Thank you so much for your prayers and support. A young woman has offered to be our nanny at very low cost, my Aunt's church along with a few members have offerered to pick up what costs she does charge. It is so amazing to us to not have to send Lilli to daycare 50hrs a week. She is a college student so we will need to find some childcare for herthe Nanny's school hours but this is is much better than regular daycare without very much one-on-one attention for 50-60 hrs a week. We just met yesterday, she is a young christian girl and she seems to be great with Lilliana, Lilli loves her "new friend" so far.
Not sure where I left off last so I might be repeating some info. Today is tx #8/10 on vertabrae C7-T10. Behind my left I had developed a small bump behind my left ear. They didn't think that my "bump or 6 mm brain lesion was too big of a deal compared to my vertabrae being compromixed, so they went ahead and started on what they thought was the worst, my spine and protecting my spinal cord. Over the weekend my 'Bump' has quadrupled in size and became pretty painful putting pressure on my ear drum. So this week we are jumping into some more radiation on my 'bump' and brain lesion. The bump will probably take 10 txs because they don't want to fry the ear drum, the brain lesion will only(fhopefully) only take one tx. Today I will have my head rad simulation and on Thursday I will have a Volumetrics MRI of my head to get the best possible pic of the two tumors ,this may change tx, hopefully not. Iemo brin am having symptoms of fogginess, forgetting and switching names and mild confusion. Not your usual chtching names or chemo brain prob, the most absolutely scary symptoms ever. Hopefully this next round of Whack-A-Mole will start on
DX Stage IV 11/25/08
mets liver lung, kras mutant
Baby 2yrs old! I am 32yrs
Too many chemo txs to count
trying to find a clinical trial
"You can't stop the waves, but you can learn to surf"