Still in hospital - update

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Terry
Posts: 5536
Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Still in hospital - update

Postby Terry » Mon Jan 23, 2012 1:49 pm

Well, I'm still here. Doing much better and hoping to get out of here today. It's noon and no sign of the doc yet, I'm sure he'll be up eventually.

The staff have been really nice up here, can't complain about that for the "most" part. The food however :shock: leaves a lot to be desired. I'm not a picky eater, but I guess when it comes to liquids I am. I can have broth; theirs is the worst broth I've ever had (salt free I'm sure). I can have cream of chicken, cream of mushroom and cream of tomato soup. I HATE tomato soup, always have. Two days ago they bought me tomato soup and I didn't make a big deal out of it and gagged it down, told the nurse I don't like it and she said it would be taken care of. Well, for lunch and dinner what did they bring me? Tomato soup:( YUCK! I also said I don't like white milk, ensure or cream of wheat or oatmeal. Those are the staples that have been on my tray. Just writing this I think, gosh I really am a picky eater;) Only with this weird type of diet. I had my daughter pick me up some cream of broccoli soup from subway last night and some spicey cream of corn chowder from the cafeteria today and those were really good. I just picked out the corn and didn't eat any large pieces of broccoli.

Changed my bag all by myself Saturday and have been emptying with no problem. I'm still kind of tired and since I don't have a computer can't check everything written from each of your lives. I'm stilll praying for each of you and hope you're doing well. My new screen came for my computer and my DH said he would get it on for me tonight and then I can get updated.

I pray you're all doing well.

Thanks for the cards and for the flowers Sweeny and Jaynee, I love them:)

Terry
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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Icesk8tr
Posts: 1068
Joined: Sat Apr 30, 2011 11:37 am

Re: Still in hospital - update

Postby Icesk8tr » Mon Jan 23, 2012 1:55 pm

Terry,
You sound GREAT! Glad to hear you are doing well. Hope you get home today :D

Christine
Stage IV CC 2010

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Still in hospital - update

Postby BrownBagger » Mon Jan 23, 2012 1:59 pm

You do sound great, Terry. Sorry about the food. I had some pretty gruesome cream of mushroom (or was it celery?) soup my second time in the hospital. Grossed the nurse right out (and this was the colorectal ward, so you know they deal with nasty stuff all the time). She said, "What's that?" "Cream of mushroom soup. Why, you want some?" "No thanks, I'm trying to cut down on cream of mushroom soup."
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: Still in hospital - update

Postby so-scared » Mon Jan 23, 2012 2:34 pm

I am glad to hear that you are doing well! I hope they spring you today and that you have a speedy recovery!
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

NWgirl
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Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Still in hospital - update

Postby NWgirl » Mon Jan 23, 2012 2:40 pm

Terry you sound great! And the food does sound awful. I like cream of tomato; but since I gave up dairy I haven't had it. I suppose I could make it with soy milk. :?

I'm so impressed that you have already changed the bag by yourself! Congrats! When I first had my ileostomy back in 2007 it took me a week before I'd even LOOK at my abdomen. The first time I changed my bag by myself, I still made my husband be in the room with me because I was so scared. You are light years farther along than I was!

I hope you're home soon with better food and all the other comforts of home.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

RixInPhx
Posts: 1904
Joined: Fri Oct 08, 2010 11:53 pm
Location: Phoenix

Re: Still in hospital - update

Postby RixInPhx » Mon Jan 23, 2012 3:05 pm

Glad you're fiesty enough to be a picky eater!! :)

Hope you're out soon,
Rick
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

DeeNY
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Facebook Username: Doreen Fourazzo Scumaci
Location: New York

Re: Still in hospital - update

Postby DeeNY » Mon Jan 23, 2012 6:15 pm

Terry...

Hope you were able to go home and wishing you a speedy recovery...

Dee
Husband dx 9/06 48 yo mets to liver, lungs.
Colon/liver resect Folfox
VAT 2/08 and RFA 2 x's 5/09 Folfiri
Brain mets 6/11-Xeloda
Brain surgery/stereotactic radiation 2 x's
Whole brain radiation 1/12
Bronchoscopy 2/12
Under Hospice Care, passed away 6/5/12

Future_Med
Posts: 138
Joined: Sun Mar 06, 2011 7:15 pm

Re: Still in hospital - update

Postby Future_Med » Mon Jan 23, 2012 6:26 pm

Terry,

Glad you're doing well. I'm sorry you're having to deal with those food issues :( I don't like ensure or white milk either, and the last few hospital stays when I've been on liquids only (when they finally let me have liquids, darn blockages) every single breakfast tray had both of them on it :( Hope you don't get any more of the stuff you don't like, and that you get out of there soon :)

Aideen
Diagnosed colon cancer Stage 1 November 30, 2010 Age: 27
Collectomy December 24th, 2010
Genetic Testing back December 19th 2011. Familial Adenomatous Polyposis confirmed

Mona
Posts: 910
Joined: Wed Jan 19, 2011 10:27 am
Facebook Username: maria kucharek
Location: NY

Re: Still in hospital - update

Postby Mona » Mon Jan 23, 2012 7:13 pm

Terry,
you are complaining, it means that you are must getting better. I am so sorry about the food. During my last hospital stay in MSKCC, the food was good, I was getting menu and I have been ordering my meals thru the phone, really nice thing.
Praying for you.
Much love.
Maria
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

hart2hart
Posts: 798
Joined: Wed Nov 23, 2011 10:46 pm

Re: Still in hospital - update

Postby hart2hart » Mon Jan 23, 2012 7:24 pm

Hi Terry -

ahhhhhh....i hate tomato soup too!!!! ummmmmm....are your dreaming of chicken noodle soup
right now? Just made some for Pete ---- wish I could be like Judy Jetson and send it your way!

Lots of Hugs Terry,


Julie H.
Stamford, Ct
Hubby, Pete (59) LRC
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020

Staci's team
Posts: 386
Joined: Fri Sep 25, 2009 9:43 am
Location: Canfield, Ohio
Contact:

Re: Still in hospital - update

Postby Staci's team » Mon Jan 23, 2012 8:40 pm

Terry, glad to hear that all has been going well so far....continued prayers for an uneventful discharge from there ASAP!

Chris
Husband to Staci, diagnosed at age 32
Clinical dx Stage II/III rectal cancer, 7/2009
APR surgery 11/09 leading to...
Pathological dx Stage IIIB, ypT3N1M0, 11/2009
http://www.caringbridge.org/visit/staciwills
Member of The Colon Club's Board of Directors

Toby57
Posts: 88
Joined: Thu Sep 29, 2011 1:30 pm
Location: Texas

Re: Still in hospital - update

Postby Toby57 » Mon Jan 23, 2012 9:15 pm

Hospital food is not fun Terry, glad to hear you are doing well. Goodluck.
54/ Father of 4 . Married to a loving wife
Dx cc Oct.2010/ colon resection,40cm of colon removed.
Stage 3B , 4/37 nodes.
T3N2A, kras Wild
Completed 12x Folfox , June 2011.
Clear Scans June & Dec, 2011, CEA normal.
Live , give , and forgive.

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horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: Still in hospital - update

Postby horizon » Mon Jan 23, 2012 9:58 pm

Thank you for the update. Hope you get out of there soon and get some real food!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

jens22
Posts: 1013
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Still in hospital - update

Postby jens22 » Mon Jan 23, 2012 10:03 pm

It's great to hear from you. You're the true inspiration of "Do what You've got a Do!" Warm thoughts and energy coming your way.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

peadubb
Posts: 52
Joined: Sun Jul 05, 2009 10:48 am

Re: Still in hospital - update

Postby peadubb » Mon Jan 23, 2012 10:12 pm

Terry

Hope you are out of there and home soon! Thank goodness you were able to have something other than the "mystery" soups at the hospital :roll:
It's hard enough to have an appetitie without having to look at some of that stuff!

Prayers and best wishes are flying your way

Cheers and hugs

Pamela
Husb dx IIIb Jan/9
Resect Jan/9
12 trts 5FUV/Ox
Stg 4 Nov/11
Lung /liver mets Nov/11
Myxoma Dec/11
Liv resect Dec/11
Lobect Jan/12
Heart Mar/12
aorta/liv Sept/12
GIFIRB Feb/13
Embolism Apr/13
chemo Nov/13
End chemo December 2014
Start Stivarga Feb 2015 Scan on April 14, 2015


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