Petition to turn the White House BLUE for CRC Awarenes

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Kathryn in MN
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Petition to turn the White House BLUE for CRC Awarenes

Postby Kathryn in MN » Tue Feb 14, 2012 12:36 pm

Please take a minite of your time to sign the petition to turn the White House Blue for CRC awareness month in March. One night each year in October (since 2008 I believe) they have lit it up pink. So there is no reason we can't get this done for BLUE!

https://wwws.whitehouse.gov/petitions/!/petition/get-americans-talking-about-colon-cancer-lighting-white-house-blue/DSCj480l?utm_source=wh.gov&utm_medium=shorturl&utm_campaign=shorturl
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume
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TheBurn
Posts: 444
Joined: Sun Sep 26, 2010 8:21 pm
Location: West Chester, PA

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby TheBurn » Tue Feb 14, 2012 2:04 pm

Just became signature #113 and we're up to #115. Need to get to 150 just to make it publicly searchable.
Living Life Colon-Free
-----------------------------------------
52
RC 7/20/10
Proctocolectomy/ileo 10/22/10; Sx Path - T3N1M0
Folfox - 1/12/11; Xelox - 2/23/11
Xeloda - 3/16-6/21/11
Chemo-rad 6/29-8/8/11
NED 8/15/11
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Kathryn in MN
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Re: Petition to turn the White House BLUE for CRC Awarenes

Postby Kathryn in MN » Tue Feb 14, 2012 2:16 pm

Just started this morning, so we are moving along - if we can get everyone affected by CRC that participates in online message boards to sign, we'll have a lot!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume
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trapbear
Posts: 74
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Facebook Username: bill manning

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby trapbear » Tue Feb 14, 2012 2:22 pm

Signed and put a link on my facebook!
Husband Dx with Stage 3 CC in Dec 07
Xelox Jan-July 08
Lung mets Jan 09
Folfiri plus Avastin Mar-May 10
5FU plus Avastin May 10-current
2 liver mets March 13, continue 5 FU & Avastin
liver RFA Oct 13, hospice June 14, at peace Sept 2, 2014
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Staci's team
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Location: Canfield, Ohio
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Re: Petition to turn the White House BLUE for CRC Awarenes

Postby Staci's team » Tue Feb 14, 2012 3:02 pm

Count Staci and me as signatures 127 and 128....
Husband to Staci, diagnosed at age 32
Clinical dx Stage II/III rectal cancer, 7/2009
APR surgery 11/09 leading to...
Pathological dx Stage IIIB, ypT3N1M0, 11/2009
http://www.caringbridge.org/visit/staciwills
Member of The Colon Club's Board of Directors
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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby Guinevere » Tue Feb 14, 2012 4:13 pm

Signed and posted to FB!! Light it up blue!!
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14
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NWgirl
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Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby NWgirl » Tue Feb 14, 2012 4:30 pm

#149 and linked to my FB page!
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model
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betsydoglover
Posts: 978
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Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby betsydoglover » Tue Feb 14, 2012 4:42 pm

I feel ridiculous. I created an account (took me 3 tries - no good at reading those whacky letters). I have logged in multiple times, deleted cookies etc and can't seem to find a link where I can sign. Can someone help?
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18
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betsydoglover
Posts: 978
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Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby betsydoglover » Tue Feb 14, 2012 4:56 pm

Never mind. I signed it fine with IE - something's up with Firefox/Mozilla.
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18
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JanC09
Posts: 174
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Location: Northern California

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby JanC09 » Tue Feb 14, 2012 5:05 pm

Done... #159. Thank you for sharing this!
JanC09-Age59-Feb'08 Stage IIIc
Folfox,12 tx.
recurrance March'10
Folfiri, 10 tx
Radiation on pelvis, 28 tx
SBRT July '11
Folfiri March'12-June'12
Avastin only July'12-Feb.'13
Xeloda+Avastin- Feb'13-Oct'14
Irinotecan/Avastin- March'15 -4tx then scan
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CCAlliance
Posts: 18
Joined: Wed Mar 09, 2011 11:41 am

Turn the White House BLUE for Colon Cancer Awareness

Postby CCAlliance » Tue Feb 14, 2012 5:28 pm

We've created a petition to turn the White House blue for colon cancer awareness through a new platform called We the People.
We need your help to get 25,000 signatures by March 14!

Help us turn the White House BLUE for colon cancer awareness! Sign the petition and help spread the word! http://wh.gov/0mK
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JennyB
Posts: 240
Joined: Mon Sep 21, 2009 10:59 am
Location: St. Louis

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby JennyB » Tue Feb 14, 2012 6:02 pm

trapbear wrote:Signed and put a link on my facebook!

Same!
Jennifer
Wife of Scott, diagnosed at age 34 on 3-27-09, now 37
Stage III-C CC, 15 out of 36 nodes involved
Ulcerative colitis since age 11, colon removed 3-25-09
He finished Folfox on 9-23-09
Permanent ileostomy March 2012
NED so far!
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Future_Med
Posts: 138
Joined: Sun Mar 06, 2011 7:15 pm

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby Future_Med » Tue Feb 14, 2012 9:20 pm

Just became signature 200. Posted a link on my facebook and tweeted it :)

Aideen
Diagnosed colon cancer Stage 1 November 30, 2010 Age: 27
Collectomy December 24th, 2010
Genetic Testing back December 19th 2011. Familial Adenomatous Polyposis confirmed
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shopgirl
Posts: 25
Joined: Thu Feb 02, 2012 11:24 am
Facebook Username: kathy houk (katharyn Houk)
Location: North Carolina

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby shopgirl » Tue Feb 14, 2012 9:28 pm

204 here!
1/12/12 colonoscopy revealing 6cm mass in sigmoid colon
1/24/12 lap colectomy. 1/27 nodes positive
2/8/12 Port placed
2/21/12 FOLFOX 1st treatment


Let choice whisper in your ear and love murmur in your heart. Be ready. Here comes life. ~Maya Angelou
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abuttigi
Posts: 669
Joined: Tue Feb 08, 2011 9:39 am
Location: SE Michigan

Re: Petition to turn the White House BLUE for CRC Awarenes

Postby abuttigi » Tue Feb 14, 2012 10:27 pm

Signed and put on my Facebook. My dad is 1 of 10 and I'm part of a huge, passionate Maltese family, so hopefully that brings in lots of signatures :-)
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven
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