I got the results of last weeks PET scan today - NED. The spots on my lungs are still there, but they have not changed in size and there is no uptake. That's just about the best news I could have possibly hoped for. You'd think I'd be dancing for joy - and I am, really, inside. But I'm really, really tired and I have a headache. My oncologist said if the headaches haven't resolved by my next appt. we'll do an MRI on my brain to make sure the Avastin isn't causing them. My blood pressure and urine are both fine, so we know Avastin isn't causing problems in those areas. Last weeks PET scan included my head, and nothing lit up - so that's good. The plan is still chemo for life - another reason I'm not doing a major happy dance. My oncologist feels since my cancer is systemic - it's likely still there; just not big enough to show up on a scan.
But I'm not complaining. At a minimum this buys me more time and that's what I want. What we all want - more time.
Clear PET Scan
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NWgirl
- Posts: 6659
- Joined: Sat Feb 02, 2008 3:24 am
- Facebook Username: Belle Piazza
- Location: Battle Ground, Washington
Clear PET Scan
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model
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chrissyl
- Posts: 84
- Joined: Mon Sep 13, 2010 5:12 pm
- Facebook Username: christine bryan
- Location: Australia
Re: Clear PET Scan
Wow that is fantastic news considering 
I often think about you as I am another with systemic cancer yay in my lymph nodes so your posts give me hope:)
Chrissy
I often think about you as I am another with systemic cancer yay in my lymph nodes so your posts give me hope:)Chrissy
stage 3c rectal cancer dx whilst 20 weeks pregnant
11 out of 19 lymph nodes positive
surgery- clear margins
T2,N2,MO
Portacath
Chemo with 5fu and Leuc
mri came back clear ,abdominal ultrasound clear,Lung scan clear
before surgery.
11 out of 19 lymph nodes positive
surgery- clear margins
T2,N2,MO
Portacath
Chemo with 5fu and Leuc
mri came back clear ,abdominal ultrasound clear,Lung scan clear
before surgery.
Re: Clear PET Scan
NWgirl wrote:I got the results of last weeks PET scan today - NED. The spots on my lungs are still there, but they have not changed in size and there is no uptake. That's just about the best news I could have possibly hoped for.
Wow Belle, so glad to hear the news about your scan results, that you got what you were hoping for. I appreciate that you have mixed feelings about the on-going chemo, but you seem to be taking a "glass half-full" approach to it. May your ongoing treatments be smooth and successful!
Bussman
1/21/11 dx CC @ 53
2/09/11 rt colon resect
0/18 LN; 4 tumor dep.
stage IIIB T4a N1c M0
3/11- 8/11 - 12 FOLFOX tx
6/11, 12/11 PET/CT scans- clean
1/12 follow-up scope - clean
6/12, 12/12,6/13 PET/CT scans- clean
NED
2/09/11 rt colon resect
0/18 LN; 4 tumor dep.
stage IIIB T4a N1c M0
3/11- 8/11 - 12 FOLFOX tx
6/11, 12/11 PET/CT scans- clean
1/12 follow-up scope - clean
6/12, 12/12,6/13 PET/CT scans- clean
NED
Re: Clear PET Scan
Belle, that's WONDERFUL news! Doing the Happy dance for you. And you never know about the chemo for life thing. Maybe after a few more good scans you and your onc will reevaluate.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009
Re: Clear PET Scan
That is really great news! Hope you are feeling better soon and the headaches gone!
My husband, Eric, dx @ age 35
Stage IIIb RC (T3N1M0), 3/10
Finished 6 weeks rad/xeloda 5/10
Surgery 7/10, Lap LAR, Colonic J Pouch, Temp. Ileostomy
ypT2N0M0
Xelox (5 rounds)
Takedown 12/13/10
Clear CT - 2011-2015
Stage IIIb RC (T3N1M0), 3/10
Finished 6 weeks rad/xeloda 5/10
Surgery 7/10, Lap LAR, Colonic J Pouch, Temp. Ileostomy
ypT2N0M0
Xelox (5 rounds)
Takedown 12/13/10
Clear CT - 2011-2015
Re: Clear PET Scan
WOW! This is great!!
DX July 2 '10 CC Stage IIIC, 11/18 nodes+
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 2012: Lynch Syndrome MLH1
"Declared well" and been well ever since.
Update: Jan 2023 - still NED.
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 2012: Lynch Syndrome MLH1
"Declared well" and been well ever since.
Update: Jan 2023 - still NED.
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adina91
- Posts: 490
- Joined: Wed Aug 25, 2010 6:36 pm
- Facebook Username: Adina Jewett
- Location: Los Angeles, CA
- Contact:
Re: Clear PET Scan
Great news Belle! SO happy to hear it!
Adina 42 yo, mom of 2 sons (5,9)
11/2009 - DX-2B CC-Sigmoid resect/colostomy
Lynch Synd MSH2
1/2010 - FLOX chemo
5/2010 - Subtotal colectomy/hyster/ileostomy
Stage 3A - 1/42 LN +
8/2010 - Chemo done
10/18/2010 - ileostomy takedown
2010 - 2015 - NED
5/1/15 - "suspicious" area in liver on CT
5/14/15 - follow up PET says no metastatic disease
6/19/15 - MRI - NED!
11/2009 - DX-2B CC-Sigmoid resect/colostomy
Lynch Synd MSH2
1/2010 - FLOX chemo
5/2010 - Subtotal colectomy/hyster/ileostomy
Stage 3A - 1/42 LN +
8/2010 - Chemo done
10/18/2010 - ileostomy takedown
2010 - 2015 - NED
5/1/15 - "suspicious" area in liver on CT
5/14/15 - follow up PET says no metastatic disease
6/19/15 - MRI - NED!
Re: Clear PET Scan
NWgirl wrote:I got the results of last weeks PET scan today - NED.
You know you had me at NED, Belle ? Right ????
So I am still gonna do a very thoughtful, conservative LITTLE HAPPY DANCE for YOU !
I know how you feel but if we gotta take it one day at a time,
we GOTTA enjoy the wins where we get them,
cruisin' on down I-FIVE 'atcha
here comes da' CHEERS !
takin' it as a win sista'
Always in Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: Clear PET Scan
All things considered that is awesome news. I hope the headaches are soon resolved.
RC 10/09
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!
Re: Clear PET Scan
I'm happy to hear about your good results, and I also understand your ambivalence. But yes, more time is good. I hope it will be LOTS more time.
Hope you can get some relief from the headaches soon. Maybe you'll feel more like dancing when they subside.
Hope you can get some relief from the headaches soon. Maybe you'll feel more like dancing when they subside.
Beth
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net
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Candyys03
- Posts: 1381
- Joined: Wed Dec 10, 2008 12:51 am
- Facebook Username: Candy Llamas
- Location: Riverside,California
- Contact:
Re: Clear PET Scan
YEAH!
Celebrate!
Doing the happy dance for you.
Candy
Celebrate!
Doing the happy dance for you.
Candy
DX8/0642yrIVCCmtsliver
9/06opcol+lymps
07oxy
08livernonop
08iri+erb
1/09opliver
NED11m
12/09lungmts
3/10livermts
NED7m
2/11lungmts
4/11NED3m
5/2Xel
9/26lungop
NED6m
3/12lungmtsirierb
11/27avas+ox
7/13Stivarga
10/28irierb
1/17
caringbridge.orgcandyllamas
9/06opcol+lymps
07oxy
08livernonop
08iri+erb
1/09opliver
NED11m
12/09lungmts
3/10livermts
NED7m
2/11lungmts
4/11NED3m
5/2Xel
9/26lungop
NED6m
3/12lungmtsirierb
11/27avas+ox
7/13Stivarga
10/28irierb
1/17
caringbridge.orgcandyllamas
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Surroundedbylove
- Posts: 3126
- Joined: Tue Dec 16, 2008 6:43 am
- Location: Seattle
Re: Clear PET Scan
Belle,
I am so happy for your news. I realize the chemo for life feelings you are having (and the dang physical side effects from treatment) are tempering your feelings but oh my goodness - I vaguely recall that you thought "stable" would be good news. NED is so much more than that.
Still one day at a time I know but I'm with CRGuy and doing a little happy dance for you.
SBL
I am so happy for your news. I realize the chemo for life feelings you are having (and the dang physical side effects from treatment) are tempering your feelings but oh my goodness - I vaguely recall that you thought "stable" would be good news. NED is so much more than that.
Still one day at a time I know but I'm with CRGuy and doing a little happy dance for you.
SBL
Surroundedbylove
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
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vancouver eve
- Posts: 1507
- Joined: Fri Jan 18, 2008 3:04 pm
- Location: Vancouver
Re: Clear PET Scan
Great news!!!!!!!!!!!!!!!! Keep up the good work.
Re: Clear PET Scan
That's fantastic!!! I'm so sorry about the headaches but it's wonderful you're NED. Looks like reloading worked. 
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14
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CheeseHead
- Posts: 1171
- Joined: Sat Jul 31, 2010 2:36 pm
- Location: Netherlands
Re: Clear PET Scan
Great news, Belle, no uptake sounds terrific!
Hope the headaches resolve soon...
Cheers,
Cheese
Hope the headaches resolve soon...
Cheers,
Cheese
- 2008
10 Stg 4 colon srgry
12 Xelox/Avast
2009
05 Liver srgry
-12 Xelox
2010
05 Xelox
08 Iri/Vect
11 Liver srgry
2011
01-05 Iri,Vect,Xeloda
09 CyberKnife
2012
03-07 Ph I trial
08-11 Regorafenib
2013-
Xeloda
Vecti
Iri
Xelox
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