Calling ALL Colorectal CANUCKS !

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2young
Posts: 14
Joined: Wed Apr 27, 2011 1:24 pm
Location: Ontario, Canada
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Re: Calling ALL Colorectal CANUCKS !

Postby 2young » Wed Jul 03, 2013 5:38 pm

RFA for bone mets
I'm wondering if any other fellow Canadians have received RFA for mets to the bone? My husband has a spinal met on his sacrum and I'm trying to determine if such treatment is available here, esp. hoping for Ontario!
Husband dx 01/10 Stage IV
15+ liver mets + lymph nodes
02/10 Folfiri/Avastin/5 FU
08/11 NED chemo break
12/11 LAR surgery
01/12 Mets sacral lesion-5 rounds rad
02/12 ostomy reversed
04/12 Folfiri/Avastin/5 FU
06/13 Sacral lesion back-possible RFA

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CRguy
Posts: 9488
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Wed Jul 03, 2013 6:08 pm

Maybe a bit of a sideways reply here but :
I will be researching the options for my father's mesothelioma palliation and meet with a Rad Onc in a couple of weeks. I know IMRT, SBRT and RFA are available for sure in Canada and one thoracic honcho is in BC. The head Onc for my father trained at Princess Margaret, so I would check them out for availability of Oncs and RFA access. Keep you in the loop if I find out anything else.

here is a quick reference for a series done at VGH in BC

Cheers and best wishes
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

2young
Posts: 14
Joined: Wed Apr 27, 2011 1:24 pm
Location: Ontario, Canada
Contact:

Re: Calling ALL Colorectal CANUCKS !

Postby 2young » Wed Jul 03, 2013 10:14 pm

Thanks CRguy! Right after I posted this, my husband's surgeon called and he has a consultation appt booked for RFA. Hoping all goes well!
Husband dx 01/10 Stage IV
15+ liver mets + lymph nodes
02/10 Folfiri/Avastin/5 FU
08/11 NED chemo break
12/11 LAR surgery
01/12 Mets sacral lesion-5 rounds rad
02/12 ostomy reversed
04/12 Folfiri/Avastin/5 FU
06/13 Sacral lesion back-possible RFA

nicola smith
Posts: 1039
Joined: Thu Oct 07, 2010 9:06 am

Re: Calling ALL Colorectal CANUCKS !

Postby nicola smith » Thu Sep 04, 2014 9:15 pm

Just a quick update. Today's CEA reading was 1.2. That makes this Canuck very happy.
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP :D

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CRguy
Posts: 9488
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Thu Sep 04, 2014 9:23 pm

That would make TWO happy Canucks then

'cos I am very happy for YOU !!!

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

disco nap
Posts: 989
Joined: Sat Aug 07, 2010 10:45 am

Re: Calling ALL Colorectal CANUCKS !

Postby disco nap » Fri Sep 05, 2014 7:28 pm

nicola smith wrote:Just a quick update. Today's CEA reading was 1.2. That makes this Canuck very happy.


Right on! It looks like you have your 5 year mark coming up very soon. Congrats!
DX July 2 '10 CC Stage IIIC, 11/18 nodes+
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 13 '12: Lynch Syndrome MLH1
"Declared well" and been well ever since.
Update: June 2017 - still NED.

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CRguy
Posts: 9488
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Fri Sep 05, 2014 10:44 pm

Damn …….time flies !!!!
You are right … the lung met came out spring 2010 … SO spring 2015 is five years from met-ectomy !
(scans and Dx late fall of 2009 )

I just keep concentrating on 7 years from primary resection (2007) so I guess this means I get a do over on my FIVER !
Cheers :mrgreen:
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Frenchie's Wife
Posts: 952
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Calling ALL Colorectal CANUCKS !

Postby Frenchie's Wife » Sun Sep 07, 2014 1:00 pm

There is a lot of useful information on this post. Some links to stuff on this earlier thread no longer work but this info is still very relevant. We should all try and update this info and keep it current.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Calling ALL Colorectal CANUCKS !

Postby KWT » Sun Sep 07, 2014 1:48 pm

Frenchie are you back on the juice? Wondering if you got that all worked out

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CRguy
Posts: 9488
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Sun Sep 07, 2014 3:25 pm

Frenchie wrote:There is a lot of useful information on this post. Some links to stuff on this earlier thread no longer work but this info is still very relevant. We should all try and update this info and keep it current.


Hey buddy,
That IS the issue with the internet … a lotta resources get moved and/or rewritten.
I know the Inspire Health pages have been updated by me 3-4 times and they are still changing !!!!!

Wish there was a better way :( ….. BUTT I have just checked all the links now today in this topic, and they are either updated or have a comment as to why they don't work. Let me know if you cannot find something.

BTW sent you another PM about the RV and would appreciate any input you have about it throwing tranny codes !!!!

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Calling ALL Colorectal CANUCKS !

Postby Maia » Sat Sep 13, 2014 9:16 pm

Canadian first: ultrasound used into a four-to-six month course of chemotherapy to determine whether treatment is working or not -instead of CT or PET scans (at the Sunnybrook, ON):

Cancer therapy tailored with ultrasound

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Frenchie's Wife
Posts: 952
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Calling ALL Colorectal CANUCKS !

Postby Frenchie's Wife » Sat Sep 13, 2014 9:40 pm

Kennedy T

The only juice I do is boost and ensure, I live on this stuff. I can have lunch in 30 seconds !
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

nicola smith
Posts: 1039
Joined: Thu Oct 07, 2010 9:06 am

Re: Calling ALL Colorectal CANUCKS !

Postby nicola smith » Tue Dec 09, 2014 1:04 pm

I want to get the message out about a Colon Cancer Canada fundraising initiative that's going on right now.

It's called Top To Bottom and is spearheaded by 40 oncologists, surgeons and cancer researchers in Calgary, London, Ottawa, Toronto, Vancouver and Winnipeg. Their goal is to raise $750K to support initiatives in local colon cancer communities. To date, the campaign has raised close to $512K.

There are some great incentives to giving.

75% of the net funds raised stays in the community that raised it. Your area cancer team will use the funds to support their projects in your community.

There are some great rewards. For example, each contribution of $250 gets you a $50 gift card for the participating restaurant of your choice plus a $200 tax receipt. A donation of $500 gets you two gift cards and a tax receipt for $400. And so on. If you want, you can choose to forego the gift card and get a tax receipt for the whole amount. There are also options for making a corporate contribution.

So Canucks, click the link for the Top to Bottom website and then click on the community/team/doctor of your choice to make a donation. Credit card and Paypal options are available.

http://ccctoptobottom.ca/

All of these doctors are passionate about putting an end to colon cancer. They deserve our support.

In my case, I am going to line up with the Ottawa team. Now I have to decide which of the excellent participating restaurants to choose - Rare, Salt, or Fresco. What a dilemma!

Thanks for reading this, thanks in advance for responding, and Merry Christmas!
Last edited by nicola smith on Tue Dec 09, 2014 11:53 pm, edited 1 time in total.
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP :D

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Calling ALL Colorectal CANUCKS !

Postby elise » Tue Dec 09, 2014 4:13 pm

I had a good giggle when I saw the Ottawa card/poster for it. My surgeon (Dr Auer) looks perfect as always but my oncologist (Dr Asmis) is wearing super wrinkled scrubs and looks terrible. I'd say his 3rd child was just born a few days before! He normally is so put together. Anyway, worth the giggle :)
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

B in Canada
Posts: 19
Joined: Sun Dec 07, 2014 12:29 pm

Re: Calling ALL Colorectal CANUCKS !

Postby B in Canada » Wed Dec 10, 2014 8:37 pm

I did a small donation to the Vancouver team (the Eagle R/RCH team-my surgeon is there). You can give whatever you are able to. I think it is great that the 75% stays at your team's hospital(s). I donated and sent a private msg to surgeon and and said see you on surgery day. Lol She thanked me for my donation on surgery morning.
Positive FIT test Spring 2013(intermittent blood=of course thought it was hemorrhoid) & finally got appt with colo-rectal surgeon Dec.2013 & then colonoscopy Aug. 2014
Sigmoid resection (laparoscopic) Nov. 2014 T3N0M0=colon 2A Female 53 yrs. old
Choice of to take Capecitabine(Xeloda) or not: did 2 rounds and then had to quit due to many side-effects(still have auto-immune/drug-induced arthritis problems)
Colonoscopy Fall 2015(few polyps), Jan 2017(couple polyps); all scans/CEA/monitoring good :D


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