Calling ALL Colorectal CANUCKS !

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CRguy
Posts: 9616
Joined: Sun Feb 10, 2008 6:00 pm

HAPPY CANADA DAY 2017 Canucks !

Postby CRguy » Sat Jul 01, 2017 5:13 pm

Wishing all our Canuckians on board a very happy Canada 150th !!!!!!

Cheers and Harmony moving forward for the next 150

CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

justin case
Posts: 4214
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Calling ALL Colorectal CANUCKS !

Postby justin case » Wed Jul 05, 2017 4:31 pm

Enjoy your holiday my friend 8)
bro Nut
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Steph20021
Posts: 534
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Calling ALL Colorectal CANUCKS !

Postby Steph20021 » Thu Jul 06, 2017 12:20 am

I recently returned from a camping trip to Bruce Penninsula National Park in Tobermory. Saw the five, the grotto and flowerpot island. Amazing beauty! Highly recommend it if you haven't been!
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E mutation
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Aug/16- on folfiri
Jan/18-folfox

henry123
Posts: 135
Joined: Sun Oct 08, 2017 3:25 am

Re: Calling ALL Colorectal CANUCKS !

Postby henry123 » Sun Oct 08, 2017 4:50 am

Hello
Is there any update for approval of Keytruda or Opdivo for msi-H CrC by Health Canada now that it has been approved by FDA in USA?
What sort of time lag is there normally for such approvals.
Regards.
Henry
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear
8/18 1.3
NED
Vegan yoga juicing apricot

User avatar
CRguy
Posts: 9616
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Sun Oct 08, 2017 12:43 pm

Welcome to CTalk Henry
that is a million$$$$ question regarding HC !

depending upon provincial "rules" and how they play into overall HC regs....
there may be some access under compassionate care / experimental release IF there is a particularly good, pro-active and aggressive doctor in the loop who can navigate the systems for you... and this would apply to all "new" treatments and drugs.

IME ... each province / cancer center etc. seems to be its own minefield OR field of dreams depending upon the factors mentioned.

Specifically though, a September 27, 2017 announcement Keytruda Approved as First-Line Lung Cancer Treatment in Canada states a specific use acceptance for one application :
“Lung cancer is the leading cause of cancer death for both men and women in Canada, which makes this new indication especially significant. We look forward to working with provinces and other jurisdictions to ensure that Canadians who need immunotherapy for first-line treatment of metastatic NSLC have rapid access to Keytruda,” Chirfi Guindo, president and managing director of Merck Canada (known as MSD outside the U.S. and Canada),


How quickly this availability will translate to other indications is anybody's guess.

ANY OTHER Canucks with any other info please chime in !

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

henry123
Posts: 135
Joined: Sun Oct 08, 2017 3:25 am

Re: Calling ALL Colorectal CANUCKS !

Postby henry123 » Mon Oct 09, 2017 1:36 am

CRguy wrote:Welcome to CTalk Henry
that is a million$$$$ question regarding HC !

CRguy


Thanks CRguy.
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear
8/18 1.3
NED
Vegan yoga juicing apricot

mozart13
Posts: 137
Joined: Fri Dec 09, 2016 7:38 pm
Location: Toronto

Re: Calling ALL Colorectal CANUCKS !

Postby mozart13 » Tue Oct 10, 2017 8:57 am

Henry, here is the link about Keytruda, not sure if it answers your question:
https://lungdiseasenews.com/2017/09/26/ ... ed-canada/

Steph20021, last summer I went to Tobermory, what a beutyfull place, pristine water, one could see those shipwrecks that went down in 1885, islands are geourges, a lots of hiking possibilities.
Last summer was very hot, but lake was refreshing, went swimming few times, my younger one loved it.
55 year at the time of diagnosis, male
Diagnosed with T1,T2 N0 M0 rectal cancer
Total neoadjuvant therapy or TNT (chemoradiation followed by systemic chemotherapy)
Negative since Feb. '17
No surgery
Watch&Wait approach 8)
I don’t come much to forum , so if this is not updated it means I remain negative!
Wish good luck to all!

henry123
Posts: 135
Joined: Sun Oct 08, 2017 3:25 am

Re: Calling ALL Colorectal CANUCKS !

Postby henry123 » Thu Oct 12, 2017 2:21 am

mozart13 wrote:Henry, here is the link about Keytruda, not sure if it answers your question:
https://lungdiseasenews.com/2017/09/26/ ... ed-canada/

Steph20021, last summer I went to Tobermory, what a beutyfull place, pristine water, one could see those shipwrecks that went down in 1885, islands are geourges, a lots of hiking possibilities.
Last summer was very hot, but lake was refreshing, went swimming few times, my younger one loved it.

Thanks
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear
8/18 1.3
NED
Vegan yoga juicing apricot

Steph20021
Posts: 534
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Calling ALL Colorectal CANUCKS !

Postby Steph20021 » Thu Oct 12, 2017 9:09 pm

Tobermory is such a beautiful area!!!

mozart13 wrote:Henry, here is the link about Keytruda, not sure if it answers your question:
https://lungdiseasenews.com/2017/09/26/ ... ed-canada/

Steph20021, last summer I went to Tobermory, what a beutyfull place, pristine water, one could see those shipwrecks that went down in 1885, islands are geourges, a lots of hiking possibilities.
Last summer was very hot, but lake was refreshing, went swimming few times, my younger one loved it.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E mutation
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Aug/16- on folfiri
Jan/18-folfox

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Calling ALL Colorectal CANUCKS !

Postby Maia » Tue Oct 17, 2017 1:35 pm

Canadians: the opportunity of receive ''a targeted therapy drug that is specific to an abnormal gene change in their cancer''. A Canadian TAPUR: CAPTUR
No locations disclosed but for sure Toronto and Vancouver.

NCT03297606
For BRAFV600: BRAF inhibitor + MEK inhibitor.
For those with high mutational burden, POLE, POLD1 --I'm assuming: also for MSI-H--: immunotherapy: nivo + ipi

https://clinicaltrials.gov/ct2/show/NCT03297606

User avatar
CRguy
Posts: 9616
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Tue Oct 17, 2017 4:18 pm

Thanks Maia
Yes with these 2 involved there WILL be YVR and T.O. for sure !
Investigators
Study Chair: Lillian Siu Univ. Health Network-OCI/Princess Margaret Hospital, Toronto, ON Canada
Study Chair: Daniel J Renouf BCCA - Vancouver Cancer Centre, Vancouver BC, Canada

With the "kitchen sink" of medications for their study groups, they are basically cataloguing these different treatments' effects within given
investigational arms .... just IMO ... for future referencing of possible novel treatments with known agents, for nonstandard uses.
While the list mainly targets hemolymphatic cancers, the inclusion of Advanced Solid Tumors opens the door for others.

The POG program really kick started a whole new brain trust at BCCA Vancouver and FYI a lot of the Foundation fundraising has been promoting immunotherapies as well as this type of targeted therapy research. ANY cancer Tx advancements will ultimately benefit other fields of research and treatment.

GOOD things to come for Colorectal Canucks ... close to home.

Cheers
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Re: Calling ALL Colorectal CANUCKS !

Postby O Stoma Mia » Mon Feb 19, 2018 6:45 am

Belong Partners with Colorectal Cancer Canada to Provide Patients Treatment Management Tools at Their Fingertips

https://www.prnewswire.com/news-releases/belong-partners-with-colorectal-cancer-canada-to-provide-patients-treatment-management-tools-at-their-fingertips-672927023.html

Utwo
Posts: 211
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Calling ALL Colorectal CANUCKS !

Postby Utwo » Mon Feb 19, 2018 11:18 am

O Stoma Mia wrote:Belong Partners with Colorectal Cancer Canada to Provide Patients Treatment Management Tools at Their Fingertips

https://www.prnewswire.com/news-releases/belong-partners-with-colorectal-cancer-canada-to-provide-patients-treatment-management-tools-at-their-fingertips-672927023.html
I registered at a couple of Canadian CC web sites/forums and found them useless.
Now we are getting one more of these?
58 yo male at diagnosis - T1bN0M0, 0/15 lymph nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 CT scan, blood test ...
05/2016 "prophylactic" laparoscopic right hemicolectomy with a few complications (bleeding, leak, infection)
06/2017 CT scan (lower body), colonoscopy OK; CEA = 1.6

User avatar
CRguy
Posts: 9616
Joined: Sun Feb 10, 2008 6:00 pm

Re: Virtue and Moir

Postby CRguy » Tue Feb 20, 2018 10:28 pm

Just to take a quick detour from CRC stuff
I wanted to celebrate and share with EVERYONE
the incredible artistry, story and MESSAGE
of Tessa Virtue and Scott Moir

please watch this video ... 20 Years of Tessa and Scott, set to "Pull Me Through" by Jim Cuddy | Pyeongchang 2018
a retrospective of their careers with a Jim Cuddy (Blue Rodeo) soundtrack
AMAZING

Their Gold Medal performance yesterday is HERE

I am NOT traditionally a figure skating kinda' guy
I am more HOCKEY and martial arts :twisted:

BUTT when I was coaching hockey ( Hey I AM Canadian OK .. we ARE hockey !!!! )
I would always bring in figure skating / power skating coaches for our teams and their technical skills were awesome

NOW seeing Tessa and Scott DEFINE their own sport .... wow = WOW
That is a performance with NO EQUAL

WOW

Hey just wanted to share with homies here

Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Calling ALL Colorectal CANUCKS !

Postby Robino1 » Wed Feb 21, 2018 8:55 am

I'm a huge Olympics watching fan.

They are truly amazing. :D

Have you seen the Russian ladies figure skating? OMG artistry and athletic!
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e


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