SUPPORT GROUPS - Local Nationwide Please List Yours!

Please feel free to read, share your thoughts, your stories and connect with others!
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Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Maggie Nell » Sat Jan 30, 2016 5:42 am

UNITED KINGDOM

At Maggie’s you can talk to, and get support from, a range of professional people.
Our Centres are staffed by Cancer Support Specialists, Benefits Advisors, Nutritionists
and Psychologists who can support you in whichever way best suits your needs

The first Maggie’s Centre opened in Edinburgh in 1996 and since then Maggie’s has
continued to grow, with 17 Centres at major NHS cancer hospitals in the UK, online and abroad.

Maggie’s provides free practical, emotional and social support to people with cancer
and their family and friends, following the ideas about cancer care originally laid
out by Maggie Keswick Jencks

Who was Maggie Keswick Jencks?

Maggie Keswick Jencks lived with advanced cancer for two years. During that time she used her
knowledge and experience to create a blueprint for a new type of care. Maggie’s Centres are built
around her belief that people should not “lose the joy of living in the fear of dying”.


https://www.maggiescentres.org/
https://www.maggiescentres.org/our-cent ... ne-centre/
https://www.maggiescentres.org/about-ma ... t-maggies/
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

Pyro
Posts: 303
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Pyro » Fri Jun 17, 2016 10:09 pm

Tucson, AZ

A great resource, counseling for the whole family.
https://www.tunidito.org
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

Rafaelhit
Posts: 1
Joined: Sat Feb 25, 2017 3:18 am
Facebook Username: Rafaelhit
Location: United States of America
Contact:

SUPPORT GROUPS Local Nationwide Please List Yours

Postby Rafaelhit » Tue Mar 28, 2017 4:46 am

Hi everyone. I just moved to Ewa Beach, Hawaii and am looking for support groups. Anywhere on the island works I am 26 years old and newly diagnosed, although Ive had Lupus for 21 years

Please help

Thank you

-Amanda

Jaynee
Posts: 2
Joined: Tue Aug 01, 2017 10:07 am

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Jaynee » Tue Aug 01, 2017 10:11 am

Any group in Atlanta. I am. Colorectal two year survivor. But have not gone back to work. I am scared if I will poop at work place☹️☹️☹️

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Shana » Tue Aug 01, 2017 11:38 pm

Hi Jaynee,

I am in California so can't help you with support groups in Atlanta. I have yet to find an in person one here. Your question about how to handle BM's at the work place isn't quite clear to me. Do you have a colostomy or poor control? You might want to ask that question in the general forum where more members would see it and possibly have more input for you.

Welcome to the group, I just joined a couple of days ago.

Good luck!

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

Jaynee
Posts: 2
Joined: Tue Aug 01, 2017 10:07 am

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Jaynee » Wed Aug 02, 2017 8:32 am

Thanks Shana. I will post in the general forum

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cancerchola
Posts: 2
Joined: Fri Mar 16, 2018 4:54 am
Location: San Francisco Bay Area

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby cancerchola » Tue May 28, 2019 2:48 am

Anybody know of any groups in the Bay Area, CA?

San Francisco or peninsula/south bay would be best.

Thank you.
35 year-old female
Sept 2017: Dx rectal cancer at T2N1
no genetic mutations
Oct-Nov 2017: 28 days of xeloda pills/radiation
January 2018: laparoscopic LAR surgery with loop ileostomy
Feb-August 2018: 12 rounds of FOLFOX
Sept 2018: CT scan NED
October 2018: ileostomy take down
May 2019: CT scan shows lesion on liver. Positive for crc liver mets and 1 possible site in lung (small nodule). Will be starting FOLFIRI with Avastin and later surgery to resect liver.


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