SUPPORT GROUPS - Local Nationwide Please List Yours!

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eitter
Posts: 1018
Joined: Sun May 21, 2006 3:53 pm
Location: Tempe, AZ
Contact:

SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby eitter » Tue Jan 03, 2012 12:59 pm

I thought it would be a good idea for everyone to list their local Support Groups you attend for ColoRectal Cancer. I will leave this at the top of the boards for people to see a list of Support Groups in your state. PLEASE only post Support Groups and any questions about the group PM the person who placed the Group on here. To keep this list clean and not cluttered with other banter, any questions will be deleted, I will first send the question to the person that posted the group before I delete it.

In the Subject line list the location of the Support group and in the Body list all the details anyone would need! I will go first so you can see what I mean.

Thank You!
Blessings,
Liz DENNIS
Tempe,AZ
DX 05/06 Rectal
6 Weeks radiation with 5FU
LAR 10/06 Stage III
Temp Ileo, reversal failed in 05/07 after 1m in hospital came out with a permanent colostomy
http://www.runlizrun.com

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eitter
Posts: 1018
Joined: Sun May 21, 2006 3:53 pm
Location: Tempe, AZ
Contact:

Mesa Arizona ColoRectal Support Group

Postby eitter » Tue Jan 03, 2012 1:03 pm

Please join us in Mesa Arizona:

What: ColoRectal Support Group for Survivors, Caregivers and friends and family
Where: Banner Desert Hospital Oncology/Radiation Department
When: FIRST Tuesday of EVERY month 5-6:15pm

Please PM me if you want further details.
Blessings,
Liz DENNIS
Tempe,AZ
DX 05/06 Rectal
6 Weeks radiation with 5FU
LAR 10/06 Stage III
Temp Ileo, reversal failed in 05/07 after 1m in hospital came out with a permanent colostomy
http://www.runlizrun.com

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Gaelen
Posts: 3833
Joined: Fri Jun 13, 2008 12:57 am
Location: CNY
Contact:

Re: SUPPORT GROUPS: Syracuse (Central) NY

Postby Gaelen » Tue Jan 03, 2012 1:20 pm

In central New York (Syracuse) there is a recurrent cancer survivors support group sponsored by Hematology-Oncology of CNY. It is open to survivors and caregivers of any type of recurrent cancer. Meets 2x/month. The group is facilitated by HOA-CNY social workers and oncology nurses.

Location: HOA-CNY, main office, Brittonfield Parkway, East Syracuse NY
Meeting days: 1st and 3rd Monday in each month (usually moved to Tuesday in weeks where there's a Monday holiday)
Meeting time: 4-5:30pm

PM me for details. Meeting schedule for January, 2012 is Jan. 3 & 17, since both 1st and 3rd Mondays fall on holidays.
Be in harmony with your expectations. - Life Out Loud
4/04: dx'd @48 StageIV RectalCA w/9 liver mets. 8 chemos, 4 surgeries, last remission 34 mos.
2/11 recurrence R lung, spinal bone mets - chemo, RFA lung mets
4/12 stopped treatment

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Candyys03
Posts: 1381
Joined: Wed Dec 10, 2008 12:51 am
Facebook Username: Candy Llamas
Location: Riverside,California
Contact:

Re: SUPPORT GROUPS - Riverside, (Southern) California

Postby Candyys03 » Tue Jan 03, 2012 9:40 pm

For Cancer Survivors,Caregivers,Family and Friends.
Everyone is welcomed.
Come just as you are.

Location:Kaiser Permanente Riverside (951) 353-2000
Address- 10800 Magnolia Ave,Riverside,CA 92505
Administrator:Elvira Pann,Oncology Social Worker
The American Cancer Society:I Can Cope Classes
Time:Various times throughout the year.
Also available online- http://www.cancer.org/Treatment/Support ... line/index
General Cancer Support Group
When:4th Tuesday each month at 2pm - 4pm
Metastasized Cancer Support Group
When:3rd Wednesday each month, 2pm -4pm
Caregiver Support Group
When:1st and 3rd Wednesday of the month, 10am -11:30am
They also offer a Breast Cancer Support Group and other support groups.
*All support groups have various topics, occasional guest speakers and topical seminars.

Location:Harvest, Riverside (951) 687-6902
Address- 6115 Arlington Avenue, Riverside,CA 92504
Cancer Support Group,Faith Based
When:Last Saturday of every month, 9am- 11am.

For more Support Groups in Riverside,California contact-
American Cancer Society,Riverside
(951) 683-6415
1240 Palmyrita, STE A
Riverside, CA 9250
The American Cancer Society 1-800-227-2345
http://www.cancer.org/index

PM me or call the phone numbers above for any questions or more information.

Candy :)
DX8/0642yrIVCCmtsliver
9/06opcol+lymps
07oxy
08livernonop
08iri+erb
1/09opliver
NED11m
12/09lungmts
3/10livermts
NED7m
2/11lungmts
4/11NED3m
5/2Xel
9/26lungop
NED6m
3/12lungmtsirierb
11/27avas+ox
7/13Stivarga
10/28irierb
1/17
caringbridge.orgcandyllamas

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GreenLakeGirl
Posts: 757
Joined: Mon Jan 18, 2010 5:55 am
Location: Pacific NW

Re: SUPPORT GROUPS - Seattle, WA

Postby GreenLakeGirl » Wed Jan 04, 2012 12:37 am

Seattle, WA: Living with Colorectal Cancer Support Group
7pm, Second Wednesday of the month
SCCA House: 207 Pontius Ave North, Seattle 98019 (near the REI flagship store)

Is there any way to show a Google map that would update as you add more pushpins? Something like this:
http://maps.google.com/maps/ms?msid=207522032742591127464.0004b5acef0ffadaaf49f&msa=0
2009, age 37 with a 2yo: CC, IIIB (T4N1M0). IBD history
2010-11: FOLFOX, 12 rounds. 5 surgeries (3-step Ileal j-pouch, infection, VATS)
Currently NED.
Mom, you can go the hard way if you want, but the easy way is much easier. ~my 3yo

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RayGirl
Posts: 1281
Joined: Wed Jun 16, 2010 4:21 pm
Location: Texas

Re: SUPPORT GROUPS - Houston, TX

Postby RayGirl » Thu Jan 05, 2012 9:53 am

In Houston, TX
The Climb and Teen Climb is a child support program for children dealing with a loved on who has cancer. There is also a parent's support group that meets at the same time as the children.

This is free six week program but families must register in advance with Marisa Minor, LCSW at 713-792-6826.

http://www.mdanderson.org/patient-and-cancer-information/guide-to-md-anderson/patient-and-family-support/climb.html
Stage III Rectal: T3, 3/21 Nodes
dxn:Feb-10
Radiation&Xeloda
7.5 hr surgery
12th FOLFOX Nov-10
Takedown:Jan-11

"Life is not about waiting for the storm to pass, it's about learning how to dance in the rain."

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abuttigi
Posts: 669
Joined: Tue Feb 08, 2011 9:39 am
Location: SE Michigan

Ann Arbor, Michigan

Postby abuttigi » Sun Jan 08, 2012 8:27 pm

Cancer Support Community of Ann Arbor

http://cancersupportannarbor.org/progra ... -programs/
Patient groups Wednesday 6-8, Monday 11-1
Family, friends group Wednesday 6-8

2010 Hogback Road, Suite 3
Ann Arbor, MI 48105
Phone: 734-975-2500
info@cancersupportannarbor.org

These groups aren't specific to cancer type, but I do know that as I was moving away a colon cancer support group for both patients and caregivers was starting on the first Monday of each month. I'm not sure what the status is on it, but you can always call and check. What I do know is that for the 7 months I went to this group, I got so much support and made amazing friends that got me through a really difficult time. Definitely worth checking out if you live nearby!

Angie
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

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Kathryn in MN
Posts: 2970
Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: SUPPORT GROUPS - Minneapolis, MN

Postby Kathryn in MN » Wed Feb 01, 2012 4:38 pm

2 Minneapolis, MN area groups below:
All colon, anal or rectal cancer patients and caregivers are welcome at meetings
There is group sharing time, snack time, and often speakers

C.A.R.S. (Colon, Anal, Rectal Support)
Meetings sponsored by MN Oncology and Colon & Rectal Surgery Associates
Third Thursday of each month in Edina @ MN Oncology from 5:30-7PM
6545 France Avenue South, Suite 210
Group facilitators Kim Ness, RN, CNS & Kathryn Frodermann, PA-C

C.A.R.S. South
Meetings sponsored by Get Your Rear in Gear, MN Oncology and Colon & Rectal Surgery Associates
Second and Fourth Tuesdays of each month in Burnsville @ the Oakridge West Professional Buildng from 6:30-8:30PM
825 Nicollet Blvd, Suite 108 (Lower level)
Group facilitators Kathryn Blume & Janell Langdon (Stage IV CRC survivors) and Jenelle Kelley (PA with Colon & Rectal Surgeons)

Contact Kathryn for more information. Kathryn@KathrynsTravel.com or 612.220.9626
Last edited by Kathryn in MN on Thu Dec 20, 2012 8:19 pm, edited 2 times in total.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

kellygruber

Re: SUPPORT GROUPS -Glendale, Arizona

Postby kellygruber » Fri Feb 17, 2012 10:34 am

Colorectal Cancer Support Group, Glendale, Arizona

This is a new ongoing support group offering support and education for adults diagnosed with colon, rectal or anal cancer. The monthly meetings are for individuals and their loved ones who want to learn and share experiences.
Meets the 3rd Thursday of every month
Banner Thunderbird Medical Center
5555 W Thunderbird Rd
6pm-7:30pm
Contact: Kelly Gruber
602-865-5450

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CRguy
Posts: 9221
Joined: Sun Feb 10, 2008 6:00 pm

Vancouver, BC - Cancer Agency SUPPORT GROUP

Postby CRguy » Mon Feb 20, 2012 7:45 pm

BC Cancer Agency : Colorectal Support Group
The Vancouver Centre is located at:
600 West 10th Avenue
Vancouver, BC
V5Z 4E6

(604) 877-6000
1-800-663-3333 (in BC)

Colorectal Support Group may not be meeting regularly at this time.
You may need to contact the group facilitator directly (604-877-6000 ext. 2190).
Monthly schedules are usually posted in a pdf file on this Web page Vancouver Support Groups Schedule

The BCCA offers ongoing Colorectal Cancer Forums on a number of Saturdays throughout the year.
Details of upcoming events are posted on this Web page Coming Events Page

Online Support Forums are also available, with information being listed on this Web page Online Support Forum

The BCCA also has other centres in the province, with their own support programs.
Contact information is available on this Web page BCCA Regional Services

Inspire Health also offers Integrative Medicine Cancer Support Programs which include active support groups. Further details are available in this ColonClub Forum topic HERE

Please contact me via PM or email if any further information is needed.
Cheers on our Journey
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Jeanette57

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Jeanette57 » Sun Mar 04, 2012 11:36 am

Any support in Tucson, Az????
new first week into rectal stage 3 treatments

wombat
Posts: 23
Joined: Thu Feb 11, 2010 3:03 am
Location: Portland, OR
Contact:

Portland, OR

Postby wombat » Wed Mar 28, 2012 8:56 pm

Portland Area: Colon, rectal and anal cancer education and support group

Providence Portland Medical Center
Cancer Support Services
4805 NE Glisan St., 1st Floor Cancer Tower
Portland, OR 97213

Meeting dates: 3rd Tuesday of each month
Time: 5 - 6:30 p.m.

For information call 503-215-6104

http://oregon.providence.org/patients/p ... ype=Events
Dx -Stage III Rectal CA (Age 40) - 1/21/10
IMRT radiation + chemo (5-FU pump 24/7) - 2/22-4/5/10
APR surgery (perm. colostomy) - 6/2/10
Adjuvant chemo - 6 rounds of Xeloda/Oxi - 7/30-12/7/10
Currently NED!
http://wistrekker.blogspot.com/

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Gloria
Posts: 435
Joined: Fri Jul 23, 2010 11:51 pm
Facebook Username: Gloria Brandenburg Hughes
Location: Jacksonville, FL
Contact:

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Gloria » Thu Mar 29, 2012 2:08 pm

Jacksonville, FL

Women Living with Cancer - 2270 Blanding Blvd Jacksonville, FL
Meet the 2nd Tuesday each month at Lakeshore Presbyterian Chuch @ 6 pm.
This group is for Women and Caregivers of all types of cancer.
Great group! Jess introduced me to this group.
56
DX 6/10/10
Resection 6/17/10
Stage IIA (pt3N0MX)
8/8 benign lymph nodes
Blockage/tumor 2.5 x2 x .3 cm
Start Folfox 8/9/10
Finished 1/17/11
NED :)

Suze
Posts: 310
Joined: Sat Jan 05, 2008 3:12 pm
Location: Portland, Oregon

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Suze » Wed May 16, 2012 12:32 pm

In Portland, Oregon

Kaiser Permanente Interstate Campus
Don't have to be a Kaiser member to come
Every Tuesday 10:30am to noon

PM me if you want more info. Susan
Dx 5/07 Stage IV 59 y/o
6 mos Folfox, Avas., erb.
Surg. for colon, liver mets 1/08
Folfox & Avas. 2/08-8/08
Liver met 10/09, Iri 11/09 - 7/10
SBRT 4/10, 12/10
30-40 lung mets 4/11
Irin./erbitux 5/11-8/11
xeloda/avastin 8/11-2/12
xeloda/erb 2/12/-4/12

Luck12

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Luck12 » Thu Oct 04, 2012 11:45 am

A Colon Cancer Alliance support group is starting in Las Vegas.

Thanks!!!

Roddy


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