HELP!! + 12/5 BRIEF UPDATE

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las
Posts: 758
Joined: Wed Jul 20, 2011 3:43 pm
Location: Houston, TX

Re: HELP!!

Postby las » Tue Jan 03, 2012 7:15 pm

Oh Bev,

I am so sorry to hear this, its not fair to have to deal with this, I know. The only thing is, that you have been there and done it and can understand and relate to what he might have to go thru, which is not much consolation. I will pray that it is something other than what you have posted. You need to remember that you need to keep yourself in good health during these hard times, I know its hard, but you have to worry about your health as well in order to be there for him. Besides the martial problems, which any cancer DX can cause stress on the relationship anyway, maybe now will be the time that you both will become closer and will fight this together. I will be praying for both of you honey.

Love and hugs Bev,

Lisa
Lisa
Fiance DX 6/27/11 CC IV w/liver mets,adrenal glnd,pet.
7/25/11 folfox
8/2/11 surg.colon wall prefor.no removal of tumor
8/24/11 folfox ,3/12 5FU, 5/12 irinitecan failed, 7/12 didn't qualify regronfenib
8/13/12 Hospice, 8/18/12 married, died 9/10/2012

sg101
Posts: 95
Joined: Sat Jun 18, 2011 3:52 am

Re: HELP!!

Postby sg101 » Tue Jan 03, 2012 7:18 pm

Bev, I am SO sorry to hear of this! As others have said, this is certainly not your fault. If you feel that you need to be there for him, then be there for him, but if the abuse continues then I would highly advise an exit strategy. I do think that counseling is a good idea. It obviously won't change the facts, but at least you may find it easier to cope with the situation. For what it's worth, my dad's cousin was diagnosed with diffuse large B cell lymphoma about 18 months ago. He received rituximab + CHOP + radiation on an investigational protocol and had a complete response. He continued to work throughout his treatment and is currently NED. I am sending you hugs and positive vibes for the best possible outcome.
T2N1 RC DX 9/2009 at age 47, mom of 2 young kids
6 weeks 5FU/rad 10/2009
LAR/TME temp ileo - complete response 1/2010
8 cycles FOLFOX 3/2010
Abscess due to 'microleak' 8/2010, 1/2011
Leak repair 4/2011
Ileo reversal 7/2011 (finally!)

SkiFletch
Posts: 6361
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: HELP!!

Postby SkiFletch » Tue Jan 03, 2012 7:26 pm

Wow, that's a whole heaping pile of lame Bev, so sorry to hear that. Will definitely say some prayers for the both of you. Whatever you need, just ask ;)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: HELP!!

Postby mymom » Tue Jan 03, 2012 7:31 pm

Bev- so sorry to hear this. You did not cause anything so I would not focus on that. I will say a prayer for you both.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: HELP!!

Postby chrissyrice » Tue Jan 03, 2012 7:51 pm

I am praying for you and your husband.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

beth568
Posts: 961
Joined: Fri Mar 25, 2011 7:49 am
Location: Boston area, MA

Re: HELP!!

Postby beth568 » Tue Jan 03, 2012 7:53 pm

My dear Bev, I'm so, so sorry to hear this. Not what you need, certainly not what you deserve, and MOST DEFINITELY not something you've caused (but you know that).

My heart is with you, as are my hopes that you and your husband will find a way to get through this. Perhaps this difficult mess will find a way to bring you closer.
Beth
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: HELP!!

Postby Guinevere » Tue Jan 03, 2012 8:02 pm

I, too, am so sorry for this, Bev. You know you didn't cause it because thoughts are just that - thoughts. If you had that kind of power, you wouldn't be in the physical mess you've been in, right?
I'll be praying for a better dx than it looks like at this moment and for you to have the strength to go through whatever it is with him whether he deserves it or not.
I'm also sending a hug 'cause, girl, you need it!!
Image
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

IceGal
Posts: 39
Joined: Fri Dec 09, 2011 6:28 pm
Location: Calgary, AB

Re: HELP!!

Postby IceGal » Tue Jan 03, 2012 8:04 pm

Dear Bev,

I'm new here, so I hope you don't mind my responding, but there are a few things that I think you really need to know.

First, please try to forget the guilts - you did NOT cause this.

Second, please try to get some outside help for your sake - I don't think there are many people who have the tools on their own to know how to deal with things like this.

Third, please know that there are many different types of lymphoma, and that they are all very different from solid-tissue cancers such as colorectal cancer. Stage IV is just as treatable as Stage I for lymphomas, because they are all systemic cancers. The indolent versions, such as follicular, aren't considered curable, but are considered treatable (I personally know folks who are 20 years past diagnosis), while the b-cell aggressive versions, such as diffuse large b cell, have an excellent prognosis regardless of staging. A really good site for information on lymphomas is http://www.lymphomation.org. This is a patient website that is science based.

Fourth, there is an on-line support group for lymphomas at http://forums.lymphoma.com/index.php that is much like this one --- full of friendly, knowledgeable folks who will be there to support you all the way through this.

My first husband passed away 8 years ago from lymphoma and it was the info and support from both of those sites that really helped both of us throughout his illness. He had a very rare type of lymphoma, so please don't be scared that he didn't make it - it's extremely unlikely that your husband has the same type.

I don't have enough posts in yet to send you a pm, but please drop me a note if you want to chat about lymphoma (or anything else) and I'll figure out a way to get back to you.

Sending you strongest thoughts...
dx 09/21/11 CC Stage II T4b N0 Mx
Right hemicolectomy 09/22/11
Xelox 8 cycles begun 11/22/11
Oxali dropped after 2 cycles due to side-effects; Xeloda only
Chemo done 05/07/12
Hysterectomy 07/24/12 benign
NED 'til 07/15/15 - whole pile of lung thangs on the CT
hangin' in for biopsy and treatment plan...

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pmterra
Posts: 599
Joined: Fri Jul 01, 2011 6:12 pm

Re: HELP!!

Postby pmterra » Tue Jan 03, 2012 8:10 pm

Wow, I'm so sorry Bev! First for making light of the fact that you were were about ready to clock him after his surgery. I didn't have any idea how serious your marital issues were and how much you were struggling to keep it together. Secondly, for having to go thru this whole thing as a caregiver! Not that the caregiver role is more difficult but it's definitely different. I agree with all the others in saying that your thought about him going thru chemo had anything at all to do with what's going on. Although, it may explain a lot about his behavior towards you during your dx and treatment.

Before my husband was diagnosed he was very anemic and his brain wasn't working normally. He was forgetting things and I remember being mad at him b/c I thought he was doing it on purpose...sort of having a selective memory. He couldn't multi-task and would blame me for interrupting his routines and "making" him forget things. We had some of our biggest and most heated arguments then. I felt horrible that I didn't put all the signs together and figure out that something wasn't right and thought maybe if I would have, his cancer wouldn't have progressed as far as it did. I know now that it wasn't my fault - I was living in my happy little world where thoughts of cancer or serious illness were far, far away. Even after he was going thru chemo and was very self centered in how this whole thing was affecting our family, I had a thought that maybe if I got cancer, he'd know how it feels to watch someone you love go thru hell and live with the fear that you might lose that person. I'm really ashamed of that thought!!!!

The point being that you did recognize that something wasn't right and took action. Only a loving, caring spouse does that. Please don't punish yourself for being human. My prayers are with that things are not as bad as they seem and maybe this will be a wake up call for your DH to realize what a wonderful wife he has and how easily that can be lost. love and hugs....

Paula
caregiver to survivor husband
Stage 3C - Colon
surgery June, 2008
6 mo. chemo/FOLFOX & Avastin
June 2015 - 7 year survivor :)

Grace14
Posts: 418
Joined: Mon Oct 24, 2011 7:42 pm

Re: HELP!!

Postby Grace14 » Tue Jan 03, 2012 8:12 pm

I am so sorry to hear this news!! You are in my thoughts and prayers.
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

Mojo
Posts: 729
Joined: Sat Mar 26, 2011 1:43 pm

Re: HELP!!

Postby Mojo » Tue Jan 03, 2012 8:15 pm

Bev, so sorry to hear this, I certainly will be praying for you both. Sometimes you wonder why bad things have to happe? But we just go around or through them. He is blessed to have such a smart person for a wife. Sending you a hug
colon cancer stage 3 2n0mets 2002
cancer returns march 2010
emerg brain surgery, chemo may 2010 sterotactic radiation april 2010

progression of tumors march 2011 new chemo camptosar leukovorin 5fu avastin
Kenny age 58/died 11/21/11

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elissa
Posts: 591
Joined: Mon Sep 20, 2010 1:52 pm
Facebook Username: elissa fenster cazassus

Re: HELP!!

Postby elissa » Tue Jan 03, 2012 8:22 pm

My dear Bev,
I had been very worried about you lately as you were noticably absent. Then I saw your post last week, and was very concerned. I am so, so sorry for all you are going through. Those "thoughts", well you need to just let them go, or they will become a poison eating away at you. I pray that they are wrong about your husband and that is it something less severe. If not, I am very sad to welcome you to the wives club. I am sending you only the most positive of thoughts and prayers. Hope to hear something good from you soon.
Love,
Elissa
Wife of John, 52
Dx cc 9/3/10; Stage IV
14/25 LN; 2 liver mets
Lynch: MSH2; KRAS mutant
Colon resection 9/9
Various complications
12 rounds of FOLFOX/FOLFIRI
was called home on 4/30/11

sweeny
Posts: 149
Joined: Fri Jul 15, 2011 8:24 am

Re: HELP!!

Postby sweeny » Tue Jan 03, 2012 8:25 pm

Oh Bev, I am so sorry to hear this news. I've just seen another post from Janey regarding her mother. It really does feel like this year has started off badly for some of our members. Please get rid of any lingering doubts that some thoughts you may or may not have had, caused this. You know better than that ! This is just a horrible, horrible dose of bad luck. I wish I could say something other than my thoughts and prayers are with you, and I hope it turns out to be a false alarm. If it is Lymphoma, then please may it be early early stage. Incidentally, my newphew was diagnosed with Lymphoma just a few weeks shy of his 18th birthday, and almost 3 years to the day he's doing real good right now, and another good friend of mine is 10 years out of a Lymphoma diagnosis.

Stay strong,
x
Diganosed Nov 2010, Aged 35 / Male
T3N0M0 CC
colon resection
12 rounds of FOLFOX - finished May 2011.

clarabelle64
Posts: 1022
Joined: Sat Nov 14, 2009 2:27 pm
Facebook Username: claire beaumont

Re: HELP!!

Postby clarabelle64 » Tue Jan 03, 2012 8:29 pm

Bev, I am with you, praying and thinking of you as you face this new challenge with your husband. I feel sad that you are still fighting your own monster and now this evil has been waiting to pounce....stay strong and calm....as you advise so many of us here my dear, one day at a time, one breath at a time,
every best wish
Clarabelle XX
Clarabelle, Mother of Deborah who has CC with mets to liver + lungs.
Has been on Folfiri then 5FU + Oxi
Lung Mets progressed
Currently on Intravenous Vit C + diet + supplements
My darling girl passed away 18.8.2011

Seriously, WTF?
Posts: 602
Joined: Wed Nov 17, 2010 10:48 pm

Re: HELP!!

Postby Seriously, WTF? » Tue Jan 03, 2012 8:35 pm

Bev,
I have no words to express how I feel. You are a HUGE rock of support in my journey. I send you so much love, hugs, and prayers. xoxoxoxo <3 <3 <3 <3 <3
ALWAYS IN MY HEART!
5/7/2013


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