Update Nov8

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Ladybug
Posts: 200
Joined: Thu Jul 29, 2010 10:17 pm
Facebook Username: Ryan Marie

Re: Update Nov8

Postby Ladybug » Tue Nov 08, 2011 11:08 pm

So glad that you and your family are receiving such great support! I think about you and pray for you and your family daily. You are so very brave- and most certainly an inspiration to me.

Thanks for taking the time to post.
Lung and Liver Mets
FOLFOX July 2010
Began erbitrux January 2011
December 2011 - progression
Return to FOLFOX Jan. 2012
Fusilev and 5FU June 2012
August 2012 Progression --> Starting Zaltrap
October 13, 2012 my wonderful mother passed away

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karin
Posts: 1278
Joined: Fri Jul 24, 2009 12:24 am
Facebook Username: Karin Tobin Fagner
Location: Austin, TX

Re: Update Nov8

Postby karin » Tue Nov 08, 2011 11:47 pm

Great news about the nanny for Lillgirl, and so glad for the financial help from the church! i am so happy you are keeping us in the loop, post when you can and if you can't , just know we are thinking of you and putting all of our positive vibes into that XRT beam and helping it beat back the tumors!

hang in there jess!
luv and hugs,
Karin
Karin
BFF dx'd June09 w CRC & peritoneal mucinous carcinomatosis @ age 40
She beat cancer for 20 months!

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Stomatrooper
Posts: 490
Joined: Fri Dec 31, 2010 11:56 pm
Location: Auckland New Zealand

Re: Update Nov8

Postby Stomatrooper » Wed Nov 09, 2011 2:16 am

Good luck and best wishes Jess

Thinking of you and your family.



John
John, Diag. 20 5 2010 @55
Rectal, 2cm dia, 3cm from anal verge
T2N0M0
5.5 Wk Chemorad
ULAR Oct 2010
Temp Ileo, infection; blockage; incisional hernia
Takedown Jan 2011
Hernia fix - June 2011
Clean CT 2011; 2012 & 2015
Clean scope May 2013

Georgie
Posts: 421
Joined: Tue Sep 27, 2011 6:39 pm
Facebook Username: Georgie Adams

Re: Update Nov8

Postby Georgie » Wed Nov 09, 2011 6:59 am

Inspirational Jess. Keep 'wackin the moles'. Wish u all the very best for the treatments. Glad u get to spend more time with your little person. Sending positive vibes and hugs.
Nuclear Medicine/PET Tech
Stage 3 T4N1M0 Rectal Ca diag 1/11 at age 29
Clinical trial (chemoradiation) 12 wks incl FOLFOX
Surgery 14 June '11
Post op infection
Iliostomy reversal 12 Sept '11
NED 6 years!
2017 Stage II Breast cancer triple positive
BRCA2 mutation
Bilateral mastectomy, chemo, herceptin

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Canadianmom
Posts: 603
Joined: Wed Nov 03, 2010 6:29 pm

Re: Update Nov8

Postby Canadianmom » Wed Nov 09, 2011 8:43 am

Thanks for posting Jess. You have been constantly on my mind and in my prayers. You have been handling this, in true Jess style, with courage, faith, strength and consideration of those that you love. As always, you are an inspiration. Sending love, prayers and hugs.
30/09/10 Dx mCRC/ 39 yrs old
08/11/10 liver met; Stage IV
23/11/10 PET 2 lit LNs
25/11/10 RFA to liver met
13/12/10 Folfox 6 plus Avastin.
15/03/11 After 7 rounds. NED. No further tx. 2014 still NED
Praying for patience and strength.

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pollo65
Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: Update Nov8

Postby pollo65 » Wed Nov 09, 2011 10:58 am

Jess, just wanted to send love and hugs to you and your family.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

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CheeseHead
Posts: 1171
Joined: Sat Jul 31, 2010 2:36 pm
Location: Netherlands

Re: Update Nov8

Postby CheeseHead » Wed Nov 09, 2011 11:20 am

Jess,

Glad you've got multiple helping hands (either financially or physically). Let's hope you can whack some moles so you'll be more comfortable.

Thinking of you,
Cheese
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

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Bev G
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Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Update Nov8

Postby Bev G » Wed Nov 09, 2011 11:21 am

Sweet Jess:

Hopping it's a good day today, with progress in the tx.

Much love, Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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blakeswife
Posts: 540
Joined: Sun Jul 26, 2009 5:55 pm
Facebook Username: kathy.mair
Location: Utah

Re: Update Nov8

Postby blakeswife » Wed Nov 09, 2011 1:38 pm

Jess, I just want to give you a giant hug. I wish I was a neighbor that could help you and your sweet family. Thankfully, you have a kind community that is stepping in to help.

Keep asking for help where you need it. After 4 years, I just learned that our cancer center has a foundation that offers assistance with things like house cleaning and snow blowing. Maybe you can call your Oncologist's office and ask if they have something similar?

Take care,

Kathy
DH Stage IV 10/07
Colectomy, Liver resection & RFA, 1/13 LN
12/07-5/08 Folfox/Avastin
7/09 recurrence-Peritoneum
9/09-12/09 Folfiri/Avastin
1/10-5/10 Xeloda/Avastin
9/10-current w/built in breaks

HildaC
Posts: 111
Joined: Thu Dec 16, 2010 3:31 pm

Re: Update Nov8

Postby HildaC » Wed Nov 09, 2011 3:17 pm

Jess,

Keep fighting. We're pulling for you!

Hilda

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jmarie
Posts: 2230
Joined: Sun Jul 19, 2009 3:33 pm
Facebook Username: Jessica Ramos Smith
Location: Jacksonville, FL
Contact:

Re: Update Nov8

Postby jmarie » Wed Nov 09, 2011 6:33 pm

Sorry for such a choppy and un-edited update. I had been typing that update off and on since 4am, highly drugged up :oops: , had to leave in a hurry and thought I was saving it as a draft to edit and add to later. I guess I accidently submitted it. I was looking for it in my drafts and just figured I didn't save it right but now after looking at active topics I see I actually posted my drugged up update :oops: :oops: :oops: I am going to go through the post, clean it up and finish it up so you all get the full story.

Thank you all for the good wishes and support we are going to get there :wink:
DX Stage IV 11/25/08
mets liver lung, kras mutant
Baby 2yrs old! I am 32yrs
Too many chemo txs to count
trying to find a clinical trial
"You can't stop the waves, but you can learn to surf"

ike
Posts: 94
Joined: Fri Aug 19, 2011 4:01 pm

Re: Update Nov8

Postby ike » Wed Nov 09, 2011 6:44 pm

jess,

thanks for your update and i am so happy things are finally in order as far as your care and the little ones care. sounds like you and your family are well on the way to getting things taken care of in your home and now we pray the doctors will do their job to kick some ass with this cancer. i pray for your and your family daily.

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Kathryn in MN
Posts: 2970
Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
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Re: Update Nov8

Postby Kathryn in MN » Wed Nov 09, 2011 9:44 pm

I'm glad you found such a perfect solution for care for Lilli.

It sounds like your medical team has things under control, taking care of radiation on the most compromising tumors first. I hope the radiation takes care of your spine, your ear and your brain quickly. You remain in my prayers.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

micky
Posts: 10
Joined: Sun Oct 16, 2011 9:46 pm
Facebook Username: Lorie Carmona

Re: Update Nov8

Postby micky » Wed Nov 09, 2011 9:48 pm

Jess, You have been such a good example of what you should fight for and live for what you want and not let it contol you and you control your life as much as you can. I'm so glad you are getting the help with your daughter, she is a big key to your success. Just get through this so you can move on and have more special times at home even if it is not making it to the bathroom on time lol thinking about you. Give your daughter extra hugs from us, it makes us all feel better. I always feel better when my daughter hugs and kisses me to. Lots of luck Lorie from chicago

jens22
Posts: 1013
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Update Nov8

Postby jens22 » Wed Nov 09, 2011 10:14 pm

Jess, All the prayers and postive energy brought you this angel to take care of Lilli so that you can focus on yourself. You amaze me everyday . May your strength see you through.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.


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