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Update Nov8

Posted: Tue Nov 08, 2011 8:56 am
by jmarie
Thank you so much for your prayers and support. A young woman has offered to be our nanny at very low cost, my Aunt's church along with a few members have offerered to pick up what costs she does charge. It is so amazing to us to not have to send Lilli to daycare 50hrs a week. She is a college student so we will need to find some childcare for herthe Nanny's school hours but this is is much better than regular daycare without very much one-on-one attention for 50-60 hrs a week. We just met yesterday, she is a young christian girl and she seems to be great with Lilliana, Lilli loves her "new friend" so far.

Not sure where I left off last so I might be repeating some info. Today is tx #8/10 on vertabrae C7-T10. Behind my left I had developed a small bump behind my left ear. They didn't think that my "bump or 6 mm brain lesion was too big of a deal compared to my vertabrae being compromixed, so they went ahead and started on what they thought was the worst, my spine and protecting my spinal cord. Over the weekend my 'Bump' has quadrupled in size and became pretty painful putting pressure on my ear drum. So this week we are jumping into some more radiation on my 'bump' and brain lesion. The bump will probably take 10 txs because they don't want to fry the ear drum, the brain lesion will only(fhopefully) only take one tx. Today I will have my head rad simulation and on Thursday I will have a Volumetrics MRI of my head to get the best possible pic of the two tumors ,this may change tx, hopefully not. Iemo brin am having symptoms of fogginess, forgetting and switching names and mild confusion. Not your usual chtching names or chemo brain prob, the most absolutely scary symptoms ever. Hopefully this next round of Whack-A-Mole will start on

Re: Update Nov8

Posted: Tue Nov 08, 2011 9:00 am
by BrownBagger
Thanks for the update, Jess. I'm so glad you took the time to let us know how you're doing.

Your daycare arrangements sound great. You're a fantastic mother and I know Lilli is getting the best care possible.

Good luck with the tx.

Re: Update Nov8

Posted: Tue Nov 08, 2011 9:02 am
by thiemanndi
Thank you for taking the time and effort to update us, Jess. We are all pulling for you. ((HUGS)).
Di

Re: Update Nov8

Posted: Tue Nov 08, 2011 9:06 am
by jjlist
wow
you are truly amazing and an inspiration,

Re: Update Nov8

Posted: Tue Nov 08, 2011 9:12 am
by SkiFletch
Very good to hear about care for Lilli Jess. Sending more thoughts, prayers and swinging chickens for the latest round of whack a mole

Re: Update Nov8

Posted: Tue Nov 08, 2011 9:24 am
by las
Jess,

I think that is great you found a nanny, that will be good for both of you. Lillie will be able to interact with another adult and you will always be there by her side. Hang in there and be strong, you can do this, your a fighter. You will hopefully be able to enjoy and relax and focus on your treatments and the good times with Lilli with the help your community is rallying around you.

I have been thinking about you everyday and wondering how you were doing, my prayers are with you and your loved ones.

Lisa

Re: Update Nov8

Posted: Tue Nov 08, 2011 9:41 am
by NWgirl
Sending prayers and hugs your way. I'm so glad you found a nanny for Lilli. Thinking of you always.

Re: Update Nov8

Posted: Tue Nov 08, 2011 9:56 am
by Lee
Jess, good to hear from you. I hope all works out well for Lilli and the new Nanny. It sounds like you have a good support system there. I hope the Whack-A-Mole is successful in ridding your body of those nasty cells and giving you relief from your pain. Take care of yourself and a gentle ((HUG)) to you.

Prayers to you and your family.

Lee

Re: Update Nov8

Posted: Tue Nov 08, 2011 9:57 am
by Mona
Dear Jessica, thank you for letting us know what is going on with you and with your little angel right now. Thinking and praying about you daily.
Much love,
Mona

Re: Update Nov8

Posted: Tue Nov 08, 2011 10:40 am
by Nanette
I am happy to see your post, Jess. That's good news about the nanny for Lilli. She sounds like a nice girl and it'll be a tremendous help for you.

We are praying you shrink that cancer right down and you start getting some relief.

Thinking about you everyday...

Love,
-Nanette

Re: Update Nov8

Posted: Tue Nov 08, 2011 10:58 am
by Laurettas
How wonderful, Jess, that you found a good helper and the church is so generous. You are blessed with good friends and family. Will be praying that all goes well with the treatments and prayers for your family as well. God be with you!

Re: Update Nov8

Posted: Tue Nov 08, 2011 11:00 am
by abuttigi
I'm so glad that you found an arrangement with Lily that you are comfortable with! Prayers to you as your continue your treatment!

Re: Update Nov8

Posted: Tue Nov 08, 2011 11:31 am
by ams5796
Thanks Jess, for updating us. Sounds like you have a good team working on you. You sound amazingly upbeat. So glad that you now have such a great daycare arrangement. People do always come through. I wished I lived near you. I'd help with Lilli! :D

Ann

Re: Update Nov8

Posted: Tue Nov 08, 2011 11:32 am
by CRguy
Prayers and posi vibes coming to you and your family Jess. Here's to keep whacking those moles !

In Harmony
The CRgang

Re: Update Nov8

Posted: Tue Nov 08, 2011 11:40 am
by beth568
Thanks for the update, Jess. I'm so glad you have some help with Lilli that will be good for you and for her. Heres hoping that the bump/brain atuff gets zapped right away.

Big hugs to you, with lots of good vibes for successful treatment.