Sciatica and scanxiety

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beth568
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Sciatica and scanxiety

Postby beth568 » Mon Nov 07, 2011 6:14 am

Good grief. I've got an appt to see my onc at 10 am tomorrow to go over Friday's scan results and I am GOING OUT OF MY MIND. I was doing reasonably well until yesterday, and now the scanxiety is really getting to me.

I'm freaking out because I've had sciatica-like symptoms for about 3 weeks now. Numbness and pain in the back of my left leg, radiating down into my calf. At first I thought I'd just pulled a hamstring, but it's clearly more than just that - the feeling extends too far, and it's not responding to the PT that I usually do when I have a large muscle problem.

So of course, in the wee hours of the morning when I wake up because my leg hurts and can't get back to sleep, I start thinking that I've had a recurrence and that something is pressing on my sciatic nerve. It doesn't help that my post surgery/pre chemo scan in June showed a 1 cm mass of "soft tissue" in the presacral space. The radiologist said it was most likely evidence of post-surgical changes, but that there was also a slight possibility that it was a recurrence and wanted it carefully monitored.

Ugh. I know that there are plenty of other reasons my leg could be feeling this way. Perhaps it's related to my oxaliplatin-induced neuropathy (has anyone had numbness/pain radiating up into the legs with neuropathy in feet, too?). But you all know how easy it is to overthink these things and go to the worst possible place. I guess I just have to live with this for another day and remind myself that, no matter what the news is tomorrow morning, at least I'll know how to move forward.

I swear, the uncertainty and waiting has been more difficult for me than almost any aspect of treatment.
Beth
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net

Liz2011
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Location: Hampshire, UK

Re: Sciatica and scanxiety

Postby Liz2011 » Mon Nov 07, 2011 7:50 am

Beth, nothing I can say will take the anxiety away, but I will be thinking about you tomorrow (afternoon my time in the UK!) and sending you tons of positive thoughts for a NED scan. Liz
Mum peritonitis 09/10
Colon resection 10/10
Mets on liver, peritoneum and LNs
Folfiri 02/11
07/11 tumours grow back
08/11 Folfox + Avastin
10/11 Vectibix
11/28/2011 in my heart forever

tammylayne
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Re: Sciatica and scanxiety

Postby tammylayne » Mon Nov 07, 2011 7:59 am

Aghhhh...the waiting! Can't wait for the day to come when they scan you in the doctor's office, and he/she gives you the results right there on the spot!! Ok, so it is a little Star Trekkish,,,but it WOULD be nice! :lol:

Good luck tomorrow Beth! Will be listening for that big sigh of relief....

Tammylayne
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

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CheeseHead
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Re: Sciatica and scanxiety

Postby CheeseHead » Mon Nov 07, 2011 9:32 am

tammylayne wrote:Aghhhh...the waiting! Can't wait for the day to come when they scan you in the doctor's office, and he/she gives you the results right there on the spot!! Ok, so it is a little Star Trekkish,,,but it WOULD be nice! :lol:

Would about an hour be acceptable? That's how long it took between scan and the radiologist discussing the results with me in Paris. Still extremely impressed with these guys... (Then I went to see the surgeon, but I at least already had an idea about the situation)

tammylayne wrote:Good luck tomorrow Beth! Will be listening for that big sigh of relief....

Yes, good luck, Beth!

Cheese
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

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Bev G
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Re: Sciatica and scanxiety

Postby Bev G » Mon Nov 07, 2011 10:47 am

Hi Beth:

I'm sorry about the sciatica (BTDT) and so sorry about the waiting and scanxiety. Both of them are absolutely horrible. I hope it turns out to be nothing, other than sciatica, which is awful enough on it' own. Have you ever had a disc issue, especially around, say, L4-5? I'll be looking forward to hearing from you tomorrow regarding your results, and hoping for some comfortable rest and peace for you in the meanwhile.

Love, Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

SkiFletch
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Re: Sciatica and scanxiety

Postby SkiFletch » Mon Nov 07, 2011 11:02 am

Well Beth, it's 11, so hoping you got good news :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

Grace14
Posts: 417
Joined: Mon Oct 24, 2011 7:42 pm

Re: Sciatica and scanxiety

Postby Grace14 » Mon Nov 07, 2011 11:15 am

I think she said Tuesday is her appointment!
Good luck tomorrow Beth I'm sure everything will be fine so that you can enjoy the holidays.
It's so hard no to worry I know exactly how you feel it sucks waiting!!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

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hopeful
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Re: Sciatica and scanxiety

Postby hopeful » Mon Nov 07, 2011 11:34 am

Scanxiery is awful and I don't know much that can help with that. I worry about my husband all the time, even when there is nothing to worry about.

But maybe this will help the sciatica a little. I've had it for the last couple of months and wake up with it sometimes too. Two Ibuprofen helps some. I found this exercise which can be pretty helpful too and although lying on the floor and doing it works best, I sometimes do it in bed in the morning or when I wake up during the night. http://www.youtube.com/watch?v=cUGikiKeuUs I hope it helps.

Sending positive thoughts and prayers your way for the scan results tomorrow.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

annalexandria
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Re: Sciatica and scanxiety

Postby annalexandria » Mon Nov 07, 2011 12:37 pm

I'm so sorry you're going through this, Beth. I'm in the same boat right now. Had my scan on Thursday and haven't gotten the results yet. I've had incredibly nasty hip pain, which of course immediately makes me think bone mets, but I did read that a number of chemos can do a lot of joint and muscle damage, so am hoping for a chemical cause for the pain. Chemo has also been implicated in the development of arthritis (wasn't there someone here who just posted recently about tailbone pain that turned out to be that?). Tossed back an Ativan this morning, and plan to walk a little later-hopefully shake off some of the scanxiety. I'll be thinking of you, and hoping for the best possible results, no cancer! Ann
Mom, librarian
Dx age 43, Sept. '09, Stage IV Carcinosarcoma of the colon
5 surgeries, 2009-2011:
colon/sm. bowel res., node removal, peritoneum, hysterectomy
FOLFOX/Avastin Feb.'10-Aug '10
Carbo-Taxol Dec. '10-Feb. 2011
NED since Dec. 2011.

ams5796
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Re: Sciatica and scanxiety

Postby ams5796 » Mon Nov 07, 2011 12:57 pm

Beth, Scanxiety is sooo tough to go through. I'm going through it myself today. I'm meeting with my oncologist tomorrow to go over the scan I had this morning. Anyway, I still have a lot of neuropathy in my feet and I think that can radiate up the leg. It has for me. I can remember calling my oncologist a couple of years ago asking him if my sciatica was anything to worry about. He assured me that it wasn't and he was right. It went away right after that, but it really hurt. He did say at that time that my neuropathy could have something to do with the sciatica occurring. Just walking differently, balance issues etc.

Scanxiety plays such games with our heads. This time I'm worrying about why I'm not worrying more and wondering if I'm jinxing myself. haha

Good luck, Beth!
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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StarGirl
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Re: Sciatica and scanxiety

Postby StarGirl » Mon Nov 07, 2011 1:29 pm

Beth:

Sciatica can be very painful--just so sorry that you are having to endure it along with the scan anxiety. I will be keeping you in my prayers. Please keep us posted.
DX 03/31/2011
Stage IV Rectal Cancer with mets to liver
6 rounds of 5FU, Oxaliplatin
3 rounds of Avastin
PET scan 07/15/2011 shows liver mass inactive

Deirdre
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Location: Ireland

Re: Sciatica and scanxiety

Postby Deirdre » Mon Nov 07, 2011 3:39 pm

Beth
Hope tomorrow brings only good news, on all fronts
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!

clarabelle64
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Re: Sciatica and scanxiety

Postby clarabelle64 » Mon Nov 07, 2011 3:42 pm

Hang in there Beth.....love and hugs...KIA KAHA
Clarabelle
Clarabelle, Mother of Deborah who has CC with mets to liver + lungs.
Has been on Folfiri then 5FU + Oxi
Lung Mets progressed
Currently on Intravenous Vit C + diet + supplements
My darling girl passed away 18.8.2011

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Jen
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Re: Sciatica and scanxiety

Postby Jen » Mon Nov 07, 2011 4:31 pm

Good luck with that. If it helps, I too had sciatica issues - it was after radiation and it was so painful I could barely take a step. I think it has to do with temporary radiation trauma maybe to muscles/ligaments in the area. I thought it was a recurrence for sure . Mine cleared up within a few weeks and hasn't been a problem since. I really hope for you it is just some temporary misallignment.

I did have pelvic xrays just cause I thought for sure it was something.

Jen
2008 March 37th Bday DX :( T3N2M0
3C Rectal Cancer, 5cm tumor, 4/33 nodes positive
28 tx IMRT Radiation, 12 tx Folfox, 1 month Xeloda
5 years NED 3/14/2013!

thelongglass
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Re: Sciatica and scanxiety

Postby thelongglass » Mon Nov 07, 2011 6:54 pm

Hang in there, Beth! I got my results over the phone, and although the speed of information is nice, it is also problematic, because there were questions raised that now have to be volleyed off the oncologist and radiologist, so I am less than satisfied. I probably won't really know until you do, even with the phone call today.

As far as weird nerve stuff goes, you already read my description of what someone so helpfully diagnosed as Lhermitte's Sign, or the electric pulse through my legs when I nod my head. That oxaliplatin is obviously nasty stuff, so maybe it could be the cause of your trouble?

Eager to hear how it goes...
http://thelongglass.wordpress.com
12/22/10- Diagnosed at 30 yo
Rectal Stage IIIB, T3N1M0
1/11/11- 25 doses radiation w/ 24/7 5FU pump
4/8/11- LAR-Complete Response to Therapy!
5/13/11- 12 treatments of FOLFOX started
11/11- ilestomy reversed, port-a-cath removed
NED since
Mother of 3 beautiful little girls


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