Update Nov8

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Update Nov8

Postby jmarie » Tue Nov 08, 2011 8:56 am

Thank you so much for your prayers and support. A young woman has offered to be our nanny at very low cost, my Aunt's church along with a few members have offerered to pick up what costs she does charge. It is so amazing to us to not have to send Lilli to daycare 50hrs a week. She is a college student so we will need to find some childcare for herthe Nanny's school hours but this is is much better than regular daycare without very much one-on-one attention for 50-60 hrs a week. We just met yesterday, she is a young christian girl and she seems to be great with Lilliana, Lilli loves her "new friend" so far.

Not sure where I left off last so I might be repeating some info. Today is tx #8/10 on vertabrae C7-T10. Behind my left I had developed a small bump behind my left ear. They didn't think that my "bump or 6 mm brain lesion was too big of a deal compared to my vertabrae being compromixed, so they went ahead and started on what they thought was the worst, my spine and protecting my spinal cord. Over the weekend my 'Bump' has quadrupled in size and became pretty painful putting pressure on my ear drum. So this week we are jumping into some more radiation on my 'bump' and brain lesion. The bump will probably take 10 txs because they don't want to fry the ear drum, the brain lesion will only(fhopefully) only take one tx. Today I will have my head rad simulation and on Thursday I will have a Volumetrics MRI of my head to get the best possible pic of the two tumors ,this may change tx, hopefully not. Iemo brin am having symptoms of fogginess, forgetting and switching names and mild confusion. Not your usual chtching names or chemo brain prob, the most absolutely scary symptoms ever. Hopefully this next round of Whack-A-Mole will start on
DX Stage IV 11/25/08
mets liver lung, kras mutant
Baby 2yrs old! I am 32yrs
Too many chemo txs to count
trying to find a clinical trial
"You can't stop the waves, but you can learn to surf"

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Re: Update Nov8

Postby BrownBagger » Tue Nov 08, 2011 9:00 am

Thanks for the update, Jess. I'm so glad you took the time to let us know how you're doing.

Your daycare arrangements sound great. You're a fantastic mother and I know Lilli is getting the best care possible.

Good luck with the tx.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Facebook Username: Dianne Bottomley Thiemann
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Re: Update Nov8

Postby thiemanndi » Tue Nov 08, 2011 9:02 am

Thank you for taking the time and effort to update us, Jess. We are all pulling for you. ((HUGS)).
09/2003 Dx Rectal Ca
10/2003 surgery & temp ileo
extremely low anastamosis
12/2003-06/2004 Chemo (5fu) & chemo/radiation
multiple obstructions beginning Oct 2011
Not coping so well anymore!
Reconstructive Surgery Scheduled for October 13 2016

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Re: Update Nov8

Postby jjlist » Tue Nov 08, 2011 9:06 am

you are truly amazing and an inspiration,
age 56
11/16/09 DIAG low rectal tumor ST II T3N0M0
12/21/09 chemopump radiation
3/18/10 suregry colo-anal anastomosis, no nodes,.
4/29/10 Abcess infection
6/3/10 started 12 folfox sessions completed 10.
1/11/11 ileostomy takedown

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Re: Update Nov8

Postby SkiFletch » Tue Nov 08, 2011 9:12 am

Very good to hear about care for Lilli Jess. Sending more thoughts, prayers and swinging chickens for the latest round of whack a mole
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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Re: Update Nov8

Postby las » Tue Nov 08, 2011 9:24 am


I think that is great you found a nanny, that will be good for both of you. Lillie will be able to interact with another adult and you will always be there by her side. Hang in there and be strong, you can do this, your a fighter. You will hopefully be able to enjoy and relax and focus on your treatments and the good times with Lilli with the help your community is rallying around you.

I have been thinking about you everyday and wondering how you were doing, my prayers are with you and your loved ones.

Fiance DX 6/27/11 CC IV w/liver mets,adrenal glnd,pet.
7/25/11 folfox
8/2/11 surg.colon wall prefor.no removal of tumor
8/24/11 folfox ,3/12 5FU, 5/12 irinitecan failed, 7/12 didn't qualify regronfenib
8/13/12 Hospice, 8/18/12 married, died 9/10/2012

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Re: Update Nov8

Postby NWgirl » Tue Nov 08, 2011 9:41 am

Sending prayers and hugs your way. I'm so glad you found a nanny for Lilli. Thinking of you always.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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Re: Update Nov8

Postby Lee » Tue Nov 08, 2011 9:56 am

Jess, good to hear from you. I hope all works out well for Lilli and the new Nanny. It sounds like you have a good support system there. I hope the Whack-A-Mole is successful in ridding your body of those nasty cells and giving you relief from your pain. Take care of yourself and a gentle ((HUG)) to you.

Prayers to you and your family.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Re: Update Nov8

Postby Mona » Tue Nov 08, 2011 9:57 am

Dear Jessica, thank you for letting us know what is going on with you and with your little angel right now. Thinking and praying about you daily.
Much love,
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

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Re: Update Nov8

Postby Nanette » Tue Nov 08, 2011 10:40 am

I am happy to see your post, Jess. That's good news about the nanny for Lilli. She sounds like a nice girl and it'll be a tremendous help for you.

We are praying you shrink that cancer right down and you start getting some relief.

Thinking about you everyday...

Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

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Re: Update Nov8

Postby Laurettas » Tue Nov 08, 2011 10:58 am

How wonderful, Jess, that you found a good helper and the church is so generous. You are blessed with good friends and family. Will be praying that all goes well with the treatments and prayers for your family as well. God be with you!
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

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Re: Update Nov8

Postby abuttigi » Tue Nov 08, 2011 11:00 am

I'm so glad that you found an arrangement with Lily that you are comfortable with! Prayers to you as your continue your treatment!
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfori, Avastin
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

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Re: Update Nov8

Postby ams5796 » Tue Nov 08, 2011 11:31 am

Thanks Jess, for updating us. Sounds like you have a good team working on you. You sound amazingly upbeat. So glad that you now have such a great daycare arrangement. People do always come through. I wished I lived near you. I'd help with Lilli! :D

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Re: Update Nov8

Postby CRguy » Tue Nov 08, 2011 11:32 am

Prayers and posi vibes coming to you and your family Jess. Here's to keep whacking those moles !

In Harmony
The CRgang
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Re: Update Nov8

Postby beth568 » Tue Nov 08, 2011 11:40 am

Thanks for the update, Jess. I'm so glad you have some help with Lilli that will be good for you and for her. Heres hoping that the bump/brain atuff gets zapped right away.

Big hugs to you, with lots of good vibes for successful treatment.
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13

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