Monitoring Q - couldn't find thread answers

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Jen
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Joined: Thu May 22, 2008 10:22 pm

Monitoring Q - couldn't find thread answers

Postby Jen » Tue Jan 17, 2012 2:05 pm

I guess I could call my onc, but I have been in avoidance since I was told I had a clear Pet over the phone. For the first time (I am now almost 4 years out from 3C) I didn't review or ask for the report because I have realized it always lists some oddity that I wonder if it is cancer...so the doc over the phone said "see you in 6 months" I didn't question it, just hung up and breathed a sigh of relief for the holidays.

My CEA has been over 4.0 (5, 5.4, 5.8,5) varying in a above normal range (and I'm not a smoker, but I do sit around bonfires). These scans had me stressed because CEA v.s. show of recurrence can be 8+ months or whatever. Cea may be a good indicator for me so it's hard for me to believe that is could be my new normal (at dignosis I was 6, went down to the 2's after chemo, and have been @ 4-5ish for the past year.

Anyway, just offhand how often at 3.5 years do others have their CEA checked and office visits at this point?
2008 March 37th Bday DX :( T3N2M0
3C Rectal Cancer, 5cm tumor, 4/33 nodes positive
28 tx IMRT Radiation, 12 tx Folfox, 1 month Xeloda
5 years NED 3/14/2013!

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eitter
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Location: Tempe, AZ
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Re: Monitoring Q - couldn't find thread answers

Postby eitter » Tue Jan 17, 2012 2:10 pm

Jen wrote:Anyway, just offhand how often at 3.5 years do others have their CEA checked and office visits at this point?


I am 5.5 years out and still get my CEA and CA125(I had a high reading early on, this is actually an ovarian marker), I get them done every 3 months still. Have not been told this will change any time soon.
Blessings,
Liz DENNIS
Tempe,AZ
DX 05/06 Rectal
6 Weeks radiation with 5FU
LAR 10/06 Stage III
Temp Ileo, reversal failed in 05/07 after 1m in hospital came out with a permanent colostomy
http://www.runlizrun.com

disco nap
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Re: Monitoring Q - couldn't find thread answers

Postby disco nap » Tue Jan 17, 2012 6:46 pm

IIIc here and I will get cea every 3 months and ct once a year until i'm at 5 years.
DX July 2 '10 CC Stage IIIC, 11/18 nodes+
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 2012: Lynch Syndrome MLH1
"Declared well" and been well ever since.
Update: Jan 2023 - still NED.

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Juliepie
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Location: Calgary, Canada

Re: Monitoring Q - couldn't find thread answers

Postby Juliepie » Wed Jan 18, 2012 12:25 am

Also stage III here and just had my 3 year scan/results. I get my CEA and MRI done every 6 months until the 5 year mark.
Dx Colon Cancer 12/04/08 Surgery (right hemi) 11/28/08 at the age of 29
Stage III T3N1M0
1 out of 35 lymph nodes positive
31 years old now
Started FOLFOX Jan 20/09, finished July 3 2009 (yay!!)
NED!!

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dianetavegia
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Monitoring Q - couldn't find thread answers

Postby dianetavegia » Wed Jan 18, 2012 9:15 am

Stage III and I have my blood work done every six months but will have my final CT Scan in late Feb. That will be 3 years 2 months after surgery.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

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Jen
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Re: Monitoring Q - couldn't find thread answers

Postby Jen » Wed Jan 18, 2012 12:49 pm

Thanks for the replies - most seem to still get CEA every 3mo and scans at 6mo - I think I will keep along that route.
2008 March 37th Bday DX :( T3N2M0
3C Rectal Cancer, 5cm tumor, 4/33 nodes positive
28 tx IMRT Radiation, 12 tx Folfox, 1 month Xeloda
5 years NED 3/14/2013!


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