For Lilliana

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jmarie
Posts: 2230
Joined: Sun Jul 19, 2009 3:33 pm
Facebook Username: Jessica Ramos Smith
Location: Jacksonville, FL
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For Lilliana

Postby jmarie » Tue Dec 06, 2011 8:44 pm

We just posted this message on Jessica's facebook, and I thought I would extend the invitation to all Jessi's friends on the colon club that are not on facebook:

"Jessica's family would like to put a book of remembrance together for Lilliana. We want her to know her wonderful mother and would appreciate your help! Please message Jennifer Tong with any memories, funny stories, thoughts or pictures of Jessi that you would like to share with Lilli. Thank you!"

I thought that some of you may have conversations/posts with Jessi that you might like to share with Lilli. For those not on facebook, please message me...I am now registered on the colon club as "jmariesmom".

Thank you so much...love and blessings to all!
Sherri
DX Stage IV 11/25/08
mets liver lung, kras mutant
Baby 2yrs old! I am 32yrs
Too many chemo txs to count
trying to find a clinical trial
"You can't stop the waves, but you can learn to surf"

Surroundedbylove
Posts: 3124
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Re: For Lilliana

Postby Surroundedbylove » Tue Dec 06, 2011 9:32 pm

What a wonderful, wonderful memory to create for Lilliana
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

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Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: For Lilliana

Postby Kathleen808 » Tue Dec 06, 2011 11:52 pm

Beautiful. I will send in a message. I miss your beautiful daughter and her special spirit. I keep your family in my prayers.

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

SkiFletch
Posts: 6360
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: For Lilliana

Postby SkiFletch » Wed Dec 07, 2011 9:23 am

That's a great idea Sherri, a wonderful thing for LIlli to have
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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abuttigi
Posts: 669
Joined: Tue Feb 08, 2011 9:39 am
Location: SE Michigan

Re: For Lilliana

Postby abuttigi » Wed Dec 07, 2011 12:37 pm

This is precious. What a great idea! Even though I'm sure words and pictures can't come close to meeting your wonderful daughter, I hope you get many replies that reflect sweet Jessica and make Lilliana proud to be her daughter.

I hope you are doing well!
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

Surroundedbylove
Posts: 3124
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Re: For Lilliana

Postby Surroundedbylove » Thu Dec 08, 2011 8:32 am

Sherri- your message box may be full and you may have to clear it out so that others can be received. Just an FYI. :-)

Here is one of my favorite posts of Jessica's - it shows her indomitable spirit as well as an ability to find humor in a tough situation. I loved this spirit and it is a wonderful excample to Lilli.

viewtopic.php?f=1&t=16798

SBL
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

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Nanette
Posts: 1323
Joined: Sat Jan 31, 2009 11:15 am
Facebook Username: Nanette Pepperday-Derry
Location: Buffalo, NY

Re: For Lilliana

Postby Nanette » Thu Dec 08, 2011 10:15 am

Such a beautiful idea, Sherri. I will be happy to send in a message. We miss sweet Jess and God bless Lilli.

You and your family are in my prayers...
-Nanette
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

Deirdre
Posts: 613
Joined: Mon Sep 06, 2010 7:10 am
Location: Ireland

Re: For Lilliana

Postby Deirdre » Thu Dec 08, 2011 7:42 pm

Hi Sherri

Jess is sorely missed.
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!


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