileostomy takedown

spy33
Posts: 2
Joined: Wed Feb 15, 2012 6:29 am
Facebook Username: spy

Re: Please help me someone...

Postby spy33 » Wed Feb 15, 2012 3:23 pm

Thankyou all for your replies...
Problem is I have gone to 4 different gastro's...the following tests were performed:
1. ultrasound of abdomen - clear
2. ultrasound of bladder and kidneys by urologist - clear
3. complete blood count - was fine
4. iron and ferritine levels - good
The last gastro said it was spastic colon - but how can he diagnose that just by doing an abdominal ultrasound? and gave me meds as treatment...

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Please help me someone...

Postby alphagam » Wed Feb 15, 2012 3:34 pm

I was diagnosed with spastic colon or Irritable Bowel Syndrome. I was blessed and when my cancer was found it was only Stage 0. The only way to make sure is to get a colonoscopy.

Kathy R
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

Peloton

Re: Please help me someone...

Postby Peloton » Wed Feb 15, 2012 3:56 pm

Spy -

The first thing to remember is that your symptoms could be anything. So don't rush to conclusions. Also, as others have said, we are not doctors. We can't diagnose you.

However, you need to get scoped. I was 30 when diagnosed and had symptoms for a good 6 months or so before finally getting a scope - which revealed a stage 3c tumor in my rectum. I was given all the typical answers from various doctors, e.g., hemorrhoids, a fissure, lack of fiber in my diet, lactose intolerance, etc. They all dismissed cancer due to my age. I had to insist, to the point of begging, to get a colonoscopy.

So if you are really this concerned - to the point where you are posting on a message board intended to provide support for people who already have been diagnosed colorectal cancer and their loved ones, then you need to get a scope. Insist on it. If your current docs won't order one, find one that will.

frugal
Posts: 117
Joined: Mon Sep 26, 2011 7:49 pm
Location: Buffalo, New York
Contact:

Re: Please help me someone...

Postby frugal » Wed Feb 15, 2012 6:18 pm

Even they thought I had IBS, my primary and my gi docs were all for doing the colonoscopy. My primary said flat out, it was the best way to see what's going on inside. If it had been some rare colitis or other malady they'd have been able to take tissue samples for testing. It doesn't have to be cancer for the scope to be useful. Push for the colonoscopy, hopefully that will help you find some answers and peace of mind.
John, 40 @dx
Diagnosed 09/2011, Surgery 10/2011
Stage IIA T3N0M0
12 complete rounds of Folfox
2016-03-22 NED

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Please help me someone...

Postby NWgirl » Wed Feb 15, 2012 7:41 pm

Have any of the docs ever suggested a colonoscopy? That's the best way to see what's going on inside your colon. I believe an endoscopy is where they run the camera down your throat/stomach/small intestine - you could have both ends done (not sure if they can do both procedures at the same time or not). If they haven't brought it up then it's time for you to suggest - even demand it. A colonoscopy and an endoscopy will either reveal what's going on in there or rule out a whole lot of stuff that could be causing your symptoms.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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Kathryn in MN
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Location: Minnesota & Mexico
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Re: Please help me someone...

Postby Kathryn in MN » Thu Feb 16, 2012 1:50 am

They can do both at the same time - my husband had both done at the same time two years in a row.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume


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