Calling ALL Colorectal CANUCKS !

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Calling ALL Colorectal CANUCKS !

Postby elise » Thu Jul 02, 2015 8:17 am

We had slivers of sunshine through massive rain! Good 'nuf!

Happy Canada Day!
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Dual virus clinical trial : to treat CRC !

Postby CRguy » Sun Jul 12, 2015 3:12 pm

Canuck Head's UP !

There is a new clinical trial being run through a few Canadian sites, which has been detailed in another topic HERE

The actual trial listing is here

Cheers all
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Cancer survivorship program @ BCCA

Postby CRguy » Fri Jul 17, 2015 7:14 pm

Just announced : A New Chair in Cancer Survivorship for British Columbians
This partnership will mean enhancements for B.C.’s cancer survivors. Dr. Peacock will lead a coordinated research effort that aims to enhance the experience and health of individuals who are entering or transitioning out of cancer care.

We'll keep an eye on this for sure !

Cheers all
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Colon Cancer Companion book

Postby CRguy » Thu Nov 05, 2015 12:50 am

I have not spent a lotta time at Colon Cancer Canada but just reviewed their updated website and found a reference which could be a great benefit... especially to someone just starting to get into the nitty gritty of a CRC diagnosis.

It is an information book with itemized pages for journalizing treatment information, appointments, test results etc.

Available as hardcopy thru the site or as a free download, if anyone is interested
My Colon Cancer Companion

and while it addresses the Canadian patient, the overall format would be useful for anyone, including caregivers.

Best wishes
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

JJ2212
Posts: 268
Joined: Mon Oct 14, 2013 3:54 pm
Location: Montréal, QC

Re: Colon Cancer Companion book

Postby JJ2212 » Thu Nov 05, 2015 12:41 pm

CRguy wrote:
Available as hardcopy thru the site or as a free download, if anyone is interested
My Colon Cancer Companion


Thanks CRguy. I wished I'd had something like this when I was diagnosed. It recaps a lot of the information you get from various sources and seems very good to get you started on the path.
Rectal cancer dx 04/13 @ 42, MSS, KRAS positive
T3N2M1 (1 lung met)
5 weeks xeloda+radiation finished 07/13
APR 9/13 (permanent colostomy), 27/31 nodes positive :-(
12 rounds of FOLFOX 04/14
Lung met growth 11/14
26 cycles Regorafenib (Stivarga) from 11/15 to 01/17
New lung met and chest/neck lymph nodes 01/17
1 cycle Folfiri

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Fri Nov 06, 2015 10:26 pm

I agree ... it puts all the info and "thought processes" into a neat framework which can then be expanded and modified as needed.
It kind of lays out a set of guideposts for someone who has no idea "where they are headed"...
BUTT then ... who among us really knows that anyway, sometimes :?: :mrgreen:

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

POG program clinical trial info

Postby CRguy » Tue Nov 24, 2015 10:53 pm

Have not updated any POG info here lately but just wanted to link the latest clinical trial info for BC folks

Responsible Party: British Columbia Cancer Agency
Study First Received: June 2, 2014
Last Updated: October 29, 2015
https://clinicaltrials.gov/show/NCT02155621

and a recent program update from the BCCA itself : http://www.bcgsc.ca/project/pog

Cheers all
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Steph20021
Posts: 503
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Calling ALL Colorectal CANUCKS !

Postby Steph20021 » Sat Mar 19, 2016 2:35 pm

A Vancouver biotech company is currently offering the first 1500 people free gene testing with its new cancer genome test. It started taking applications this week. It's open to all Canadians not just BC. You can't be currently NED, they are hoping to assist those who are about to start treatment or need to switch treatment. Company returned my call within 24 hours. When it eventually becomes available to the public it will cost us about $1,000 to have it done. The woman I spoke to said its the largest scale this has been done here. It's not limited to just Crc folks. Check out the website of Contextual Genomics http://contextualgenomics.com for more info on the application etc.

http://www.ctvnews.ca/health/vancouver- ... -1.2815797
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Currently stable suce Aug/16- on folfiri

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Sat Mar 19, 2016 7:53 pm

GREAT find Steph !!!!!
Thanks for the info
We've had newsbites around here (BCCA / Vancouver / news feeds) about "some" genome testing / protocols / packages etc.
..... BUTT this is the first full scale rollout of what we need to see MORE OF !!!!!

Oh BTW did I say I am really liking this :
02/16- cea 2.4, normal ct

Cheers, Harmony and many more "normals" coming your way !
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Steph20021
Posts: 503
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Calling ALL Colorectal CANUCKS !

Postby Steph20021 » Sun Mar 20, 2016 1:39 pm

CRguy wrote:GREAT find Steph !!!!!
Thanks for the info
We've had newsbites around here (BCCA / Vancouver / news feeds) about "some" genome testing / protocols / packages etc.
..... BUTT this is the first full scale rollout of what we need to see MORE OF !!!!!

Oh BTW did I say I am really liking this :
02/16- cea 2.4, normal ct

Cheers, Harmony and many more "normals" coming your way !
CR


Thank you CR!!! I am pretty pleased with my current health state as of late too :)
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Currently stable suce Aug/16- on folfiri

User avatar
CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Sat Apr 02, 2016 9:35 pm

A new promo campaign from Colorectal Cancer Association of Canada

http://endangeredbutts.ca/

I've seen the butt / cleavage juxtaposition used before BUTT the body painting / butt crack is a new one !!!

Well done, and while the polar bears are cool, I am digging the Tiger !

Cheers All
CR

Image
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Frenchie's Wife
Posts: 948
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Calling ALL Colorectal CANUCKS !

Postby Frenchie's Wife » Sun Apr 03, 2016 9:53 am

I had to look at the tiger a few times to take in everything. It would take a lot of courage to walk around like that.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

squak
Posts: 12
Joined: Sat Apr 02, 2016 8:33 am

Re: Calling ALL Colorectal CANUCKS !

Postby squak » Mon Apr 04, 2016 9:35 am

Thank you, Steph!

What a great sounding initiative by Contextual Genomics and the Canadian National Access Program Cancer Genomics Test, especially as it may be free (albeit for only the first 1,500)! :o

I have just sent off a note to my oncology team asking them to take a look and see if they can refer me if I qualify. With no treatments started yet, I really believe I could benefit from such a service..

As a fairly new arrival to both - actually having CRC DX and The Colon Club - I am so grateful for all the resources accessible through this platform and forum here. Thank you for sharing, and congrats on your recent and positive news! I already feel better about the journey ahead, having you all as a community to travel with!

Needless to say, I am digging the tiger too! :lol:
01-12-2016: colonoscopy- large rectosigmoid mass
01-14-2016: path- CRC, adenocarcinoma, invasive, low grade, well diff. (39 yo @ DX)
01-25-2016: CT scan- no mets (pM0?)
02-20-2016: open LAR (pre-OP CEA 1.3)
03-01-2016: path- pT3 (11.5x4.2x4cm), pN0(i+) ie 1/34 lymph w/ isol.tum.cell)
04-20-2016: It was CRC Stage IIa. I'm NED!! (CEA is <1.0) :D
04-2016: 12-15% chance of relapse within 5 years
04-2016: No adjuvant therapy ie no chemo, no radiation. Follow-up in 6 mos.

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

HAPPY CANADA DAY !

Postby CRguy » Fri Jul 01, 2016 9:44 am

Wishing all a Happy Canad 'eh ... EH !!! :mrgreen:

Image

Cheers and Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Calling ALL Colorectal CANUCKS !

Postby DarknessEmbraced » Fri Jul 01, 2016 10:00 am

Happy Canada Day everyone!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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