Supremely romantic idea UPDATE

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Supremely romantic idea UPDATE

Postby Bev G » Mon Jan 23, 2012 1:53 pm

Hi all:

Steve finally got his chemo port put in this morning, and the bone marrow biopsy done (newbie explanation: I have stage IV CRC, husband got diagnosed a couple of weeks ago with stage IV lymphoma, not yet fully characterized). I am utterly flummoxed that the pathology is still not back from Mass General, and just can't figure out what to do about it. I am thinking of asking my onc to get it back and send it directly to MD Anderson. This node was removed 3 weeks ago Wednesday. I am also concerned because it looks to me that Steve is actually becoming somewhat cachectic, even though he is eating well. He's gone from 225 on 12/2 to 185 yesterday. It's very worrisome to me, and I have ordered some protein supplement (Unjury) and trying to give him all the calories I can.

But, here's the romantic part of "couples cancer" as I am liking to call it these days :roll: Steve and I are having back-to-back PET/CTs on Thursday. I was thinking we should draw straws about who would drive (ie the non-driver gets to take the pre-scan Ativan) Seriously though, he can't drive, and I hate driving, so I think I'm calling a cab, and by the time we're done, my son will be off work and can bring us home. We have to be there at 6am for Steve's scan, and even in the best of all possible worlds, I simply couldn't tolerate driving that early (and without COFFEE? no way!)

I apologize if I've already posted some of this information?? Now I'm thinking I have. It sounds so familiar, but that could be because it's what's up around here, if you know what I mean? Sorry, I'm a little out of it these days.

Thanks again for all the loving support. You guys are the greatest. Any prayers and chickens for the scans Thursday would be simply excellent, and very much appreciated.

With much love,

Bev
Last edited by Bev G on Wed Jan 25, 2012 12:48 pm, edited 1 time in total.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

User avatar
Icesk8tr
Posts: 1068
Joined: Sat Apr 30, 2011 11:37 am

Re: Supremely romantic idea, but I don't recommend it

Postby Icesk8tr » Mon Jan 23, 2012 2:01 pm

Hi Bev,
Swinging chickens and prayers coming your way for you and Steve. Definitely call a cab for the scan, and let your son bring you home.

Good luck.

Hugs,
Christine
Stage IV CC 2010

User avatar
hopeful
Posts: 1372
Joined: Mon Jan 04, 2010 11:43 am

Re: Supremely romantic idea, but I don't recommend it

Postby hopeful » Mon Jan 23, 2012 2:24 pm

Sending positive thoughts and prayers your way, Bev. There just has to be some good news in there somewhere.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

beth568
Posts: 961
Joined: Fri Mar 25, 2011 7:49 am
Location: Boston area, MA

Re: Supremely romantic idea, but I don't recommend it

Postby beth568 » Mon Jan 23, 2012 2:53 pm

Swinging a whole flock of chickens for you two!

And yes to the cab - or maybe check with your local American Cancer Society office and see if there are drivers available through their volunteer program.

Thursday will be my "good vibes for Bev" day. :)
Beth
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net

jscho
Posts: 417
Joined: Sat Apr 18, 2009 10:01 am
Location: Toronto, Canada
Contact:

Re: Supremely romantic idea, but I don't recommend it

Postby jscho » Mon Jan 23, 2012 3:44 pm

You can toast each other with barium smoothies!

Hoping for the best for both of you,
Jeremy
Colon cancer dx Feb. 24, 2009, T3/N2/M0
Right Hemicolectomy Feb. 26, 2009
Stage 3C: 4/19 positive nodes
High grade adenocarcinoma with tumor budding
FOLFOX6 April 15 - Oct. 1, 2009
Elective sub-total colectomy July 3, 2012 due to 2 DALMs
Currently NED

AJS
Posts: 753
Joined: Sun Feb 17, 2008 10:47 am
Facebook Username: Angie Jennings Stratton
Location: Virginia

Re: Supremely romantic idea, but I don't recommend it

Postby AJS » Mon Jan 23, 2012 4:47 pm

Sending many swinging chickens to you and Steve. Hoping for some good results as well.

Angie
[size=50][color=#FF00FF]Diverticulitis/Resection 12/27/07
Dx 1/08-Stage IIIA CC-2/15 Lymph Nodes-42 yrs old
2/08-8/08 -Folfox/Erbitux
Hysterectomy 3/09-CC on Ovary-Folfiri&Avastin
1/12-resection,bladder surgery,illeostomy
3/12-Illeostomy takedown
5/13-Folfiri/Avastin

User avatar
Patience
Posts: 834
Joined: Fri Dec 09, 2011 10:26 am

Re: Supremely romantic idea, but I don't recommend it

Postby Patience » Mon Jan 23, 2012 5:33 pm

Here is sending you a "basket of hugs".
"Sweet dreams till sunbeams find you.
Sweet dreams that leave all worries behind you."

sweeny
Posts: 149
Joined: Fri Jul 15, 2011 8:24 am

Re: Supremely romantic idea, but I don't recommend it

Postby sweeny » Mon Jan 23, 2012 5:48 pm

Hi Bev, thanks for sharing the update with us. Sending you lots of positive vibes, and praying for you both...

PS - you should speak to you onc about the pathology, 3 weeks is a long time to be waiting on this !
Diganosed Nov 2010, Aged 35 / Male
T3N0M0 CC
colon resection
12 rounds of FOLFOX - finished May 2011.

SkiFletch
Posts: 6361
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: Supremely romantic idea, but I don't recommend it

Postby SkiFletch » Mon Jan 23, 2012 5:54 pm

Double the radioactivity :D. Good idea on the whole taking a cab thing. Just not worth it otherwise :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

DeeNY
Posts: 119
Joined: Tue Nov 30, 2010 6:40 pm
Facebook Username: Doreen Fourazzo Scumaci
Location: New York

Re: Supremely romantic idea, but I don't recommend it

Postby DeeNY » Mon Jan 23, 2012 6:02 pm

Bev...

I'm totally with you on the driving. I hate driving also but have been doing it because my husband can't and i'm not liking it because he's a backseat driver.

Best of luck to you and Steve...I will be praying for good results....

Dee
Husband dx 9/06 48 yo mets to liver, lungs.
Colon/liver resect Folfox
VAT 2/08 and RFA 2 x's 5/09 Folfiri
Brain mets 6/11-Xeloda
Brain surgery/stereotactic radiation 2 x's
Whole brain radiation 1/12
Bronchoscopy 2/12
Under Hospice Care, passed away 6/5/12

User avatar
lohidoc
Posts: 454
Joined: Tue Aug 09, 2011 6:37 pm

Re: Supremely romantic idea, but I don't recommend it

Postby lohidoc » Mon Jan 23, 2012 7:22 pm

I'm continuing to send secret vibes to you guys. Is there a preliminary report that they could give you? Pester them!
"Half of what I know is wrong. I don't know which half."

Age 56
Dx 19/7/11
R. hemicolectomy 25/7/11
IIIc, 7 / 23 nodes,
no mets
Folfox 21/8/11
CT Scan 6/3/12 NED
CT Scan 21/6/12 30+ lung mets, 2 retroperitoneal tumours
marcdu4.wordpress.com

hart2hart
Posts: 798
Joined: Wed Nov 23, 2011 10:46 pm

Re: Supremely romantic idea, but I don't recommend it

Postby hart2hart » Mon Jan 23, 2012 7:45 pm

Hi Bev -

Flummoxed......aha......a GREAT scrabble word!!

Get that cab for you and steve!! I'm thnking of you two and sending you lots of hugs.
Did you catch them? Hope so.



Julie H.
Stamford, CT
Hubby-Pete (59) LRC - 11/11
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020

seva
Posts: 413
Joined: Tue Jun 22, 2010 2:28 pm

Re: Supremely romantic idea, but I don't recommend it

Postby seva » Mon Jan 23, 2012 9:42 pm

Love the title of this postl

A family that scans together.....

I like the idea of ACS ride program.

Best wishes for both scans.

Many prayers for both of you.
RC 10/09
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!

User avatar
horizon
Posts: 1669
Joined: Tue Apr 12, 2011 10:10 pm

Re: Supremely romantic idea, but I don't recommend it

Postby horizon » Mon Jan 23, 2012 9:58 pm

Good luck in the scans!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

las
Posts: 758
Joined: Wed Jul 20, 2011 3:43 pm
Location: Houston, TX

Re: Supremely romantic idea, but I don't recommend it

Postby las » Mon Jan 23, 2012 10:14 pm

Bev,

Thinking of you everyday and hope things go well on the scans. I hope you have some brighter days real soon.

Lisa
Lisa
Fiance DX 6/27/11 CC IV w/liver mets,adrenal glnd,pet.
7/25/11 folfox
8/2/11 surg.colon wall prefor.no removal of tumor
8/24/11 folfox ,3/12 5FU, 5/12 irinitecan failed, 7/12 didn't qualify regronfenib
8/13/12 Hospice, 8/18/12 married, died 9/10/2012


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google Feedfetcher and 117 guests