Nose Sores

Please feel free to read, share your thoughts, your stories and connect with others!
trishdowell
Posts: 9
Joined: Sun Nov 06, 2011 3:48 pm
Facebook Username: trish@dowellbaker.com

Nose Sores

Postby trishdowell » Wed Nov 30, 2011 7:41 am

Has anyone experienced sores inside their nose as a side effect from chemo? I did 9 rounds of folfox & just started on folfiri/avastin. I've had constant sores in my nose, but no mouth sores. Any remedy suggestions would be appreciated.
age 44, mom of 4
stage iv colon cancer May, 20, 2011
6" tumor removed May 25, 2011
numerous mets to liver
200 plus mets to lungs
lymph nodes
invaded peritineum
KRAS mutation
folfox/avastin June 2011 to October 2011
starting folfiri Nov 2011

triciah
Posts: 92
Joined: Wed Nov 09, 2011 8:10 pm
Location: Canada

Re: Nose Sores

Postby triciah » Wed Nov 30, 2011 4:12 pm

I don't think this is the same as what you're experiencing but when I was on FOLFOX + Avastin, I developed sinus issues. My nose ran constantly for months and I told the nurse and onc every visit that it was getting worse. Finally my onc did research and discovered a rare side effect of Avastin. My onc sent me to an ENT specialist and they discovered a hole in the cartilege between my 2 nostrils as well as sinus damage. After several rounds of anti-biotics and daily nose rinses, things are almost back to normal.
So if nothing else, I'd try the sinus rinses (NeilMed sinus rinse).

Tricia
Dx Stage IV 12/09
Ileostomy 1/10
Rad 2/10
Surgery 5/10
FOLFOX + Avastin 8/10-11/10
Iri 4/11 and 6/11
Vect 8/11-9/11
Multiple lung mets
03/12: swollen lymph nodes, possible liver met, 3 bone mets
"I am His and He is mine"

User avatar
Ashlee H.
Posts: 2435
Joined: Fri Oct 09, 2009 11:50 pm
Location: Southern California

Re: Nose Sores

Postby Ashlee H. » Wed Nov 30, 2011 4:17 pm

When I was on Avastin, I not only had a lot of bleeding from my nose, but roids and a fissure. I only took three rounds with Avastin and chose to stop. I figured if Avastin was making me bleed from these areas, what was it doing to the rest of my inners? My ONC still brings up Avastin, but I just think I'm one of those that don't do well on the drug. During the time I was on it, nothing shrunk either.
Stage IV w/liver met dx 7-1-09
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga
LIVE LIFE!

User avatar
Rob in PA
Posts: 2004
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Nose Sores

Postby Rob in PA » Wed Nov 30, 2011 4:31 pm

Yes, I have issues with my nose such as you describe. Runny nose, bloody nose, sore to the touch. The soreness comes and goes. The runny and bloody nose is more of an annoyance than it is a major issue for me. I finished folfiri w/ avastin in October.

I have no remedies to offer to help ease the issues. Just another thing to deal with I suppose. Good luck.
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

trishdowell
Posts: 9
Joined: Sun Nov 06, 2011 3:48 pm
Facebook Username: trish@dowellbaker.com

Re: Nose Sores

Postby trishdowell » Wed Nov 30, 2011 4:37 pm

Thanks for the feedback. It's not a huge issue, but it is annoying.
age 44, mom of 4
stage iv colon cancer May, 20, 2011
6" tumor removed May 25, 2011
numerous mets to liver
200 plus mets to lungs
lymph nodes
invaded peritineum
KRAS mutation
folfox/avastin June 2011 to October 2011
starting folfiri Nov 2011

vancouver eve
Posts: 1507
Joined: Fri Jan 18, 2008 3:04 pm
Location: Vancouver

Re: Nose Sores

Postby vancouver eve » Wed Nov 30, 2011 6:40 pm

am experiencing a sore nose as well. I have been using vaseline to try to ease the pain. I will be talking to the Onc. in Dec.

Granny
Posts: 345
Joined: Mon Nov 07, 2011 10:12 pm

Re: Nose Sores

Postby Granny » Wed Nov 30, 2011 10:26 pm

Hello
Posted earlier but not showing up so hope it goes only once!

I just asked my NP about this on Monday. She said to use some saline spray. The folfox can dry the tissue out per the NP. It's also a dry time in most places with heat running in our homes.

Hope this posts and hope it helps!

User avatar
Candyys03
Posts: 1381
Joined: Wed Dec 10, 2008 12:51 am
Facebook Username: Candy Llamas
Location: Riverside,California
Contact:

Re: Nose Sores

Postby Candyys03 » Fri Dec 02, 2011 3:13 am

I sometimes get a constantly runny nose (usually every time I eat)or a bloody nose especially when I blow my nose.What you are calling nose sores-bloody crusty sores inside my nose.I get those too.Vaseline is used to keep it moist.I think I might try the saline.
It's just another side affect to deal with.
My nurse gives me a Popsicle(or you can get ice chips) when I get the 5fu to combat the mouth sores and it works pretty good.
Candy
DX8/0642yrIVCCmtsliver
9/06opcol+lymps
07oxy
08livernonop
08iri+erb
1/09opliver
NED11m
12/09lungmts
3/10livermts
NED7m
2/11lungmts
4/11NED3m
5/2Xel
9/26lungop
NED6m
3/12lungmtsirierb
11/27avas+ox
7/13Stivarga
10/28irierb
1/17
caringbridge.orgcandyllamas

disco nap
Posts: 991
Joined: Sat Aug 07, 2010 10:45 am

Re: Nose Sores

Postby disco nap » Fri Dec 02, 2011 6:39 am

1) saline spray
2) take a q-tip with vaseline and rub it inside your nose to lubricate
3) run a humidifier
4) look into a neti pot - they sound gross but you will love it, i promise. get a kit with a salt/oil cleansing solution you can mix with water.

I had lots of nose problems when I was on chemo and these 4 things helped a lot.
DX July 2 '10 CC Stage IIIC, 11/18 nodes+
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 2012: Lynch Syndrome MLH1
"Declared well" and been well ever since.
Update: Oct 2019 - still NED.

User avatar
pollo65
Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: Nose Sores

Postby pollo65 » Sat Dec 03, 2011 2:08 pm

Yup, have the nose sores from Avastin and if I remembered to do as Disconap advices, I would probably have fewer problems---"problem" is chemo brain and forgetting to do all of those things to ease side effects.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

disco nap
Posts: 991
Joined: Sat Aug 07, 2010 10:45 am

Re: Nose Sores

Postby disco nap » Sat Dec 03, 2011 4:26 pm

Oh - instead of vaseline you can also use shea butter, or coconut oil. I actually remember now that coconut oil was my go-to lubricant for nasal issues. It's a little more wholesome than vaseline and it smells nice.
DX July 2 '10 CC Stage IIIC, 11/18 nodes+
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 2012: Lynch Syndrome MLH1
"Declared well" and been well ever since.
Update: Oct 2019 - still NED.

thelongglass
Posts: 51
Joined: Mon Jan 24, 2011 5:47 pm
Contact:

Re: Nose Sores

Postby thelongglass » Sun Dec 04, 2011 12:02 pm

The two things I did that made a difference were:

1) Use saline spray every time you gently blow your nose. It is way gentler than just blowing to get the blood clots/nasty stuff out.
2) Right after using the saline spray and cleaning out your nose, use a cotton swab and Vaseline/petroleum jelly to coat around the insides of your nostrils, as far back as you can comfortably go.

Do this for sure in the evening before you sleep. If you live in a dry climate, this is especially important. My bleeding was most troublesome during the night and in the morning after waking up. I could hardly breathe through my nose for all of the buildup. Doing these two things helped a lot.
http://thelongglass.wordpress.com
12/22/10- Diagnosed at 30 yo
Rectal Stage IIIB, T3N1M0
1/11/11- 25 doses radiation w/ 24/7 5FU pump
4/8/11- LAR-Complete Response to Therapy!
5/13/11- 12 treatments of FOLFOX started
11/11- ilestomy reversed, port-a-cath removed
NED since
Mother of 3 beautiful little girls

sbarrmed
Posts: 1
Joined: Wed Dec 05, 2012 6:05 pm

Re: Nose Sores

Postby sbarrmed » Wed Dec 05, 2012 6:27 pm

I also have nose sores (on FOLFOX as adjuvant therapy following surgery, but not on Avastin). Same exact symptoms as some of you with runny nose (especially when i eat), some blood when I blow my nose and tenderness inside the nose. We live in Nevada, where it is very dry, and I use saline spray anyway (originally from Chicago and lots of humidity there). I find that a humidifier at night and vaseline-based antibiotic like Neosporin really helps. I have 3 more FOLFOX infusions and hope the sores will stop when therapy is done.

User avatar
mstults
Posts: 1327
Joined: Fri Nov 30, 2012 11:23 am

Re: Nose Sores

Postby mstults » Wed Dec 05, 2012 7:37 pm

No sores but some bloody discharge. I use the saline gel. At first I thought it was a sinus infection but later decided it was the avastin. I've used the saline rinse before. But not since I started chemo.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: Nose Sores

Postby Cb75 » Wed Dec 05, 2012 9:45 pm

I have an extremely dry nose, from time to time it's painful and bleeds. I have found a netti pot to be very helpful. It's similar to the idea of saline spray but actually washes through your nasal passages. Look it up and give it a try. I also understand that it can help to ward off colds.
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: beach sunrise, Google Feedfetcher, roadrunner and 21 guests