Calling ALL Colorectal CANUCKS !

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O Stoma Mia
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Joined: Sat Jun 22, 2013 6:29 am
Location: Traveling abroad

March is Colon Cancer Awareness Month

Postby O Stoma Mia » Sat Feb 24, 2018 1:08 am

March is Colon Cancer Awareness Month
http://coloncancercanada.ca/march-is-colon-cancer-awareness-month/
Colon Cancer Canada, with the support of celebrated Canadians, is launching the Colon Cancer Awareness Month with a hard hitting Public Service Announcement (PSA) campaign that promotes the message that people need to “talk about it.”

Canadian celebrities involved in the campaign are Olympic medalist Adam van Koeverden, singing legend Anne Murray, hockey legend Darryl Sittler, actress Emmanuelle Chriqui, and actor Neil Crone. “They all have a personal story that brought them to Colon Cancer Canada – we just couldn’t be more proud of them,” explains Amy Elmaleh, Co-Founder of Colon Cancer Canada.

henry123
Posts: 119
Joined: Sun Oct 08, 2017 3:25 am

Re: Calling ALL Colorectal CANUCKS !

Postby henry123 » Fri Mar 16, 2018 11:05 am

I have a question. Does total colectomy qualify you for disability and handicap parking etc in Canada.

I have had total colectomy. Generally, my BM are predictable and can be planned for. But every once in a while they act funny and I need to rush nearest washroom. You know the story.

Does anyone have any experience in this regards. Who decides if you are eligible for such things.
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear .
NED
Vegan yoga juicing apricot

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CRguy
Posts: 9538
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Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Fri Mar 16, 2018 4:34 pm

Unlikely from SPARC BC, unless your physical mobility is affected

Based on a physician’s recommendation, anyone with a permanent or temporary mobility limitation is eligible for a parking permit for people with disabilities. A physician must assess the individual, and confirm that the applicant is limited by one of more of the following conditions:

Applicant cannot walk any distance without assistance of another person or a mobility aid
Applicant cannot walk 100 metres without risk to health
Applicant has a disability that affects mobility, and the ability to walk specifically
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Canada777
Posts: 54
Joined: Mon Mar 28, 2016 6:24 pm

Re: Calling ALL Colorectal CANUCKS !

Postby Canada777 » Fri Mar 16, 2018 6:57 pm

Not sure where in Canada you are...but if you are in ontario Google "service Ontario accessible parking pass" and the form comes up. Most is mobility related reasons but the final option (part g) if I Remember correctly is where you may qualify - it refers to " functional" needs. I have heard of people with bathroom issues getting the permit. Speak with your family doctor. It's a pretty common form for them.
DH dx. Stage 4 Colon cancer with Peri mets Dec '15 @ age 29
12 Rounds FOLFOX Jan-June 2016
4 month chemo break. Still only Peri mets.
Successful HIPEC Oct. 2016. Diagnosis changed to appendix cancer.
Recurrence to pelvis. FOLFIRI Sept 2017 to present.

henry123
Posts: 119
Joined: Sun Oct 08, 2017 3:25 am

Re: Calling ALL Colorectal CANUCKS !

Postby henry123 » Fri Mar 16, 2018 10:22 pm

Thanks ..

Capercrohnieileo
Posts: 10
Joined: Wed Apr 11, 2018 12:42 pm

Re: Calling ALL Colorectal CANUCKS !

Postby Capercrohnieileo » Wed Apr 11, 2018 1:01 pm

henry123 wrote:I have a question. Does total colectomy qualify you for disability and handicap parking etc in Canada.

I have had total colectomy. Generally, my BM are predictable and can be planned for. But every once in a while they act funny and I need to rush nearest washroom. You know the story.

Does anyone have any experience in this regards. Who decides if you are eligible for such things.
not in Nova Scotia unfortunately
Severe Crohn's colitis jan 2015
Developed fistulas feb 2015
Open total proctocolectomy with end ileostomy (bye bye colon and rectum hello barbie butt) because of fistulas, Crohn's and crc risk May 5, 2017
Gastroduodenal Crohn's Nov 1, 2017
Severe Gastroparesis (delayed gastric emptying) Nov 9, 2017 GES showed 70 % remaining in stomach at 4 hrs. Normal is <10%

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CRguy
Posts: 9538
Joined: Sun Feb 10, 2008 6:00 pm

O/T kind of for... Colorectal CANUCKS !

Postby CRguy » Thu Apr 12, 2018 11:25 pm

I would be totally remiss, not a true Canuck ...
and certainly NOT CRguy .....
IF I did not acknowledge the recent tragedy involving the Humboldt Broncos junior hockey team bus crash, in my home province.

I don't ever recall seeing such an outpouring of loving kindness, support and grief for a tragedy, the likes of which we have seen with
Humboldt Strong, wear your jersey and leave the lights on and the hockey sticks out

I have played and refereed since I could skate, coached, managed hockey teams
and been on executives of district hockey associations since I figured out I was never going to "the show" myself.

This past week / weekend reminded me of the unity we all have as Canadians, hockey folks and just plain human beings needing to reach out to our brothers and sisters in their time of need.

The GoFundMe for the Humboldt Broncos was over $9 Million last I saw
Tom Cochrane reworked his lyric for his epic song Big League https://www.youtube.com/watch?v=PDO6TA7FmJ8
and Smitty Kingston emerged as a YouTube sensation with
Humboldt strong (leave a stick by the door) https://www.youtube.com/watch?v=Wo-os3UqwBY

much much more has happened BUTT I just wanted to get this out there to CTalk homies north of 49.

I put my hockey sticks out
left the lights on at the door
hung our flag and wore my jersey
wish I could've done much more

just a bunch of happy kids
out riding on a bus
with teammates playing hockey
... could be any one of us



Humboldt Strong we ARE, all on the same team
Prayers, strength and healing moving forward

Love Peace and Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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