Question for caregivers please extreme fatigue

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Jimswife
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Question for caregivers please extreme fatigue

Postby Jimswife » Mon Jan 09, 2012 9:07 am

Hi
Just wondering if any of you caregiver experienced extreme tiredness ?? In finding myself sleeping all night 10-12 hours and still being tierd all day , really tierd , I dropped my son of at school at 9am this morning and went back to bed and only just woke up now at 2pm , this is after a full nights sleep ?? It's gone on for about 3 weeks or so now , don't know if it's maybe the stress of the last 4 months creeping up on me or someone suggested low iron ? I've made a doctors appointment anyway to get checked over , it's just not like me , I've got Ivf coming up in the next couple of months and want to be in as good a shape as possible for that , these past few week you would think it was me with the illness and not my husband as he's doing great and is the picture of health , I'm just so extremely tierd all the Time .
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

karenM
Posts: 480
Joined: Sun Jan 11, 2009 1:45 pm
Location: Western NC

Re: Question for caregivers please extreme fatigue

Postby karenM » Mon Jan 09, 2012 9:15 am

I do know that extreme stress can have an effect on the body. I would have your Dr. check your blood counts just to be sure. You might not be eating to well. Good luck
Colon cancer found Nov 08- stage 3
Surgery Dec 16th 08
in hosp 16th to 23,
28th to 1st of Jan for blockage
port put in Jan 12th
Chemo started Jan 09-
ended July 09
Hospital for a wk in April for bleeding.
As of Aug 09 am NED! Thank GOD!

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Bev G
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Re: Question for caregivers please extreme fatigue

Postby Bev G » Mon Jan 09, 2012 9:19 am

Hi Victoria:

I would think that your fatigue could be explained by how exhausting it is to take care of someone all night and all day without stopping. I would more think it could have something to do with having some degree of depression, because, well, why wouldn't you? Life has thrown you an enormous curve ball. It is emotionally exhausting to wonder where things are going, how you'll get there, what will happen next, is there a fast ball coming, etc, etc. I'm glad you've made an appointment to see your doc. Please discuss all your symptoms with him/her, and see if getting on an anti-depressive and hooking up with a counselor just might make some sense. There is NO SHAME in that! It is, in fact, the emotionally healthy thing to do.

Best of everything to you, dear.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Jimswife
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Re: Question for caregivers please extreme fatigue

Postby Jimswife » Mon Jan 09, 2012 9:19 am

I'm eating well , our lifestyles have changed completely in the last 3 months , infact if anything I should be in tip top shape . Maybe I need some kind of vitamin / iron supplement ? I suppose the doctor will do various tests . I think stress probably does play a part too though .
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: Question for caregivers please extreme fatigue

Postby Jimswife » Mon Jan 09, 2012 9:22 am

Thanks Bev , I don't know what the problem is ? I don't feel poorly or anything I'm myself , like I said earlier with all the healthily eating / drinking / lifestyle changes I should be exactly the opposite .
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Question for caregivers please extreme fatigue

Postby Guinevere » Mon Jan 09, 2012 9:30 am

I think you're totally stressed out and it's your body's way of dealing with the stress. I agree with Bev, talk to your doc and see if you might need an anti-depressant for a while.
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

JennyB
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Joined: Mon Sep 21, 2009 10:59 am
Location: St. Louis

Re: Question for caregivers please extreme fatigue

Postby JennyB » Mon Jan 09, 2012 10:38 am

It could be stress, and the change in diet (though for the better) could have knocked some things out of whack. I would definitely get your blood counts checked and see if you are maybe iron or vitamin d deficient. You need to take care of yourself, too! :mrgreen:
Jennifer
Wife of Scott, diagnosed at age 34 on 3-27-09, now 37
Stage III-C CC, 15 out of 36 nodes involved
Ulcerative colitis since age 11, colon removed 3-25-09
He finished Folfox on 9-23-09
Permanent ileostomy March 2012
NED so far!

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Jimswife
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Re: Question for caregivers please extreme fatigue

Postby Jimswife » Mon Jan 09, 2012 10:44 am

I know , I can't get a doctors appointment for another week , in the meantime my sister has given me a multi vitamin with iron supplement. I'll see if that helps any . I look so rough too with the puffy dark circles under the eyes and the pasty drip white complextion , dosent help here in the uk that we never see / feel sunshine on our skin . Rain / cloud / cold / frost and wind is all we have to look foward to weather wise .... Roll on July when we go to Cyprus , we will all certainly be more than ready for a break and a bit of sunshine .
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

JennyB
Posts: 240
Joined: Mon Sep 21, 2009 10:59 am
Location: St. Louis

Re: Question for caregivers please extreme fatigue

Postby JennyB » Mon Jan 09, 2012 10:48 am

Jimswife wrote:I know , I can't get a doctors appointment for another week , in the meantime my sister has given me a multi vitamin with iron supplement. I'll see if that helps any . I look so rough too with the puffy dark circles under the eyes and the pasty drip white complextion , dosent help here in the uk that we never see / feel sunshine on our skin . Rain / cloud / cold / frost and wind is all we have to look foward to weather wise .... Roll on July when we go to Cyprus , we will all certainly be more than ready for a break and a bit of sunshine .

Try taking vitamin d too in the meantime.
Jennifer
Wife of Scott, diagnosed at age 34 on 3-27-09, now 37
Stage III-C CC, 15 out of 36 nodes involved
Ulcerative colitis since age 11, colon removed 3-25-09
He finished Folfox on 9-23-09
Permanent ileostomy March 2012
NED so far!

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very worried husband
Posts: 130
Joined: Mon Mar 28, 2011 1:20 am

Re: Question for caregivers please extreme fatigue

Postby very worried husband » Mon Jan 09, 2012 11:05 am

Hi Jims Wife!!

I have experienced the same thing for the last 11 months after the diagnose of my wife's cancer. sleep for hours, still when i wake up, i am even more tired....sleeps a lot over the weekend ...I started getting worried and went to see my GP. she did many many tests which luckily all came clear. Started multivitamins, but still i am feeling the extreme fatigue. So I suppose its the same tension about the health of our loved ones.......
check with your GP and make sure everything is OK........
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)

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Jimswife
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Joined: Fri Nov 18, 2011 9:53 am

Re: Question for caregivers please extreme fatigue

Postby Jimswife » Mon Jan 09, 2012 11:15 am

Yes I think it's probably a combination of things , is your wife doing ok now ?
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

simon031003
Posts: 553
Joined: Mon Jan 17, 2011 10:17 pm
Location: Central Texas

Re: Question for caregivers please extreme fatigue

Postby simon031003 » Mon Jan 09, 2012 11:26 am

I used to feel like that at times. I truly believe mine was stress and worrying about the what if's too much. When I finally came to the realization that my worrying wasn't going to change anything and I let it all go, I suddenly started feeling better. I know that sounds overly simplified, but that was it in a nutshell. I finally said, Is worrying about this going to change whether or not my dh has a recurrence? Of course not, so I need to take care of myself (physically and emotionally) because my husband and kids need that from me. I am not saying that is what is going on with you, but that was my experience.
Michelle wife of Esteban
T3N1M0 12/31/10
Folfox 2/22/11
9/19/2011 confirmed cancerous lymph nodes via biopsy; started FOLFIRI with Avastian turned into FOLFIRI with Ebritux now FOLFIRI w Vectibux 12/12 mets to liver and pancreas
2/17/13 resting in Heaven

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very worried husband
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Joined: Mon Mar 28, 2011 1:20 am

Re: Question for caregivers please extreme fatigue

Postby very worried husband » Mon Jan 09, 2012 11:30 am

Jimswife wrote:Yes I think it's probably a combination of things , is your wife doing ok now ?


Thanks Jimswife. Yes, she is doing great. Just had yearly colonoscopy, CT and blood tests about a month ago, all came back normal.... She got her treatment in China.
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: Question for caregivers please extreme fatigue

Postby Jimswife » Mon Jan 09, 2012 11:31 am

Brill , what stage was she ? How come she had treatment in china ??
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

User avatar
very worried husband
Posts: 130
Joined: Mon Mar 28, 2011 1:20 am

Re: Question for caregivers please extreme fatigue

Postby very worried husband » Mon Jan 09, 2012 11:51 am

Jimswife wrote:Brill , what stage was she ? How come she had treatment in china ??


She was staged 3B at the age of 25. 7/29 Nodes positive ( I am not 100 % SURE, as the path report says 3 cancerous nodes and 4 had metastasis!!! chinese translated to english!! so i guess 7 were positive).. She is from China and was diagnosed there. had to bear all the cost of operation and chemo as it is not free in China and she had no insurance there. we could have done it in Uk or Canada as she was insured here, But anyway I am glad that all went very well for us SO FAR.... we are blessed that we have two great families, and everyone was so supportive...
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)


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