CSN Forum

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Grace14
Posts: 417
Joined: Mon Oct 24, 2011 7:42 pm

CSN Forum

Postby Grace14 » Mon Dec 12, 2011 9:38 pm

Does anyone else go on that forum? I sometimes just lurk. I was on there just now boy there are some nasty people on there not very encouraging at all!! The people on here are so much nicer!! This is by far the best club ever!!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

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CRguy
Posts: 10268
Joined: Sun Feb 10, 2008 6:00 pm

Re: CSN Forum

Postby CRguy » Mon Dec 12, 2011 10:31 pm

WOTTT ????
You been cheatin' on us ?????

:mrgreen: :mrgreen: :mrgreen:
No have not been there, just bugging you
Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: CSN Forum

Postby NWgirl » Mon Dec 12, 2011 10:34 pm

Sometimes I surf CSN when I'm bored or I can't sleep. It's a bit Pollyanna for me although sometimes their arguments get pretty amusing. I never post - just surf. This group fits my personality much better.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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CRguy
Posts: 10268
Joined: Sun Feb 10, 2008 6:00 pm

Re: CSN Forum

Postby CRguy » Mon Dec 12, 2011 10:37 pm

NWgirl wrote:Sometimes I surf CSN when I'm bored or I can't sleep.

:shock: :shock: damn, Belle ..now there's a recommendation !!! :mrgreen:
LOL
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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TheBurn
Posts: 444
Joined: Sun Sep 26, 2010 8:21 pm
Location: West Chester, PA

Re: CSN Forum

Postby TheBurn » Mon Dec 12, 2011 10:38 pm

Other than Crosby, Stills and Nash, what is CSN?
Living Life Colon-Free
-----------------------------------------
52
RC 7/20/10
Proctocolectomy/ileo 10/22/10; Sx Path - T3N1M0
Folfox - 1/12/11; Xelox - 2/23/11
Xeloda - 3/16-6/21/11
Chemo-rad 6/29-8/8/11
NED 8/15/11

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: CSN Forum

Postby NWgirl » Mon Dec 12, 2011 10:55 pm

TheBurn wrote:Other than Crosby, Stills and Nash, what is CSN?
lol! :lol:

Cancer Survivors Network (I think - I keep wanting to call it CSI). It's the chat group on the American Cancer Society web-site; they have a separate group for each type of cancer. The Colo-rectal group is pretty big/active - lots of folks there.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

Surroundedbylove
Posts: 3124
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Re: CSN Forum

Postby Surroundedbylove » Mon Dec 12, 2011 11:44 pm

I checked it out early in my diagnosis and it didn't have nearly the knowledgeable participants as this group. I've always appreciated the intelligence of the participants here, the level headed responses, and also the caring. After a few surfing visits over at CSN I decided I didn't like it and have never gone back. The Colon Club is the only one for me!
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

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eitter
Posts: 1018
Joined: Sun May 21, 2006 3:53 pm
Location: Tempe, AZ
Contact:

Re: CSN Forum

Postby eitter » Tue Dec 13, 2011 1:38 am

I tried CSN early on and I just felt like I was not ever invited to the "Party", it was almost like newcomers were not welcome, I just did not get warm and fuzzies over there and I still pop in once a year and get the same feeling. In fact I do not think I have surfed in there at all this year!

This is MY HOME now, so I will stay here!
Blessings,
Liz DENNIS
Tempe,AZ
DX 05/06 Rectal
6 Weeks radiation with 5FU
LAR 10/06 Stage III
Temp Ileo, reversal failed in 05/07 after 1m in hospital came out with a permanent colostomy
http://www.runlizrun.com

buckeye2
Posts: 23
Joined: Thu Sep 29, 2011 4:54 am

Re: CSN Forum

Postby buckeye2 » Tue Dec 13, 2011 8:56 am

I read and post there most often. Occassionally there are some heated arguments regarding traditional versus nontraditional treatments. It doesn't bother me. Families fight and after you post for so long, it begins to feel like a family. I would recommend using both boards. I always figure the more information, the better. Lisa

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Nanette
Posts: 1323
Joined: Sat Jan 31, 2009 11:15 am
Facebook Username: Nanette Pepperday-Derry
Location: Buffalo, NY

Re: CSN Forum

Postby Nanette » Tue Dec 13, 2011 9:57 am

I used to lurk on the CSN board, but never posted. I'm not as comfortable over there as I am here. I'm with NWgirl...this board fits my personality better here.
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

tallyho
Posts: 138
Joined: Sun Aug 01, 2010 8:39 pm
Location: Florida

Re: CSN Forum

Postby tallyho » Tue Dec 13, 2011 10:45 am

This board occasionally has its moments as far as people fussing at each other, but I also noticed that the CSN forums are a lot more contentious, a lot more frequently.

There's also something about the layout of the board there that makes it hard to follow the conversations going on.

I don't post here a lot, but I read a lot and something about this group seems like more of an online family - a group of people who like each other and would probably mostly get along in real life too.
7/27/10 DX Stage I at age 30
9/3/10 sigmoid resection, 0/56 nodes +, no chemo
10/12 - CT - NED!

triciah
Posts: 92
Joined: Wed Nov 09, 2011 8:10 pm
Location: Canada

Re: CSN Forum

Postby triciah » Tue Dec 13, 2011 11:09 am

I joined the CSN board the same time as this one and I go on there right after being on this one. It's definitely different. There has been a big uproar there this last week which has not been nice. However, I admit that I have learned a lot on that board and have made some friends that I now email privately.
Just like the treatment we choose, to each his own (in terms of forum boards).
Tricia
Dx Stage IV 12/09
Ileostomy 1/10
Rad 2/10
Surgery 5/10
FOLFOX + Avastin 8/10-11/10
Iri 4/11 and 6/11
Vect 8/11-9/11
Multiple lung mets
03/12: swollen lymph nodes, possible liver met, 3 bone mets
"I am His and He is mine"

Toby57
Posts: 88
Joined: Thu Sep 29, 2011 1:30 pm
Location: Texas

Re: CSN Forum

Postby Toby57 » Tue Dec 13, 2011 11:47 am

Yeah, been there and read some of the posts. We all have a monster common to all of us causing stress in our daily life, we do not need rude, crude and downright nasty posts to add more stress. One should express a point of view without getting attacked rudely. I did not see that kind of rudeness in this forum, and hope it never happens. Direct the energy toward the beast and not against each other.

JA
54/ Father of 4 . Married to a loving wife
Dx cc Oct.2010/ colon resection,40cm of colon removed.
Stage 3B , 4/37 nodes.
T3N2A, kras Wild
Completed 12x Folfox , June 2011.
Clear Scans June & Dec, 2011, CEA normal.
Live , give , and forgive.

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CRguy
Posts: 10268
Joined: Sun Feb 10, 2008 6:00 pm

Re: CSN Forum

Postby CRguy » Tue Dec 13, 2011 12:12 pm

I cruised a bit last night but not registered. I agree the post format is a bit clunky for my liking, the "drama" with some folks and lack of respect with some others is sad. I see some of "our" folks there and also noted two long time regulars were getting browbeaten and threatened ??? to the point of leaving ! Lots of good folks too I assume, from some threads I saw.
Who moderates that forum ? They could do a better job of the "human" side if they had the resources I guess.
My opinion : I generally don't like online forums and only ever joined two. One is a martial arts forum where there is NO drama or rudeness and no egos, the other is the ColonClub, which I feel has no equal as a support forum.

Cheers all
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: CSN Forum

Postby NWgirl » Tue Dec 13, 2011 12:47 pm

Toby57 wrote:Direct the energy toward the beast and not against each other.

JA


Amen to that.

I couldn't sleep last night so I surfed the CSN board as well as many other web-sites (REALLY couldn't sleep!). I was sad to see a couple of long time members on the CSN board who felt the need to leave over the disagreements on alternative medicine. Whether you're for it, against it or somewhere in between, these two particular people (IMO) seemed to have made educated decisions regarding their treatment. There doesn't seem to be a lot of people out there who have really researched these alternatives thoroughly and I thought they had. They never seemed to preach their choices, but were there as information sources if asked - as respects their own personal choices and treatments. It's sad to see such good resources lost to bickering and worse yet, personal attacks.

Disagreements come with the territory, but I thought the moderators should have stepped in and put an end to that particular thread before it got so out of hand. Sounds like there was history there, but my attention span is too short to dig up old threads to see what it was. :roll:
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model


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