SUPPORT GROUPS - Local Nationwide Please List Yours!

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Maggie Nell
Posts: 654
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Maggie Nell » Sat Jan 30, 2016 5:42 am

UNITED KINGDOM

At Maggie’s you can talk to, and get support from, a range of professional people.
Our Centres are staffed by Cancer Support Specialists, Benefits Advisors, Nutritionists
and Psychologists who can support you in whichever way best suits your needs

The first Maggie’s Centre opened in Edinburgh in 1996 and since then Maggie’s has
continued to grow, with 17 Centres at major NHS cancer hospitals in the UK, online and abroad.

Maggie’s provides free practical, emotional and social support to people with cancer
and their family and friends, following the ideas about cancer care originally laid
out by Maggie Keswick Jencks

Who was Maggie Keswick Jencks?

Maggie Keswick Jencks lived with advanced cancer for two years. During that time she used her
knowledge and experience to create a blueprint for a new type of care. Maggie’s Centres are built
around her belief that people should not “lose the joy of living in the fear of dying”.


https://www.maggiescentres.org/
https://www.maggiescentres.org/our-cent ... ne-centre/
https://www.maggiescentres.org/about-ma ... t-maggies/
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Pyro
Posts: 13
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Pyro » Fri Jun 17, 2016 10:09 pm

Tucson, AZ

A great resource, counseling for the whole family.
https://www.tunidito.org
Aug 2015 - Diag Stage 4 CC with numerous mets to liver (38/m)
Sep 2015 - Avastin/Folfox/Iron
Dec 2015 - Told not a surgery candidate for liver
Jan 2016 - Erbitux/Folfiri, 2nd opinion at MD Anderson in TX
Feb 2016 - MD Anderson liver surgery approved, Dr. Vauthey
Mar 2016 - 30% of left lobe removed, PVE
May 2016 - 70% of liver removed, liver cancer free.
Jun 2016 - Xeloda 3K mg, 28 day radiation cycle for colon
Husband, father of 6 & 9 year old, losing dream job due to diag
Colon surgery in Sep at MD!

Rafaelhit
Posts: 1
Joined: Sat Feb 25, 2017 3:18 am
Facebook Username: Rafaelhit
Location: United States of America
Contact:

SUPPORT GROUPS Local Nationwide Please List Yours

Postby Rafaelhit » Tue Mar 28, 2017 4:46 am

Hi everyone. I just moved to Ewa Beach, Hawaii and am looking for support groups. Anywhere on the island works I am 26 years old and newly diagnosed, although Ive had Lupus for 21 years

Please help

Thank you

-Amanda

Jaynee
Posts: 2
Joined: Tue Aug 01, 2017 10:07 am

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Jaynee » Tue Aug 01, 2017 10:11 am

Any group in Atlanta. I am. Colorectal two year survivor. But have not gone back to work. I am scared if I will poop at work place☹️☹️☹️

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Shana
Posts: 135
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Shana » Tue Aug 01, 2017 11:38 pm

Hi Jaynee,

I am in California so can't help you with support groups in Atlanta. I have yet to find an in person one here. Your question about how to handle BM's at the work place isn't quite clear to me. Do you have a colostomy or poor control? You might want to ask that question in the general forum where more members would see it and possibly have more input for you.

Welcome to the group, I just joined a couple of days ago.

Good luck!

Shana
DX - 12/16
MSS - KRAS wild
Stage IV colon cancer with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17 - 2 wks on, 1 wk off to lessen side effects
CT-Scan 9/1/17. Shrinkage of liver mets (4 measurable) and no bowel blockage (surgery on 6/17 for blockage)
Removal and resection not on the table at this time as long as liver mets remain.
BB- aka colostomy is new high maintenance friend... she was a life saver
Living the new normal day by day :)

Jaynee
Posts: 2
Joined: Tue Aug 01, 2017 10:07 am

Re: SUPPORT GROUPS - Local Nationwide Please List Yours!

Postby Jaynee » Wed Aug 02, 2017 8:32 am

Thanks Shana. I will post in the general forum


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